Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Jon, So sorry you are having to deal with this. Just remember that all of us here are alwasy with you in spirit. Tom W PA AOSD 5/2005; Asthma 11/2006; NSIP 5/2008;sjogrens 9/2008 > > Friends, > > Saw lung doc. Overnight saturation test due to see whether I will need O2. > > He stressed that my lungs are bad and will never get better. He is > declaring me medically disabled and does not want me returning to > bedside nursing. The VA must make reasonable accommodation > for me in the workplace or I must take a medical retirement. > > If not now, I will eventually need oxygen 274/7. > > I am devastated. I knew this was coming; the reality of it stinks. > Sarcoidosis stinks. I don't stink; God doesn't make junk. > > This hurts because I have worked as an aide or an RN since I was > 18. That's 32 years of bedside nursing. It's my first love, and knowing > I cannot return to it makes me cry. > > Thanks for letting me share, > jon > 50, sarcoid 1/9 > -- > Two wrongs don't make a right, > but two 's make an airplane. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Jon ... I can relate to your sadness over being forced to stop what you love... I had to stop what I was doing and there's a spot inside my heart that still hurts. Maybe HP has something else in mind for you...we can hope. We here on the board "get it" when our lives begin to have profound changes. I'm sorry Jon. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! lung followup Friends,Saw lung doc. Overnight saturation test due to see whether I will need O2.He stressed that my lungs are bad and will never get better. He isdeclaring me medically disabled and does not want me returning tobedside nursing. The VA must make reasonable accommodationfor me in the workplace or I must take a medical retirement. If not now, I will eventually need oxygen 274/7. I am devastated. I knew this was coming; the reality of it stinks.Sarcoidosis stinks. I don't stink; God doesn't make junk.This hurts because I have worked as an aide or an RN since I was18. That's 32 years of bedside nursing. It's my first love, and knowingI cannot return to it makes me cry.Thanks for letting me share,jon50, sarcoid 1/9-- Two wrongs don't make a right,but two 's make an airplane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Jon ... I can relate to your sadness over being forced to stop what you love... I had to stop what I was doing and there's a spot inside my heart that still hurts. Maybe HP has something else in mind for you...we can hope. We here on the board "get it" when our lives begin to have profound changes. I'm sorry Jon. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! lung followup Friends,Saw lung doc. Overnight saturation test due to see whether I will need O2.He stressed that my lungs are bad and will never get better. He isdeclaring me medically disabled and does not want me returning tobedside nursing. The VA must make reasonable accommodationfor me in the workplace or I must take a medical retirement. If not now, I will eventually need oxygen 274/7. I am devastated. I knew this was coming; the reality of it stinks.Sarcoidosis stinks. I don't stink; God doesn't make junk.This hurts because I have worked as an aide or an RN since I was18. That's 32 years of bedside nursing. It's my first love, and knowingI cannot return to it makes me cry.Thanks for letting me share,jon50, sarcoid 1/9-- Two wrongs don't make a right,but two 's make an airplane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Jon, Beth said it so well. I had no fore warning and went directly from diagnosis to oxygen 24/7. My mistake was wasting a year being in shock, numb and immobilized. I couldn't even cry until I started living again. I lived my life last year.This year, although my condition has worsened, I am starting to make plans and dream again. I will pray for you and remember there are many ways that you can use your skills and knowledge of nursing and be with patients other than bed side care. Take good care of yourself and let others be there for you as you have been for so many...remember there are those who love what they are doing as you have. Tears are good, they are proof that you care about life Margaret To: Breathe-Support Sent: Monday, January 26, 2009 11:32:56 AMSubject: Re: lung followup Jon, I'm so sorry you are going through this. You're right it stinks, no getting around it. Allow yourself to grieve, be patient. I've been where you are and it feels like the world is ending. You are not alone, never were and never will be. Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Jon Egger <revegger (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, January 26, 2009 3:26:38 PMSubject: lung followup Friends,Saw lung doc. Overnight saturation test due to see whether I will need O2.He stressed that my lungs are bad and will never get better. He isdeclaring me medically disabled and does not want me returning tobedside nursing. The VA must make reasonable accommodationfor me in the workplace or I must take a medical retirement. If not now, I will eventually need oxygen 274/7. I am devastated. I knew this was coming; the reality of it stinks.Sarcoidosis stinks. I don't stink; God doesn't make junk.This hurts because I have worked as an aide or an RN since I was18. That's 32 years of bedside nursing. It's my first love, and knowingI cannot return to it makes me cry.Thanks for letting me share,jon50, sarcoid 1/9-- Two wrongs don't make a right,but two 's make an airplane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Margaret, I had a similar experience. On Friday 5/26/06 I worked a full day and on Monday 5/30/06 I was in the ICU in congestive heart failure secondary to my lung disease. I've been on O2 24/7 since that day. Life had changed utterly and it takes a long time to accept it. Two and a half years later, I know that life goes on, not the same but still good. Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, January 26, 2009 5:54:37 PMSubject: Re: lung followup Jon, Beth said it so well. I had no fore warning and went directly from diagnosis to oxygen 24/7. My mistake was wasting a year being in shock, numb and immobilized. I couldn't even cry until I started living again. I lived my life last year.This year, although my condition has worsened, I am starting to make plans and dream again. I will pray for you and remember there are many ways that you can use your skills and knowledge of nursing and be with patients other than bed side care. Take good care of yourself and let others be there for you as you have been for so many...remember there are those who love what they are doing as you have. Tears are good, they are proof that you care about life Margaret From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, January 26, 2009 11:32:56 AMSubject: Re: lung followup Jon, I'm so sorry you are going through this. You're right it stinks, no getting around it. Allow yourself to grieve, be patient. I've been where you are and it feels like the world is ending. You are not alone, never were and never will be. Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Jon Egger <revegger (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, January 26, 2009 3:26:38 PMSubject: lung followup Friends,Saw lung doc. Overnight saturation test due to see whether I will need O2.He stressed that my lungs are bad and will never get better. He isdeclaring me medically disabled and does not want me returning tobedside nursing. The VA must make reasonable accommodationfor me in the workplace or I must take a medical retirement. If not now, I will eventually need oxygen 274/7. I am devastated. I knew this was coming; the reality of it stinks.Sarcoidosis stinks. I don't stink; God doesn't make junk.This hurts because I have worked as an aide or an RN since I was18. That's 32 years of bedside nursing. It's my first love, and knowingI cannot return to it makes me cry.Thanks for letting me share,jon50, sarcoid 1/9-- Two wrongs don't make a right,but two 's make an airplane. Quote Link to comment Share on other sites More sharing options...
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