Re: Earl has called the oxygen company and....................

[Guest guest]

Hi ML, I have read everything on the board about you and just wish I could wave a magic wand and make it all better.I have a flow meter and use 65 feet or so of High flow tubing. I loose half a leader from my concentrator to my canula. I have two white do-hickeys. Yes they are small but it's not to bad. Have you checked into a oximizer ? here is a website.  http://www.chadtherapeutics.com/O224.htmThey helped Joyce so much. Sounds like you need one.  Take Care of you. much love and prayers. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  told them about the 7' high flow cannula and the problem with attaching it to the "extension" or "do-lee-wop" white thing and then putting it on the concentrator or liq. air. machine to make as long an extension you want. The problem is this.When you add an extension hose to another one, the little white "do-lee-wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need. If you look at the the little white thing, you will see how small the holes are. that is not right. Earl has ordered some 50' ONLY tubing the the high flow cannula already attached, then you don't need as high an oxygen content. I am sitting here now with a tank on 8, suiting me fine. Guess you will have to talk to your oxy. com.I was doing well this morning, but this afternoon really tired and don't feel up to typing anymore.I LOVE YOU THIS DAY (REALLY BIG)MARY LOUIPF - 02

[Guest guest]

Lou

Well, when connecting isn't required should not do it, but properly

connected high flow cannulas shouldn't lose anything at the connector.

Hate to suggest something else you need, but it is something I would

suggest to you and others. It is a liter meter.

http://www.jamesonmedical.com/pages/liter_meter.htm

This becomes even more critical for any who end up with Y's to multiple

reservoirs or concentrators. It's the only way to be sure a concentrator

or reservoir is delivering what you have it set on. Normally at low

levels this isn't a big issue, but at higher flows it can be

significant.

Lou-I think a problem you are encountering too is that most oxygen

technicians and providers aren't that use to providing high flows of

oxygen. The typical COPD patient never requires it. So, they have to be

educated. Things that are minor issues at low flow become major at high

flow.

>

> told them about the 7' high flow cannula and the problem with

attaching

> it to the " extension " or " do-lee-wop " white thing and then putting it

> on the concentrator or liq. air. machine to make as long an extension

> you want. The problem is this.

>

> When you add an extension hose to another one, the little white

" do-lee-

> wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need.

> If you look at the the little white thing, you will see how small the

> holes are. that is not right. Earl has ordered some 50' ONLY tubing

> the the high flow cannula already attached, then you don't need as

high

> an oxygen content. I am sitting here now with a tank on 8, suiting me

> fine. Guess you will have to talk to your oxy. com.

>

> I was doing well this morning, but this afternoon really tired and

> don't feel up to typing anymore.

>

> I LOVE YOU THIS DAY (REALLY BIG)

> MARY LOU

> IPF - 02

>

[Guest guest]

ML...always watching for your posts, always praying for you and Earl and always sending love and prayers.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Earl has called the oxygen company and....................

told them about the 7' high flow cannula and the problem with attaching it to the "extension" or "do-lee-wop" white thing and then putting it on the concentrator or liq. air. machine to make as long an extension you want. The problem is this.When you add an extension hose to another one, the little white "do-lee-wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need. If you look at the the little white thing, you will see how small the holes are. that is not right. Earl has ordered some 50' ONLY tubing the the high flow cannula already attached, then you don't need as high an oxygen content. I am sitting here now with a tank on 8, suiting me fine. Guess you will have to talk to your oxy. com.I was doing well this morning, but this afternoon really tired and don't feel up to typing anymore.I LOVE YOU THIS DAY (REALLY BIG)MARY LOUIPF - 02

[Guest guest]

Lou, Are you saying that with every extension you lose a certain amount of your oxygen? If so, no wonder I am always so tired. I have two connecters to make a 35' hose and the canula. Should I ask for a regular 50' with a 7 foot canula? I was told over 50' you don't get the necessary oxygen. Blue Flyer Joyce AZ IPF 11-08

Earl has called the oxygen company and....................

told them about the 7' high flow cannula and the problem with attaching it to the "extension" or "do-lee-wop" white thing and then putting it on the concentrator or liq. air. machine to make as long an extension you want. The problem is this.When you add an extension hose to another one, the little white "do-lee-wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need. If you look at the the little white thing, you will see how small the holes are. that is not right. Earl has ordered some 50' ONLY tubing the the high flow cannula already attached, then you don't need as high an oxygen content. I am sitting here now with a tank on 8, suiting me fine. Guess you will have to talk to your oxy. com.I was doing well this morning, but this afternoon really tired and don't feel up to typing anymore.I LOVE YOU THIS DAY (REALLY BIG)MARY LOUIPF - 02

[Guest guest]

The High flow connection I use is a straight piece of green plastic (that doesn't rotate) the same size as the green cannula hose. My Air people call it a high flow connectorhttp://www.rehabmart.com/product/11158.htm P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 9 LPM 8/04, PH 3/06, ILL yo 60Subject: Earl has called the oxygen company and....................To: Breathe-Support Date: Tuesday,

January 20, 2009, 1:57 PM

told them about the 7' high flow cannula and the problem with attaching

it to the "extension" or "do-lee-wop" white thing and then putting it

on the concentrator or liq. air. machine to make as long an extension

you want. The problem is this.

When you add an extension hose to another one, the little white "do-lee-

wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need.

If you look at the the little white thing, you will see how small the

holes are. that is not right. Earl has ordered some 50' ONLY tubing

the the high flow cannula already attached, then you don't need as high

an oxygen content. I am sitting here now with a tank on 8, suiting me

fine. Guess you will have to talk to your oxy. com.

I was doing well this morning, but this afternoon really tired and

don't feel up to typing anymore.

I LOVE YOU THIS DAY (REALLY BIG)

MARY LOU

IPF - 02

[Guest guest]

I use a 50 foot tube with the concentrator

centrally locating the concentor, i can go all over my house with the 50 foot tube

for the portable i usually use a 7 foot tube, but i have to be careful that i don't trip on it

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

Subject: Re: Earl has called the oxygen company and....................To: Breathe-Support Date: Tuesday, January 20, 2009, 4:37 PM

Lou, Are you saying that with every extension you lose a certain amount of your oxygen? If so, no wonder I am always so tired. I have two connecters to make a 35' hose and the canula. Should I ask for a regular 50' with a 7 foot canula? I was told over 50' you don't get the necessary oxygen. Blue Flyer Joyce AZ IPF 11-08

Earl has called the oxygen company and......... ......... ..

told them about the 7' high flow cannula and the problem with attaching it to the "extension" or "do-lee-wop" white thing and then putting it on the concentrator or liq. air. machine to make as long an extension you want. The problem is this.When you add an extension hose to another one, the little white "do-lee-wop'' actually cuts off about 1/2 of the air flow to the oxy. yu need. If you look at the the little white thing, you will see how small the holes are. that is not right. Earl has ordered some 50' ONLY tubing the the high flow cannula already attached, then you don't need as high an oxygen content. I am sitting here now with a tank on 8, suiting me fine. Guess you will have to talk to your oxy. com.I was doing well this morning, but this afternoon really tired and don't feel up to typing anymore.I LOVE YOU THIS DAY (REALLY BIG)MARY LOUIPF -

02