Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 > I am new to this group. A friend of mine suggested I look into LD > Naltrexone to help with my CD. I read the LDN.org website and I have > questions (I read all the posts here about LDN but did not find the > answers I was looking for). Please help if you can. Questions: > 1. The website said it is usually compounded with lactose or sucrose > as filler. Can it be compounded without those illegal ingredients? For CD you should start it as a transdermal cream made with emu oil according to the recipe of Dr. Jaquelyn McCandless at Coastal Compounding in Florida. http://www.coastalcompounding.com/ and thus you avoid the entire problem of fillers. > > 2. I no longer have health insurance as I had to resign my job due > to CD. How much are you paying for this medicine? about 20-25 a month depending on how much you get at once. > > 3. I have no specialist, only my old primary care physician I had > when I had health insurance. He is mainly a gatekeeper for the > insurance companies. If he is unwilling to write a script, what do I > do to get a script? ask on the yahoo LDN group about a doctor in your area: join this group - they have this info: http://health.groups.yahoo.com/group/lowdosenaltrexone/ > > 4. What compounding pharmacy do you use (assuming I can get a script)? see above. > > 5. What dosage is best - I saw a range of dosages on that website. 4.5 miligrams. Some people work up to this - others don't need to, so that depends on your sensitivities. Mara > > 6. I live in Houston, TX. Does anyone know of a SCD doctor in these > parts? I have been to 2 " specialists " over the years here in Houston > and neither knew about SCD or were even interested in it. They were > only interested in prescribing steroids/Pentasa and 6-MP (which > nearly killed me). > Thank you! > > Carol Pompilo > CD for 21 years > SCD 4 1/2 years > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Mara, Thank you so much for answering my questions. I joined the LDN Health Group and will post about finding a supportive doctor in the Houston area. Thanks again! Carol Pompilo From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren Sent: Saturday, May 30, 2009 7:38 PM To: BTVC-SCD Subject: Re: Low Dose Naltrexone > I am new to this group. A friend of mine suggested I look into LD > Naltrexone to help with my CD. I read the LDN.org website and I have > questions (I read all the posts here about LDN but did not find the > answers I was looking for). Please help if you can. Questions: > 1. The website said it is usually compounded with lactose or sucrose > as filler. Can it be compounded without those illegal ingredients? For CD you should start it as a transdermal cream made with emu oil according to the recipe of Dr. Jaquelyn McCandless at Coastal Compounding in Florida. http://www.coastalcompounding.com/ and thus you avoid the entire problem of fillers. > > 2. I no longer have health insurance as I had to resign my job due > to CD. How much are you paying for this medicine? about 20-25 a month depending on how much you get at once. > > 3. I have no specialist, only my old primary care physician I had > when I had health insurance. He is mainly a gatekeeper for the > insurance companies. If he is unwilling to write a script, what do I > do to get a script? ask on the yahoo LDN group about a doctor in your area: join this group - they have this info: http://health.groups.yahoo.com/group/lowdosenaltrexone/ > > 4. What compounding pharmacy do you use (assuming I can get a script)? see above. > > 5. What dosage is best - I saw a range of dosages on that website. 4.5 miligrams. Some people work up to this - others don't need to, so that depends on your sensitivities. Mara > > 6. I live in Houston, TX. Does anyone know of a SCD doctor in these > parts? I have been to 2 " specialists " over the years here in Houston > and neither knew about SCD or were even interested in it. They were > only interested in prescribing steroids/Pentasa and 6-MP (which > nearly killed me). > Thank you! > > Carol Pompilo > CD for 21 years > SCD 4 1/2 years > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Mara, Thank you so much for answering my questions. I joined the LDN Health Group and will post about finding a supportive doctor in the Houston area. Thanks again! Carol Pompilo From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren Sent: Saturday, May 30, 2009 7:38 PM To: BTVC-SCD Subject: Re: Low Dose Naltrexone > I am new to this group. A friend of mine suggested I look into LD > Naltrexone to help with my CD. I read the LDN.org website and I have > questions (I read all the posts here about LDN but did not find the > answers I was looking for). Please help if you can. Questions: > 1. The website said it is usually compounded with lactose or sucrose > as filler. Can it be compounded without those illegal ingredients? For CD you should start it as a transdermal cream made with emu oil according to the recipe of Dr. Jaquelyn McCandless at Coastal Compounding in Florida. http://www.coastalcompounding.com/ and thus you avoid the entire problem of fillers. > > 2. I no longer have health insurance as I had to resign my job due > to CD. How much are you paying for this medicine? about 20-25 a month depending on how much you get at once. > > 3. I have no specialist, only my old primary care physician I had > when I had health insurance. He is mainly a gatekeeper for the > insurance companies. If he is unwilling to write a script, what do I > do to get a script? ask on the yahoo LDN group about a doctor in your area: join this group - they have this info: http://health.groups.yahoo.com/group/lowdosenaltrexone/ > > 4. What compounding pharmacy do you use (assuming I can get a script)? see above. > > 5. What dosage is best - I saw a range of dosages on that website. 4.5 miligrams. Some people work up to this - others don't need to, so that depends on your sensitivities. Mara > > 6. I live in Houston, TX. Does anyone know of a SCD doctor in these > parts? I have been to 2 " specialists " over the years here in Houston > and neither knew about SCD or were even interested in it. They were > only interested in prescribing steroids/Pentasa and 6-MP (which > nearly killed me). > Thank you! > > Carol Pompilo > CD for 21 years > SCD 4 1/2 years > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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