RE: Not much support seems more like a clique

[Guest guest]

What's that old saying, " You get what you give. " I will say, however, if

I'm ignored, I don't give up. I'll ask and ask again until the world is

tired of hearing from me. I belong to a lot of groups and the only way to

fit into any of them is to just jump in. Some of my best friends are on

these groups.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Kandi J.

Kieffer

Sent: Friday, March 14, 2008 7:48 PM

To: Fibromyalgia_Support_Group

Subject: Re: Not much support seems more like a clique

Hey...I'm new here too. I've found a lot of really nice & welcoming

people here so far ( & it's only been a couple of days). I'm sorry

you're having such a bad experience. I know how you're feeling. I

perused a few other groups before joining this one & thought they

seemed kind of " clique-ish. " It took me a long time to decide to jump

in & give it a go. I can say this...it was worth it. You should do

whatever you're comfortable with, but if you decide to give this group

another chance, you can message me anytime. I'm always accepting new

friends! Good luck & take care...

[Guest guest]

I have to respond to this again. We are a difficult group because so many

things affect our mood and pain level. There are days I look at my laptop

(remember laptop that can go to bed with me if I want) and I just don't have

the energy to open it.

We suffer from pain, fatigue, frustration and my favorite, the desire to

choke the life out of most doctors.

Like I said we are a difficult group because although we all have the same

general diagnosis, we sometimes manifest it in different ways. Me, I want

to hide under the blanket and never be found. I hurt today something awful

and my Chronic Fatigue is acting up. and it doesn't help that I was up most

of the night going to the bathroom.

We need to be treated with more patience than most. not because of who we

are, but because of what we endure.

Tigger (Ruth) in Rhode Island

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From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Zimmy

Sent: Friday, March 14, 2008 11:42 PM

To: Fibromyalgia_Support_Group

Subject: Re: Not much support seems more like a clique

> I've posted twice and now my other one is not even posted.Well to heck

> with it. I'm done here and will be canceling this group out! I found a

> much better one where the people actually talk to you so good bye

> and I

> hope you all get things worked out one day.

,

I've just spent about 45 minutes sitting at the computer, which is

painful for me, carefully composing a long, (hopefully) encouraging

and (hopefully) helpful response to your long post. I'm in a bad

flare, second or third this week, and more than a bit grumpy at

reading the above post. Between this and another Fibro group, I get

hundreds and hundreds of messages a day. There's no way on <insert

name of deity here>'s green earth that I can hope to read all of

them. The most I can do is browse a few each day, and respond when I

can. I end up deleting the vast majority after a few weeks. Right

now I'm 1190 messages behind on this group and that's just since Feb.

28. I'm sure I'm not the only one who finds this true.

Dad-gummit, you're not the only one who is in pain or has a rough

time. If there's anything I've learned in my months on this group,

it's how fortunate I am to have those treasured " good " days, and how

much courage and strength the people here have. I feel humbled and

privileged to be part of this group.

Don't let the door hit you in the butt on the way out.

Z (There. I've said something mean.)