Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 I am not going to share my experince because it is not going to help you in the least. Lets just say that the neuro we seen was an asshole. Georga Hackworth Men, can't live with them, can't trade them in for their weight in chocolate. April is Autism Awareness Month! Enter to win $50 in free books at www.ubah.com/F1549 Evan > Hi everyone. Many of you on the lists asked me to let you know what happened > at Evan's pediatrician appointment this past Friday when I took him in for > those tremors I posted about last week. His pediatrician is very concerned. > She gave me the number for a pediatric neurology group down in Atlanta and > wants me to call first thing Monday morning. She said to tell them she wants > him to have the first available appointment, even if it's with a Nurse > Practitioner (since all the treatment and testing has to go through the docs > anyway). She said to also tell them that he's coming in for tremors and > suspected seizures. Ok - so if I knew/suspected this already, why is it > scaring me?? > > On a brighter note, I think I told all of you that his pediatrician was > having a hard time filling out the forms I gave her for the Beckett > Medicaid Waiver because she didn't want to put down Autism as a diagnosis as > she didn't have anything in her file with that official Dx on there. > Meaning, the developmental pediatrician we saw last month hadn't sent her a > copy of his report yet. Ok - fine. So besides his heart defect, she was > going to put down severe developmental disabilities. Well, when I was in the > office with Evan on Friday, she asked me exactly what the Dev. Ped. said to > me. I told her that he likes to call it Autism Spectrum Disorder because > there's such a wide range of severity with Autism. I told her that he > explained to me that we have this big category called Pervasive Development > Disorders and under this category, on the severe end of it you have Autism > and on the mild end you have Asperger's. So the ped asked me where the Dev > Ped said Evan fit and I told her he said Evan IS autistic. She said that's > where she would have placed him too. Duh!!!! What have I been trying to > tell her??!!!!! Anyway, she is SUPPOSED TO have the forms ready for me to > pick up tomorrow. I guess we shall see. > > If any of you have experience with taking your ASD and/or DSI kids to the > neurologist, please share!! > > Hugs... > > Debbie (Dawsonville, GA) - Mom to Evan (9/7/98) CHD, Asthma, Autism Spectrum > Disorder; (4/13/02); and, of course, my angel babies (10/16/95; > 4/26/96; 10/5/00) who I will meet when God says it's time. > > April is National Autism Awareness Month! > 9:1-3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 I am not going to share my experince because it is not going to help you in the least. Lets just say that the neuro we seen was an asshole. Georga Hackworth Men, can't live with them, can't trade them in for their weight in chocolate. April is Autism Awareness Month! Enter to win $50 in free books at www.ubah.com/F1549 Evan > Hi everyone. Many of you on the lists asked me to let you know what happened > at Evan's pediatrician appointment this past Friday when I took him in for > those tremors I posted about last week. His pediatrician is very concerned. > She gave me the number for a pediatric neurology group down in Atlanta and > wants me to call first thing Monday morning. She said to tell them she wants > him to have the first available appointment, even if it's with a Nurse > Practitioner (since all the treatment and testing has to go through the docs > anyway). She said to also tell them that he's coming in for tremors and > suspected seizures. Ok - so if I knew/suspected this already, why is it > scaring me?? > > On a brighter note, I think I told all of you that his pediatrician was > having a hard time filling out the forms I gave her for the Beckett > Medicaid Waiver because she didn't want to put down Autism as a diagnosis as > she didn't have anything in her file with that official Dx on there. > Meaning, the developmental pediatrician we saw last month hadn't sent her a > copy of his report yet. Ok - fine. So besides his heart defect, she was > going to put down severe developmental disabilities. Well, when I was in the > office with Evan on Friday, she asked me exactly what the Dev. Ped. said to > me. I told her that he likes to call it Autism Spectrum Disorder because > there's such a wide range of severity with Autism. I told her that he > explained to me that we have this big category called Pervasive Development > Disorders and under this category, on the severe end of it you have Autism > and on the mild end you have Asperger's. So the ped asked me where the Dev > Ped said Evan fit and I told her he said Evan IS autistic. She said that's > where she would have placed him too. Duh!!!! What have I been trying to > tell her??!!!!! Anyway, she is SUPPOSED TO have the forms ready for me to > pick up tomorrow. I guess we shall see. > > If any of you have experience with taking your ASD and/or DSI kids to the > neurologist, please share!! > > Hugs... > > Debbie (Dawsonville, GA) - Mom to Evan (9/7/98) CHD, Asthma, Autism Spectrum > Disorder; (4/13/02); and, of course, my angel babies (10/16/95; > 4/26/96; 10/5/00) who I will meet when God says it's time. > > April is National Autism Awareness Month! > 9:1-3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 I am not going to share my experince because it is not going to help you in the least. Lets just say that the neuro we seen was an asshole. Georga Hackworth Men, can't live with them, can't trade them in for their weight in chocolate. April is Autism Awareness Month! Enter to win $50 in free books at www.ubah.com/F1549 Evan > Hi everyone. Many of you on the lists asked me to let you know what happened > at Evan's pediatrician appointment this past Friday when I took him in for > those tremors I posted about last week. His pediatrician is very concerned. > She gave me the number for a pediatric neurology group down in Atlanta and > wants me to call first thing Monday morning. She said to tell them she wants > him to have the first available appointment, even if it's with a Nurse > Practitioner (since all the treatment and testing has to go through the docs > anyway). She said to also tell them that he's coming in for tremors and > suspected seizures. Ok - so if I knew/suspected this already, why is it > scaring me?? > > On a brighter note, I think I told all of you that his pediatrician was > having a hard time filling out the forms I gave her for the Beckett > Medicaid Waiver because she didn't want to put down Autism as a diagnosis as > she didn't have anything in her file with that official Dx on there. > Meaning, the developmental pediatrician we saw last month hadn't sent her a > copy of his report yet. Ok - fine. So besides his heart defect, she was > going to put down severe developmental disabilities. Well, when I was in the > office with Evan on Friday, she asked me exactly what the Dev. Ped. said to > me. I told her that he likes to call it Autism Spectrum Disorder because > there's such a wide range of severity with Autism. I told her that he > explained to me that we have this big category called Pervasive Development > Disorders and under this category, on the severe end of it you have Autism > and on the mild end you have Asperger's. So the ped asked me where the Dev > Ped said Evan fit and I told her he said Evan IS autistic. She said that's > where she would have placed him too. Duh!!!! What have I been trying to > tell her??!!!!! Anyway, she is SUPPOSED TO have the forms ready for me to > pick up tomorrow. I guess we shall see. > > If any of you have experience with taking your ASD and/or DSI kids to the > neurologist, please share!! > > Hugs... > > Debbie (Dawsonville, GA) - Mom to Evan (9/7/98) CHD, Asthma, Autism Spectrum > Disorder; (4/13/02); and, of course, my angel babies (10/16/95; > 4/26/96; 10/5/00) who I will meet when God says it's time. > > April is National Autism Awareness Month! > 9:1-3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Hi Debbie, sees a neurologist for his seizure disorder. Since this is Evan's first visit with one, the neurologist probably will request an EEG, which records brain waves and atypical activity. In an EEG, electrodes are placed on the child's head, and the process takes about half an hour. is given a sedative during this, so he has little difficulty. He was also sedated during the MRI and CAT scan, which gave his neurologist pictures of his brain. takes tegretol to control the seizures, and it has been very effective. He sees the neurologist every five months for a recheck appointment. Almost like seeing the dentist. I hope this helps.I know how scary seizures can be, but with a little luck and good medication strategies, Evan's will be under control. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Hi Debbie, sees a neurologist for his seizure disorder. Since this is Evan's first visit with one, the neurologist probably will request an EEG, which records brain waves and atypical activity. In an EEG, electrodes are placed on the child's head, and the process takes about half an hour. is given a sedative during this, so he has little difficulty. He was also sedated during the MRI and CAT scan, which gave his neurologist pictures of his brain. takes tegretol to control the seizures, and it has been very effective. He sees the neurologist every five months for a recheck appointment. Almost like seeing the dentist. I hope this helps.I know how scary seizures can be, but with a little luck and good medication strategies, Evan's will be under control. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Hi Debbie, sees a neurologist for his seizure disorder. Since this is Evan's first visit with one, the neurologist probably will request an EEG, which records brain waves and atypical activity. In an EEG, electrodes are placed on the child's head, and the process takes about half an hour. is given a sedative during this, so he has little difficulty. He was also sedated during the MRI and CAT scan, which gave his neurologist pictures of his brain. takes tegretol to control the seizures, and it has been very effective. He sees the neurologist every five months for a recheck appointment. Almost like seeing the dentist. I hope this helps.I know how scary seizures can be, but with a little luck and good medication strategies, Evan's will be under control. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Our Neuro wanted us to do a sleep-deprived EEG. HA! Some brave parents on this list have been able to go thru this...we totally chickened out. penny Re: Evan Hi Debbie, sees a neurologist for his seizure disorder. Since this is Evan's first visit with one, the neurologist probably will request an EEG, which records brain waves and atypical activity. In an EEG, electrodes are placed on the child's head, and the process takes about half an hour. is given a sedative during this, so he has little difficulty. He was also sedated during the MRI and CAT scan, which gave his neurologist pictures of his brain. takes tegretol to control the seizures, and it has been very effective. He sees the neurologist every five months for a recheck appointment. Almost like seeing the dentist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 > I am not going to share my experince because it is not going to help you in the least. Lets just say that the neuro we seen was an asshole. > That's been my experiences with most phsychiatrists. > The first neuro we went to was a total ass. He lied about several things and perscribed meds for without ever seeing him. The second one is the complete opposite and I LOVE the man. He's great. He's always willing to help us get whatever forms we need, whatever tests etc. He's also very open to listening to us and doesn't push meds. He knows how I feel about meds and when I asked him about the Ketogenic diet he was very open and discussed it in great detail. I agreed with his reasons for not using it with my son and he ended up taking seizure meds for over 5 years. and both have had 24 hour EEGs ('s was in the hospital, 's was at home). They've both had short EEGs. They've also both had MRIs for which they had to be sedated. This wasn't done at the hospital my neuro goes to. It was done at an " Imaging " company. 's went fine but I threatened to roll some heads if they over sedated him the way they did . (she slept for almost 24 hours straight.) Thoughts on going to the neuro... there are good and bad neurologists just like any other profession. Don't let him/her intimidate you. Ask questions. Seizures are scary but they're not a death sentence and some kids outgrow them. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Evan is my big brother in NJ - his girlfriend - wife of 40 years or so - came down for a month and we hit it off when he was VP of Corporate Accounts for the East Coast - he was assigned to a business trip in OKC - Gail teasingly told him if he didn't go down and see me - well the couch was comfy God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. Quote Link to comment Share on other sites More sharing options...
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