Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Alyssa- it's important to do what you need to do to heal, including meds if necessary. The originator of the diet did not say to use the diet instead of meds. Some people have made that decision- presumably at a time when they are feeling well, some after a long time on this diet, some sooner- but all are different. I hope all goes well with the doctor today- and that you feel well soon. PJ > > Okay, so I still have diarrhea. Ugh. How long is the initial detox > supposed to last after getting back on the diet? I've had D for a few > weeks now, and it's bloody too. We (my parents and I) have decided > that I won't change my diet at this point, and are now looking at > other non-diet options. (Yeah, meds, etc...can't believe it, right? > =) ) What I'm eating now are fish, poultry, beef, baked apples and > pears, occasional ripe banana, cooked green beans, cooked carrots, > cooked squash (summer and winter), eggs, 1/2 and 1/2 yogurt, and hard > cheeses. No nuts for now. Well, and of course things like honey, > butter, oils, mustard, salt, etc... You know, condiment type things. > No ketchup though. > > I'm going to the doctor (regular) and accupuncturist today. With my > doctor, we're going to look at some of our options such as LDN and b12 > shots since people seem to have success with those. On the crohns/ > colitis yahoo group, some people have mentioned pH treatment of IBD > where you take a supplement to increase your pH. I'm not sure if this > is the baking soda thing or not, so I'm going to learn more about that > too as a possible option. I'll let you know how things go, and any > additional advice is appreciated! > > Pour Dieu, pour terre, > Alyssa 15 > UC April 2008, diagnosed Sept 2008 > SCD June 2009 (restarted) > No meds!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Alyssa- it's important to do what you need to do to heal, including meds if necessary. The originator of the diet did not say to use the diet instead of meds. Some people have made that decision- presumably at a time when they are feeling well, some after a long time on this diet, some sooner- but all are different. I hope all goes well with the doctor today- and that you feel well soon. PJ > > Okay, so I still have diarrhea. Ugh. How long is the initial detox > supposed to last after getting back on the diet? I've had D for a few > weeks now, and it's bloody too. We (my parents and I) have decided > that I won't change my diet at this point, and are now looking at > other non-diet options. (Yeah, meds, etc...can't believe it, right? > =) ) What I'm eating now are fish, poultry, beef, baked apples and > pears, occasional ripe banana, cooked green beans, cooked carrots, > cooked squash (summer and winter), eggs, 1/2 and 1/2 yogurt, and hard > cheeses. No nuts for now. Well, and of course things like honey, > butter, oils, mustard, salt, etc... You know, condiment type things. > No ketchup though. > > I'm going to the doctor (regular) and accupuncturist today. With my > doctor, we're going to look at some of our options such as LDN and b12 > shots since people seem to have success with those. On the crohns/ > colitis yahoo group, some people have mentioned pH treatment of IBD > where you take a supplement to increase your pH. I'm not sure if this > is the baking soda thing or not, so I'm going to learn more about that > too as a possible option. I'll let you know how things go, and any > additional advice is appreciated! > > Pour Dieu, pour terre, > Alyssa 15 > UC April 2008, diagnosed Sept 2008 > SCD June 2009 (restarted) > No meds!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Don't let your doctors talk you into an immuno-suppressant becausethat is the protocol they are familiar with.Psh yeah right! I'd much sooner go back on pred for a little while. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 you are getting a bunch of good advice from a lot of people. I'd like to add one thing. Have you tried getting off of eggs for a few weeks? That made the difference for me between D and Normal. Then, after a while, I was able to add eggs a bit at a time. Now I seem to be okay with eating eggs about 4 times per week. Before SCD, I never had problems with eggs ... that particular intolerance was masked by all kinds of other problems ... like grains.Ugh. So many things it could be! Ughhhhhhhh. I guess I should try it though. Thanks for the tip! Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 sorry to hear I too have been loose and "off" for a week -what happens when you do intro??? anytime I go back especially to soup minus carrots (due to yeast) and steak and eggs I firm right back up - just not in the mood as it's once a day - hoping it will go back on it's own - feel better - hoing the magic soup does it for you too -have it 3/4 times dayQuick question about the soup. I've always made it with the rotisserie chix which I just found was illegal. For the SCD soup, do you fill the pot with RAW chicken parts or COOKED chicken parts? Pecanbread doesn't specify. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 As for using baking soda to increase PH is this ingesting baking soda? That sounds awfully suspicious to me since most people with gut issues suffer low stomach acid. Some supplement with Betaine HCI.I know nothing about this yet...still learning. I do take HCL with all my protein meals though. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 I think Jodi knows (at least for prednisone) but I believe I remember reading a few weeks - week or two - but I'm not positive. I didn't give it full attention since I wasn't using them. > Mara, > > Do you know how long you have to be off of immuno-suppressants > before you can take LDN? I'm going to bring LDN up at my next GI > appointment to start laying the groundwork. I don't know if she'll > be game for it or not, especially since I'm doing okay with Humira. > I really need something to get over this fatigue hump though, and > LDN could be it! I'll also need to figure out how I'm going to pay > for it (I currently get Humira free from Abbott's Patient Assistance > Program). I'm already stretched financially, so I'll have to give up > buying something, like maybe my Prozymes and coconut oil. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 I think Jodi knows (at least for prednisone) but I believe I remember reading a few weeks - week or two - but I'm not positive. I didn't give it full attention since I wasn't using them. > Mara, > > Do you know how long you have to be off of immuno-suppressants > before you can take LDN? I'm going to bring LDN up at my next GI > appointment to start laying the groundwork. I don't know if she'll > be game for it or not, especially since I'm doing okay with Humira. > I really need something to get over this fatigue hump though, and > LDN could be it! I'll also need to figure out how I'm going to pay > for it (I currently get Humira free from Abbott's Patient Assistance > Program). I'm already stretched financially, so I'll have to give up > buying something, like maybe my Prozymes and coconut oil. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 I think Jodi knows (at least for prednisone) but I believe I remember reading a few weeks - week or two - but I'm not positive. I didn't give it full attention since I wasn't using them. > Mara, > > Do you know how long you have to be off of immuno-suppressants > before you can take LDN? I'm going to bring LDN up at my next GI > appointment to start laying the groundwork. I don't know if she'll > be game for it or not, especially since I'm doing okay with Humira. > I really need something to get over this fatigue hump though, and > LDN could be it! I'll also need to figure out how I'm going to pay > for it (I currently get Humira free from Abbott's Patient Assistance > Program). I'm already stretched financially, so I'll have to give up > buying something, like maybe my Prozymes and coconut oil. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 welcome from SW Oklaoma - I lived in lin County just outside of St Louis County from 1973 to 1985 - my sons live in Washington and Jefferson City God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife Sent: Sun, March 20, 2011 3:52:27 PMSubject: Update I am 46 and live in Missouri. The weather is teasing us with bits ofspring, of course with spring comes rain, with rain comes +pain.......My MS is R/R and has been quite resistant to treatment. Dx'd May 2010failed Rebif and Copaxone- 3 rounds of steroids 10days a pop IV 1000mgs.Now on Tysabri x 4 months. The Tysabri is helping me in marvelousways-walking, energy, cognition, spasticity, vision, autonomicdysfunction..... all is improving. But WOW I thought I had reallyresearched the Tysabri info but more and more comes out. I am not one toexperience much fear but I think the reality of "my Ms" is reallysetting in. It is weird how people think I am walking and look good onthe outside so I must be fine. I have not told anyone but my husbandabout the heart thing, the Tysabri things, havent even told him aboutthe fear I feel, weird because feeling so much better illustrates moreclearly how sick I was. So in using the Tysabri I felt I had nothing toloose-but apparently the # with PML is rising, Tysabri research has beenhalted for lack of participation or forward movement in studyandstopping the drug causes severe relapses-which I cannot afford tohappen.Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Hello everyone, i'm back. Just wanted everyone to know i'am doing fine. Not much has changed in the past 3 years.as far as health wise. My son,Zack, is getting big.He will be 13 on April 23.Plays school football and is the man of our house. He helps me greatly.I'm hoping to stay out of the hospital this year.haven't much luck the past few years.My m.s. has not caused me any problems (knocks on wood) and i hope it stays that way. still can't stand extreme hot or cold But i'm fine. Hope everyone else is doing good. Well thank you all for caring and take care. DEBBIE H>Debbi Meyers-Brant cousin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Great to hear from you, Kathy! You must be a proud grandma!Thanks for 'scooting along' for the MS Walk, and thank you familyfor me too! Enjoy your grandchildren.hugs,KateTo: MSersLife Sent: Wed, April 6, 2011 2:30:35 PMSubject: update Hi! Haven't written in a while so today is the day! At one time I wrote to Dan regarding taking Ampyra. I did try it, but unfortunately, it did nothing for me except make me have headaches and much annoying tingling in my legs. Later, I learned that it helps patients in early stages and not for secondary progressive. I've had MS for 10 years and have been on Avonex. I probably had symptoms for 7 years, but it was not diagnosed. I am taking more vitamin D, like 2200 IU. In my family we have 3 adult kids. Two work for Caterpillar and one works in Des Moines, IA. and wife have 2 sons, Caleb 7, and Connor, 5. and have Adam ,3, and , 4 mo. My youngest daughter, , and husband, , in Des Moines just learned that her baby due in Aug. is a girl . My two oldest live within a 20 drive so I do get to babysit and see them. I do have to reprimand the boys not to play with the brakes on my walker or treat it like a toy. The whole family walks in the MS Walk in Sept. , and I ride my scooter. I used to volunteer for it, but I really wanted to be with the family so now I scoot along. Well that's enough for today! I'll write more later.Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Great to hear from you, Kathy! You must be a proud grandma!Thanks for 'scooting along' for the MS Walk, and thank you familyfor me too! Enjoy your grandchildren.hugs,KateTo: MSersLife Sent: Wed, April 6, 2011 2:30:35 PMSubject: update Hi! Haven't written in a while so today is the day! At one time I wrote to Dan regarding taking Ampyra. I did try it, but unfortunately, it did nothing for me except make me have headaches and much annoying tingling in my legs. Later, I learned that it helps patients in early stages and not for secondary progressive. I've had MS for 10 years and have been on Avonex. I probably had symptoms for 7 years, but it was not diagnosed. I am taking more vitamin D, like 2200 IU. In my family we have 3 adult kids. Two work for Caterpillar and one works in Des Moines, IA. and wife have 2 sons, Caleb 7, and Connor, 5. and have Adam ,3, and , 4 mo. My youngest daughter, , and husband, , in Des Moines just learned that her baby due in Aug. is a girl . My two oldest live within a 20 drive so I do get to babysit and see them. I do have to reprimand the boys not to play with the brakes on my walker or treat it like a toy. The whole family walks in the MS Walk in Sept. , and I ride my scooter. I used to volunteer for it, but I really wanted to be with the family so now I scoot along. Well that's enough for today! I'll write more later.Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Great to hear from you, Kathy! You must be a proud grandma!Thanks for 'scooting along' for the MS Walk, and thank you familyfor me too! Enjoy your grandchildren.hugs,KateTo: MSersLife Sent: Wed, April 6, 2011 2:30:35 PMSubject: update Hi! Haven't written in a while so today is the day! At one time I wrote to Dan regarding taking Ampyra. I did try it, but unfortunately, it did nothing for me except make me have headaches and much annoying tingling in my legs. Later, I learned that it helps patients in early stages and not for secondary progressive. I've had MS for 10 years and have been on Avonex. I probably had symptoms for 7 years, but it was not diagnosed. I am taking more vitamin D, like 2200 IU. In my family we have 3 adult kids. Two work for Caterpillar and one works in Des Moines, IA. and wife have 2 sons, Caleb 7, and Connor, 5. and have Adam ,3, and , 4 mo. My youngest daughter, , and husband, , in Des Moines just learned that her baby due in Aug. is a girl . My two oldest live within a 20 drive so I do get to babysit and see them. I do have to reprimand the boys not to play with the brakes on my walker or treat it like a toy. The whole family walks in the MS Walk in Sept. , and I ride my scooter. I used to volunteer for it, but I really wanted to be with the family so now I scoot along. Well that's enough for today! I'll write more later.Kathy Quote Link to comment Share on other sites More sharing options...
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