Re: Want to say one more thing about Hospice.............................

[Guest guest]

Lou -- It is wonderful to hear you being so upbeat and happy. That is truly good news. Hope you have a stress-free and lovely day.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

Subject: Want to say one more thing about Hospice.............................To: Breathe-Support Date: Saturday, January 31, 2009, 10:09 AM

Of course, I am very new to this Hospice care, starting day before yesterday, but they move faster to take things in hand that you need than anything I have ever seen before.They are a very caring business and want you to have everything you need to make you the most comfortable you could ever be. That is their priority. slept on the couch next to my hospice bed which is very comfortable. It has controls on it like a hospital bed. But doesn't actually take up so much room. The sides pull up if you like and it has a control "remote" type thing too. We all had a very restful night and feel good today. I am about to take my bath now, is going to help me which will feel comforting.Gave a large natural hide chew bone so she will be totally happy for the whole day and then some. haThank you ALL for your emails and notes from the board. It means so much as i know you

are all struggling too.Just want to say don't ever be afraid to call the Hospice in your area for help. It is wonderful to know that when i got up this morning that I did not have any dr.s appt to get ready for, no tanks to fill, Earl off to work on time, being with MY GINA all day again today, going to watch OLD movies.PLEASE DO yourselves a big favor by remembering what I said about Hospice. I asked Dr. Haddad, pulmo, last night when he was here if he thought I did the right thing and he said, "Oh, yes". I feel so relaxed today knowing I don't have to go anywhere. I feel so enlighhtened by your support, love and prayers, and I will ponder them all in my heart, always. The relief I feel inside is unexplainable knowing Hospice is here for me.Tomorrow the nurse who will be assisting me through this is coming and we will get acquainted and get to know each other. The Hospice Social

Worker told me yesterday she is fantastic.So off to the shower now. Hope you all have a great day.Love, Lou

[Guest guest]

HI Lou,

I am so glad you feel better this morning. Your hospice arrangements will only

continue to lighten your load so that you may spend your time enjoying your

family etc. Now instead of worrying " what " is happening, your hospice nurse will

be right there and she can tell you what is happening. No more chasing doctors

down by phone and running around to get this test and that test. Hospice nurses

are well trained and will spot things immediately.

In addition to the nurse, take advantage of the CSA's and sitters. They will be

a blessing. My mother loved her nurse as did we. We had complete faith in her

abilities and she was always up front about what was happening and what we

needed. Any comfort item that you think will be of help, ask for it----they will

act immediately to get it for you.

I'm wishing you and your family peace.

Roxanne, 58, South Carolina

2006 Asthma/ PF

2008 IPF/ Sarcoidosis/Gerd

Lady Slipper Orchid

>

> Subject: Want to say one more thing about

Hospice.............................

> To: Breathe-Support

> Date: Saturday, January 31, 2009, 10:09 AM

> Of course, I am very new to this Hospice care, starting day

> before

> yesterday, but they move faster to take things in hand that

> you need

> than anything I have ever seen before.

>

> They are a very caring business and want you to have

> everything you

> need to make you the most comfortable you could ever be.

> That is

> their priority.

>

> slept on the couch next to my hospice bed which is

> very

> comfortable. It has controls on it like a hospital bed.

> But doesn't

> actually take up so much room. The sides pull up if you

> like and it

> has a control " remote " type thing too. We all

> had a very restful

> night and feel good today. I am about to take my bath now,

> is

> going to help me which will feel comforting.

>

> Gave a large natural hide chew bone so she will be

> totally

> happy for the whole day and then some. ha

>

> Thank you ALL for your emails and notes from the board. It

> means so

> much as i know you are all struggling too.

>

> Just want to say don't ever be afraid to call the

> Hospice in your

> area for help. It is wonderful to know that when i got up

> this

> morning that I did not have any dr.s appt to get ready for,

> no tanks

> to fill, Earl off to work on time, being with MY GINA all

> day again

> today, going to watch OLD movies.

>

> PLEASE DO yourselves a big favor by remembering what I said

> about

> Hospice. I asked Dr. Haddad, pulmo, last night when he was

> here if

> he thought I did the right thing and he said, " Oh,

> yes " . I feel so

> relaxed today knowing I don't have to go anywhere. I

> feel so

> enlighhtened by your support, love and prayers, and I will

> ponder

> them all in my heart, always. The relief I feel inside is

> unexplainable knowing Hospice is here for me.

>

> Tomorrow the nurse who will be assisting me through this is

> coming

> and we will get acquainted and get to know each other. The

> Hospice

> Social Worker told me yesterday she is fantastic.

>

> So off to the shower now. Hope you all have a great day.

>

> Love, Lou

[Guest guest]

Hi Lou

As everyone on the board,filled with many different emotions.

Knowing what hospice truely means " Better Quality of Life " i am so

happy you have called them, if and when you don't need them they

gladly go away.. And sometimes that does happen. Sorry, the revatio

didn't do the trick. All my hugs and prayers, May the LORD keep a

hedge of protection around you and the family, and HE shall meet all

your needs. I always appreciate your posts, love and caring

thoughts. patti, nj, ipf 7'06, raynauds, scleroderma, PH 2/06

>

> Of course, I am very new to this Hospice care, starting day before

> yesterday, but they move faster to take things in hand that you

need

> than anything I have ever seen before.

>

> They are a very caring business and want you to have everything

you

> need to make you the most comfortable you could ever be. That is

> their priority.

>

> slept on the couch next to my hospice bed which is very

> comfortable. It has controls on it like a hospital bed. But

doesn't

> actually take up so much room. The sides pull up if you like and

it

> has a control " remote " type thing too. We all had a very restful

> night and feel good today. I am about to take my bath now,

is

> going to help me which will feel comforting.

>

> Gave a large natural hide chew bone so she will be totally

> happy for the whole day and then some. ha

>

> Thank you ALL for your emails and notes from the board. It means

so

> much as i know you are all struggling too.

>

> Just want to say don't ever be afraid to call the Hospice in your

> area for help. It is wonderful to know that when i got up this

> morning that I did not have any dr.s appt to get ready for, no

tanks

> to fill, Earl off to work on time, being with MY GINA all day

again

> today, going to watch OLD movies.

>

> PLEASE DO yourselves a big favor by remembering what I said about

> Hospice. I asked Dr. Haddad, pulmo, last night when he was here

if

> he thought I did the right thing and he said, " Oh, yes " . I feel

so

> relaxed today knowing I don't have to go anywhere. I feel so

> enlighhtened by your support, love and prayers, and I will ponder

> them all in my heart, always. The relief I feel inside is

> unexplainable knowing Hospice is here for me.

>

> Tomorrow the nurse who will be assisting me through this is coming

> and we will get acquainted and get to know each other. The

Hospice

> Social Worker told me yesterday she is fantastic.

>

> So off to the shower now. Hope you all have a great day.

>

> Love, Lou

>