Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Leanne First, I, as I'm sure Leanne does stretch this list to apply it for PF as well. Whether PF is technically an autoimmune disease or not, I do believe it is an autoimmune process...our lungs reacting to something by scarring themselves for protection. In fact, the most common autoimmune process we know of would be allergies. Our body produces histamine as a reaction. So, on to her list: Fatigue-Yes, had it and couldn't get into exercise or anything else and did try hard. Sleep Disturbance=My Level 1 sleep was double what would be normal with most of that coming out of Level 4 and the rest from Level 3. Short term memory loss-Absolutely and verified through testing. How much was from mental illnesses and how much PF and how much a combination who knows. Emotional and Depression-I bottomed out pretty much in August 2005 and continued in very deep stages through 2006 and into 2007. My counselor was convinced starting as early as January 2006 that there was an overlooked physical condition. A lot of effort was done to figure it out but most was looking for a neurological issue, not a pulmonary one. Low Thyroid-Hypothyroidism a couple of years before PF diagnosis. My normal body temperature is now 97 degrees. Gastrointestinal-Bloating, Hiatal Hernia, Inflammation, Nausea, extreme GERD Swollen Glands-Swollen lymph nodes. Chemical sensitivities, allergies-these all heightened considerably before. I couldn't breathe in my mother-in-laws house due to chemicals there so couldn't go there. In retrospect the SOB was no different than severe SOB from the PF. My sinuses hit big time in April 2006, even leading to a nighttime ER trip as my head and face were so swollen. They have continued since. Pain-had shoulder, neck and back pains. Tingling hands-attributed to idiopathic neuropathy Ringing ears-all attributed to ear surgeries years ago. Now, the ear issue was in some ways an autoimmune type reaction itself-cholesteotoma. Metallic taste in mouth-Yes, always attributed to meds. Overdoing-I overdid until my entire system just said no more. Panic Attacks-Severe in the two years prior to diagnosis. Physiologically very much like an SOB attack from PF. > > Thought this was interesting....This is off a website called > www.gethealthy.com. > > > Symptoms of Autoimmune Diseases > > Spouses and family members, even though someone may look perfectly > healthy, if they have an autoimmune diseases, they are truly ill. It > is not in their head. > > The following symptoms are common in many, if not all, autoimmune > diseases. > > Fatigue: It's not a good fatigue, from working hard, but an anxious, > uncomfortable fatigue related to lack of sleep. Or a disruption of > the energy production mechanism in cells, either from lack of > oxygen, increased toxicity, infections or a malfunction of the > mitochondria. > > Sleep Disturbance: About 80% may wake up three or four times a > night, or in some cases you don't wake up, but in the morning you > still feel like a truck ran over you. The reason for this is that > subliminal seizures kick you out of stage 4, Delta sleep, to stage 1 > sleep so you can't sleep deeply and wake up not rested. > > Short Term Memory Loss: Because of the low thyroid and heart > complications typical in autoimmune diseases, there is a decrease in > blood flow to the left lobe of the brain causing an oxygen > deficiency in the brain. This can lead to the memory loss and > forgetfulness that is common in autoimmune diseases. > > Emotional Liability: Someone may cry more easily, be more anxious > and fearful. This is caused by the illness, and is not a > psychological reaction! > > Depression: As with the emotional symptoms, the hypothalamus is > involved. This is not clinical depression, but literally has a > physical cause that is sometimes experienced as a deep depression > right in the heart. > > Low Thyroid Function. About 85% have this symptom, but only about > 10% of the time does it show up on a typical thyroid test. If you > get tested, have both a T3 and T4 done. About 10% have excessive > hair loss. For most everyone, a poorly performing thyroid will show > up as subnormal temperatures. > > Gastrointestinal Problems: About 75% have this symptom. Can be > anything from gas, bloating, cramps, diarrhea or constipation to > hiatal hernia, irritable bowel syndrome or Crohn's Disease. > Sometimes taking a simple homeopathic remedy like arsenicum album, > 6x or 6c and make a difference with this. > > Swollen Glands, Chemical Sensitivity, Headaches: Allergies often > develop, usually after 3 to 5 years. Eyes can be light sensitive for > 6 months or longer. Dry eyes can develop. About 20% experience a > very uncomfortable disequilibrium of vertigo, almost an out of body > feeling that can be most disconcerting. > > Pain and Fibromyalgia: Often diagnosed as a separate illness, > fibromyalgia is basically a symptom that can occur with any > autoimmune disease. If you have it, you've got pain. Often in the > neck and in shoulder muscles extending down the back. Can be in the > joints and muscles also. > > Low Blood Sugar. > > Candida Yeast Infections: These are very common. Check your tongue. > If it has a white coating, you have it. Or take the spit test you > will read about later. Women may get vaginal yeast infections caused > by candida overgrowth. A candida infection on its own can cause a > number of autoimmune type symptoms. Sinus infections often are > caused by candida. > > Tingling hands. Ringing ears. Cold toes. Cold fingers. Metallic > taste in mouth. Caused by poor circulation and who knows what. > > Overdoing: You overexercise or overwork when your are feeling good, > and then feel worse for days afterward. This can cause serious > problems. In healthy people the body shuts down when the anaerobic > threshold is reached as a lot of pain is experienced. This warning > does not occur if you have an autoimmune disease. Instead, the body > continues to exercise and experiences no pain as the lactic acid > builds up, and the body ends up recirculating carbon dioxide. This > is not a healthy thing to have happen to you. It is important not to > push too hard when you start recovering, or this will set you back > and wipe you out. > > Fluttering Heart. Panic Attacks. Rapid Heartbeat. Mitral Valve > Prolapse. Usually blood pressure is low, though it can get high > later on. The heart underpumps blood because it is getting incorrect > messages from the autonomous nervous system. The body's feedback > loop picks this up and over-reacts. And you get these symptoms. > > If you have autoimmune illness, it is not likely you have all these > symptoms. However, you will have many of them to one degree or > another. > > Leanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Leanne First, I, as I'm sure Leanne does stretch this list to apply it for PF as well. Whether PF is technically an autoimmune disease or not, I do believe it is an autoimmune process...our lungs reacting to something by scarring themselves for protection. In fact, the most common autoimmune process we know of would be allergies. Our body produces histamine as a reaction. So, on to her list: Fatigue-Yes, had it and couldn't get into exercise or anything else and did try hard. Sleep Disturbance=My Level 1 sleep was double what would be normal with most of that coming out of Level 4 and the rest from Level 3. Short term memory loss-Absolutely and verified through testing. How much was from mental illnesses and how much PF and how much a combination who knows. Emotional and Depression-I bottomed out pretty much in August 2005 and continued in very deep stages through 2006 and into 2007. My counselor was convinced starting as early as January 2006 that there was an overlooked physical condition. A lot of effort was done to figure it out but most was looking for a neurological issue, not a pulmonary one. Low Thyroid-Hypothyroidism a couple of years before PF diagnosis. My normal body temperature is now 97 degrees. Gastrointestinal-Bloating, Hiatal Hernia, Inflammation, Nausea, extreme GERD Swollen Glands-Swollen lymph nodes. Chemical sensitivities, allergies-these all heightened considerably before. I couldn't breathe in my mother-in-laws house due to chemicals there so couldn't go there. In retrospect the SOB was no different than severe SOB from the PF. My sinuses hit big time in April 2006, even leading to a nighttime ER trip as my head and face were so swollen. They have continued since. Pain-had shoulder, neck and back pains. Tingling hands-attributed to idiopathic neuropathy Ringing ears-all attributed to ear surgeries years ago. Now, the ear issue was in some ways an autoimmune type reaction itself-cholesteotoma. Metallic taste in mouth-Yes, always attributed to meds. Overdoing-I overdid until my entire system just said no more. Panic Attacks-Severe in the two years prior to diagnosis. Physiologically very much like an SOB attack from PF. > > Thought this was interesting....This is off a website called > www.gethealthy.com. > > > Symptoms of Autoimmune Diseases > > Spouses and family members, even though someone may look perfectly > healthy, if they have an autoimmune diseases, they are truly ill. It > is not in their head. > > The following symptoms are common in many, if not all, autoimmune > diseases. > > Fatigue: It's not a good fatigue, from working hard, but an anxious, > uncomfortable fatigue related to lack of sleep. Or a disruption of > the energy production mechanism in cells, either from lack of > oxygen, increased toxicity, infections or a malfunction of the > mitochondria. > > Sleep Disturbance: About 80% may wake up three or four times a > night, or in some cases you don't wake up, but in the morning you > still feel like a truck ran over you. The reason for this is that > subliminal seizures kick you out of stage 4, Delta sleep, to stage 1 > sleep so you can't sleep deeply and wake up not rested. > > Short Term Memory Loss: Because of the low thyroid and heart > complications typical in autoimmune diseases, there is a decrease in > blood flow to the left lobe of the brain causing an oxygen > deficiency in the brain. This can lead to the memory loss and > forgetfulness that is common in autoimmune diseases. > > Emotional Liability: Someone may cry more easily, be more anxious > and fearful. This is caused by the illness, and is not a > psychological reaction! > > Depression: As with the emotional symptoms, the hypothalamus is > involved. This is not clinical depression, but literally has a > physical cause that is sometimes experienced as a deep depression > right in the heart. > > Low Thyroid Function. About 85% have this symptom, but only about > 10% of the time does it show up on a typical thyroid test. If you > get tested, have both a T3 and T4 done. About 10% have excessive > hair loss. For most everyone, a poorly performing thyroid will show > up as subnormal temperatures. > > Gastrointestinal Problems: About 75% have this symptom. Can be > anything from gas, bloating, cramps, diarrhea or constipation to > hiatal hernia, irritable bowel syndrome or Crohn's Disease. > Sometimes taking a simple homeopathic remedy like arsenicum album, > 6x or 6c and make a difference with this. > > Swollen Glands, Chemical Sensitivity, Headaches: Allergies often > develop, usually after 3 to 5 years. Eyes can be light sensitive for > 6 months or longer. Dry eyes can develop. About 20% experience a > very uncomfortable disequilibrium of vertigo, almost an out of body > feeling that can be most disconcerting. > > Pain and Fibromyalgia: Often diagnosed as a separate illness, > fibromyalgia is basically a symptom that can occur with any > autoimmune disease. If you have it, you've got pain. Often in the > neck and in shoulder muscles extending down the back. Can be in the > joints and muscles also. > > Low Blood Sugar. > > Candida Yeast Infections: These are very common. Check your tongue. > If it has a white coating, you have it. Or take the spit test you > will read about later. Women may get vaginal yeast infections caused > by candida overgrowth. A candida infection on its own can cause a > number of autoimmune type symptoms. Sinus infections often are > caused by candida. > > Tingling hands. Ringing ears. Cold toes. Cold fingers. Metallic > taste in mouth. Caused by poor circulation and who knows what. > > Overdoing: You overexercise or overwork when your are feeling good, > and then feel worse for days afterward. This can cause serious > problems. In healthy people the body shuts down when the anaerobic > threshold is reached as a lot of pain is experienced. This warning > does not occur if you have an autoimmune disease. Instead, the body > continues to exercise and experiences no pain as the lactic acid > builds up, and the body ends up recirculating carbon dioxide. This > is not a healthy thing to have happen to you. It is important not to > push too hard when you start recovering, or this will set you back > and wipe you out. > > Fluttering Heart. Panic Attacks. Rapid Heartbeat. Mitral Valve > Prolapse. Usually blood pressure is low, though it can get high > later on. The heart underpumps blood because it is getting incorrect > messages from the autonomous nervous system. The body's feedback > loop picks this up and over-reacts. And you get these symptoms. > > If you have autoimmune illness, it is not likely you have all these > symptoms. However, you will have many of them to one degree or > another. > > Leanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Leanne First, I, as I'm sure Leanne does stretch this list to apply it for PF as well. Whether PF is technically an autoimmune disease or not, I do believe it is an autoimmune process...our lungs reacting to something by scarring themselves for protection. In fact, the most common autoimmune process we know of would be allergies. Our body produces histamine as a reaction. So, on to her list: Fatigue-Yes, had it and couldn't get into exercise or anything else and did try hard. Sleep Disturbance=My Level 1 sleep was double what would be normal with most of that coming out of Level 4 and the rest from Level 3. Short term memory loss-Absolutely and verified through testing. How much was from mental illnesses and how much PF and how much a combination who knows. Emotional and Depression-I bottomed out pretty much in August 2005 and continued in very deep stages through 2006 and into 2007. My counselor was convinced starting as early as January 2006 that there was an overlooked physical condition. A lot of effort was done to figure it out but most was looking for a neurological issue, not a pulmonary one. Low Thyroid-Hypothyroidism a couple of years before PF diagnosis. My normal body temperature is now 97 degrees. Gastrointestinal-Bloating, Hiatal Hernia, Inflammation, Nausea, extreme GERD Swollen Glands-Swollen lymph nodes. Chemical sensitivities, allergies-these all heightened considerably before. I couldn't breathe in my mother-in-laws house due to chemicals there so couldn't go there. In retrospect the SOB was no different than severe SOB from the PF. My sinuses hit big time in April 2006, even leading to a nighttime ER trip as my head and face were so swollen. They have continued since. Pain-had shoulder, neck and back pains. Tingling hands-attributed to idiopathic neuropathy Ringing ears-all attributed to ear surgeries years ago. Now, the ear issue was in some ways an autoimmune type reaction itself-cholesteotoma. Metallic taste in mouth-Yes, always attributed to meds. Overdoing-I overdid until my entire system just said no more. Panic Attacks-Severe in the two years prior to diagnosis. Physiologically very much like an SOB attack from PF. > > Thought this was interesting....This is off a website called > www.gethealthy.com. > > > Symptoms of Autoimmune Diseases > > Spouses and family members, even though someone may look perfectly > healthy, if they have an autoimmune diseases, they are truly ill. It > is not in their head. > > The following symptoms are common in many, if not all, autoimmune > diseases. > > Fatigue: It's not a good fatigue, from working hard, but an anxious, > uncomfortable fatigue related to lack of sleep. Or a disruption of > the energy production mechanism in cells, either from lack of > oxygen, increased toxicity, infections or a malfunction of the > mitochondria. > > Sleep Disturbance: About 80% may wake up three or four times a > night, or in some cases you don't wake up, but in the morning you > still feel like a truck ran over you. The reason for this is that > subliminal seizures kick you out of stage 4, Delta sleep, to stage 1 > sleep so you can't sleep deeply and wake up not rested. > > Short Term Memory Loss: Because of the low thyroid and heart > complications typical in autoimmune diseases, there is a decrease in > blood flow to the left lobe of the brain causing an oxygen > deficiency in the brain. This can lead to the memory loss and > forgetfulness that is common in autoimmune diseases. > > Emotional Liability: Someone may cry more easily, be more anxious > and fearful. This is caused by the illness, and is not a > psychological reaction! > > Depression: As with the emotional symptoms, the hypothalamus is > involved. This is not clinical depression, but literally has a > physical cause that is sometimes experienced as a deep depression > right in the heart. > > Low Thyroid Function. About 85% have this symptom, but only about > 10% of the time does it show up on a typical thyroid test. If you > get tested, have both a T3 and T4 done. About 10% have excessive > hair loss. For most everyone, a poorly performing thyroid will show > up as subnormal temperatures. > > Gastrointestinal Problems: About 75% have this symptom. Can be > anything from gas, bloating, cramps, diarrhea or constipation to > hiatal hernia, irritable bowel syndrome or Crohn's Disease. > Sometimes taking a simple homeopathic remedy like arsenicum album, > 6x or 6c and make a difference with this. > > Swollen Glands, Chemical Sensitivity, Headaches: Allergies often > develop, usually after 3 to 5 years. Eyes can be light sensitive for > 6 months or longer. Dry eyes can develop. About 20% experience a > very uncomfortable disequilibrium of vertigo, almost an out of body > feeling that can be most disconcerting. > > Pain and Fibromyalgia: Often diagnosed as a separate illness, > fibromyalgia is basically a symptom that can occur with any > autoimmune disease. If you have it, you've got pain. Often in the > neck and in shoulder muscles extending down the back. Can be in the > joints and muscles also. > > Low Blood Sugar. > > Candida Yeast Infections: These are very common. Check your tongue. > If it has a white coating, you have it. Or take the spit test you > will read about later. Women may get vaginal yeast infections caused > by candida overgrowth. A candida infection on its own can cause a > number of autoimmune type symptoms. Sinus infections often are > caused by candida. > > Tingling hands. Ringing ears. Cold toes. Cold fingers. Metallic > taste in mouth. Caused by poor circulation and who knows what. > > Overdoing: You overexercise or overwork when your are feeling good, > and then feel worse for days afterward. This can cause serious > problems. In healthy people the body shuts down when the anaerobic > threshold is reached as a lot of pain is experienced. This warning > does not occur if you have an autoimmune disease. Instead, the body > continues to exercise and experiences no pain as the lactic acid > builds up, and the body ends up recirculating carbon dioxide. This > is not a healthy thing to have happen to you. It is important not to > push too hard when you start recovering, or this will set you back > and wipe you out. > > Fluttering Heart. Panic Attacks. Rapid Heartbeat. Mitral Valve > Prolapse. Usually blood pressure is low, though it can get high > later on. The heart underpumps blood because it is getting incorrect > messages from the autonomous nervous system. The body's feedback > loop picks this up and over-reacts. And you get these symptoms. > > If you have autoimmune illness, it is not likely you have all these > symptoms. However, you will have many of them to one degree or > another. > > Leanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Leanne and Bruce, This list has offered me so many answers. The metallic taste in my mouth which I have been thinking is one of my medications despite the fact that I haven't changed my medications. The depression which has been worsening since May 2008. My life is full of stress on a normal basis but I have never reacted with the deep despair and unmanageability I have felt since May. My therapist and I have been struggling with identifying what caused such a sudden and significant emotional drop in mood. I was diagnosed in December 2008. Again...bronchitis, sinunitis, asthma, allergies and walking pneumonia were occuring with regularity which almost certainly was the precursor to the diagnosis. Sleep irregularities...if it weren't for being out of work at this time I would be in trouble. I take frequent naps during the day because I don't sleep enough at night. I am taking something to help me sleep so I do go to sleep but only for 4 or 5 hours at the most. I am an 8 hour a night person normally. Severe GERD and now am experiencing continual bloated feelings, etc. I am not one of those that has been losing weight. Maybe that is to come??? Fatigue...more energy in the morning...quickly dissipates with activity though I actually feel as if I am getting a fever at times but don't run one in actuality. My temp. is normally around 97.5. Memory loss...how relieved I am to know this is a symptom. I can't find my backside with both my hands. Am on thryroid medicine..have been for a long time. Had chronic fatigue immune dysfunction for 8 years but have been in remission for a long time. Amazing!! Thanks so much for the info. It helps me understand myself so much better. > > > > Thought this was interesting....This is off a website called > > www.gethealthy.com. > > > > > > Symptoms of Autoimmune Diseases > > > > Spouses and family members, even though someone may look perfectly > > healthy, if they have an autoimmune diseases, they are truly ill. It > > is not in their head. > > > > The following symptoms are common in many, if not all, autoimmune > > diseases. > > > > Fatigue: It's not a good fatigue, from working hard, but an anxious, > > uncomfortable fatigue related to lack of sleep. Or a disruption of > > the energy production mechanism in cells, either from lack of > > oxygen, increased toxicity, infections or a malfunction of the > > mitochondria. > > > > Sleep Disturbance: About 80% may wake up three or four times a > > night, or in some cases you don't wake up, but in the morning you > > still feel like a truck ran over you. The reason for this is that > > subliminal seizures kick you out of stage 4, Delta sleep, to stage 1 > > sleep so you can't sleep deeply and wake up not rested. > > > > Short Term Memory Loss: Because of the low thyroid and heart > > complications typical in autoimmune diseases, there is a decrease in > > blood flow to the left lobe of the brain causing an oxygen > > deficiency in the brain. This can lead to the memory loss and > > forgetfulness that is common in autoimmune diseases. > > > > Emotional Liability: Someone may cry more easily, be more anxious > > and fearful. This is caused by the illness, and is not a > > psychological reaction! > > > > Depression: As with the emotional symptoms, the hypothalamus is > > involved. This is not clinical depression, but literally has a > > physical cause that is sometimes experienced as a deep depression > > right in the heart. > > > > Low Thyroid Function. About 85% have this symptom, but only about > > 10% of the time does it show up on a typical thyroid test. If you > > get tested, have both a T3 and T4 done. About 10% have excessive > > hair loss. For most everyone, a poorly performing thyroid will show > > up as subnormal temperatures. > > > > Gastrointestinal Problems: About 75% have this symptom. Can be > > anything from gas, bloating, cramps, diarrhea or constipation to > > hiatal hernia, irritable bowel syndrome or Crohn's Disease. > > Sometimes taking a simple homeopathic remedy like arsenicum album, > > 6x or 6c and make a difference with this. > > > > Swollen Glands, Chemical Sensitivity, Headaches: Allergies often > > develop, usually after 3 to 5 years. Eyes can be light sensitive for > > 6 months or longer. Dry eyes can develop. About 20% experience a > > very uncomfortable disequilibrium of vertigo, almost an out of body > > feeling that can be most disconcerting. > > > > Pain and Fibromyalgia: Often diagnosed as a separate illness, > > fibromyalgia is basically a symptom that can occur with any > > autoimmune disease. If you have it, you've got pain. Often in the > > neck and in shoulder muscles extending down the back. Can be in the > > joints and muscles also. > > > > Low Blood Sugar. > > > > Candida Yeast Infections: These are very common. Check your tongue. > > If it has a white coating, you have it. Or take the spit test you > > will read about later. Women may get vaginal yeast infections caused > > by candida overgrowth. A candida infection on its own can cause a > > number of autoimmune type symptoms. Sinus infections often are > > caused by candida. > > > > Tingling hands. Ringing ears. Cold toes. Cold fingers. Metallic > > taste in mouth. Caused by poor circulation and who knows what. > > > > Overdoing: You overexercise or overwork when your are feeling good, > > and then feel worse for days afterward. This can cause serious > > problems. In healthy people the body shuts down when the anaerobic > > threshold is reached as a lot of pain is experienced. This warning > > does not occur if you have an autoimmune disease. Instead, the body > > continues to exercise and experiences no pain as the lactic acid > > builds up, and the body ends up recirculating carbon dioxide. This > > is not a healthy thing to have happen to you. It is important not to > > push too hard when you start recovering, or this will set you back > > and wipe you out. > > > > Fluttering Heart. Panic Attacks. Rapid Heartbeat. Mitral Valve > > Prolapse. Usually blood pressure is low, though it can get high > > later on. The heart underpumps blood because it is getting incorrect > > messages from the autonomous nervous system. The body's feedback > > loop picks this up and over-reacts. And you get these symptoms. > > > > If you have autoimmune illness, it is not likely you have all these > > symptoms. However, you will have many of them to one degree or > > another. > > > > Leanne > > > Quote Link to comment Share on other sites More sharing options...
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