Re: Not Alone!!

October 24, 2002

is,

It's OK to be frightened, but do not PANIC. We have all weekend to help you

learn what you need to know by Monday. And we will.

Here are a couple of my favorite articles that will be relevant right now

for you. The first is about the scan. This is the subject we have been

debating here, starting a few days before you joined us. So you can also go

the home page at Yahoo , and find the older posts.

But...here is a great site with ACCURATE information.

http://www.suite101.com/article.cfm/graves_disease/84431

http://www.suite101.com/article.cfm/graves_disease/54427

http://www.suite101.com/article.cfm/graves_disease/75480

Here is a past post from Elaine concerning the RAI scan, and it not being a

useful tool. Though some do go through with it because of social pressure.

Elaine is the author of 'Graves' Disease a Practical Guide'. It is available

at most libraries. Once you see it, you will probably end up purchasing as

it becomes the best reference material available. BTW...the profits go to

thyroid research. She is not doing this to get rich.

Anyway...here is that old post from Elaine.

***

The blood tests measure how the thyroid is functioning, whether it's hyper

or

hypo. Please read this article which notes that the uptake is neither

necessary nor desirable. You could still have the test if you want to

establish a good relationship with your doctor, but you'd have this

available

if you want to show him current thought on the subject.

http://www.medscape.com/viewarticle/433855

You probably have to sign but members hip is free.

The article is called Management of Thyrotoxicosis by ph N. Fisher, MD

***

-Pam L - oh...please read my signature..if I had stopped PTU at one year I

would still be sick.

3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of

PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

picture !

Pills alone only fix symptoms. We must help our bodies to heal.

October 24, 2002

is,

It's OK to be frightened, but do not PANIC. We have all weekend to help you

learn what you need to know by Monday. And we will.

Here are a couple of my favorite articles that will be relevant right now

for you. The first is about the scan. This is the subject we have been

debating here, starting a few days before you joined us. So you can also go

the home page at Yahoo , and find the older posts.

But...here is a great site with ACCURATE information.

http://www.suite101.com/article.cfm/graves_disease/84431

http://www.suite101.com/article.cfm/graves_disease/54427

http://www.suite101.com/article.cfm/graves_disease/75480

Here is a past post from Elaine concerning the RAI scan, and it not being a

useful tool. Though some do go through with it because of social pressure.

Elaine is the author of 'Graves' Disease a Practical Guide'. It is available

at most libraries. Once you see it, you will probably end up purchasing as

it becomes the best reference material available. BTW...the profits go to

thyroid research. She is not doing this to get rich.

Anyway...here is that old post from Elaine.

***

The blood tests measure how the thyroid is functioning, whether it's hyper

or

hypo. Please read this article which notes that the uptake is neither

necessary nor desirable. You could still have the test if you want to

establish a good relationship with your doctor, but you'd have this

available

if you want to show him current thought on the subject.

http://www.medscape.com/viewarticle/433855

You probably have to sign but members hip is free.

The article is called Management of Thyrotoxicosis by ph N. Fisher, MD

***

-Pam L - oh...please read my signature..if I had stopped PTU at one year I

would still be sick.

3 1/2 yr.Graves and TED, PTU, Remission due to education, SLOW reduction of

PTU, improved lifestyle, excellent nutrition,herbs, and looking at the BIG

picture !

Pills alone only fix symptoms. We must help our bodies to heal.

October 24, 2002

Oh shoot Jody..

I forgot about the white blood count and liver function tests !

is..some doctors do not do these before anti thyroid drugs are begun and

it is yet another trick.

Your liver and white blood count might be off right now due to Graves'

itself. This is why you need a baseline reading BEFORE the drugs are

started. Because if you turn out to be a tough customer, and silly enough to

think that radioactive material might not be a good thing..and so many of

those crazy hyper patients are freaked out by the idea...but you know they

do not know anything about the subject...well...THEN the doctor can run the

WBC and liver panel AFTER you have been over medicated like you are...and

the test results will show the crazy patient that the DRUGS are killing

them. SEE..it's right there in black and white !

To tell you the truth, I am surprised they haven't told you the itching is

because you are allergic to the drugs. But sense they figure you are as good

as cooked, they haven't had to pull that one yet.

BTW...the extremely high dose of PTU is most likely adding to the normal

itching from Graves' and once your dose goes down, it will stop.

Jody...I love your 'play'. We see the same story over and over don't we. You

know I would have written it word for word, exactly the same way you did, it

is so common. They know which lines are the most likely to scare the

daylights out of these poor crazy hyper people.

( 'daylights' was not my first choice of words...LOL )

OH... the new standard protocol for RAI is to resume the PTU several days

after the RAI to further prevent the possibility of death by thyroid storm.

That is why I finally started flipping out is. That and the prednisone

NOT being done correctly. It just all adds up.

PLEASE listen to Jody about the eye disease. That endo has no business

treating your eyes. It is exactly what Jody says..it will mask symptoms from

any eye doctor you see. But it will not be enough to make you feel better,

or have any affect on the eyes at all in the long run. The only reason for

this particular dose and time is RAI.

is..I had severe eye disease, so I also know what I am talking about.

The PTU is the drug I took, and it DID , in time, make my eyes go back in my

head, the horrid pain stopped, the double and triple vision is gone, and I

can once again read a newspaper without glasses. Funny...I thought I needed

glasses long before Graves' . Turns out, it was pre full blown Graves' in my

eyes for years before I was diagnosed. I am still wearing them for driving

only, as that part seems better with glasses, but then I am the oldest one

here, so that little bit of loss is no big deal. After all, the eye disease

was so bad..I sure count myself as lucky.

-Pam L- 'still waiting for the car guy...sheesh'

-Pam L -

October 24, 2002