Surgeons

[Guest guest]

Thanks for the heads up on Dr. Marinoffs retirement. I will update that. I see you have two different addresses listed for him though he is retired. Which one is correct or were you just listing different addresses you saw through the NVA?

I have the NVA's list too, unfortunately they only list physicians that have been recommended by patients and or participate in their program (that is what I was told when I asked about it when I volunteered to be a support leader a few years ago). So doctors that don't affiliate themselves in anyway with the NVA are sometimes not listed. My surgeon, Dr. on was never on their list, and I thought she was a phenomenal doctor but Dr. LaVallure was (a doctor who I never saw personally but other women I spoke two did not have as much luck with). "Without rabbits a rabbits foot would be nothing but a disembodied hand full of unidentified toes." -PogoGear up for Halo® 3 and get a $25 Best Buy gift card. It’s our way of saying thanks for using Windows Live™. Get it now!

[Guest guest]

hi marianne--

i am really so thrilled for you that you had such a successful

surgery. i am interested in talking with you more about what kind of

vulvar symptoms you had....

i just want to say that until recently i hadn't heard anything more

than 1 positive story about surgery, and i had heard many, many

stories of women who were worse off from it. i had a friend who had

surgery, and they re-stitched her improperly and then refused to

return her calls and she attempted suicide right then and there

because the pain was so bad. luckily her husband came home and found

her. so she was taken care of before she actually died.

she is fine now, pain free (not from surgery but from meds she took

many months later), but i just want to say these stories are why i

considered surgery barbaric.

now that i've heard more successful stories from women who have

symptoms like me, constant pain in the vestibule, i want to consider

it as an option.

from what i had heard, surgery just meant more pain, it didn't mean

that i would be pain free.

so i just wanted to explain that. i am really so happy for you that

you have found some relief.

i know you had constant pain, but was it localized to the vestibule?

what type of vestibulectomy specifically did dr. conway perform? (like

i know that christina had a complete vestibulectomy where they removed

the glands entirely instead of just the surface.)

again, so happy for you. please enjoy some freedom from pain for me!!!

julie

>

> I guess the women who feel that surgery is barbaric are the same

women who

> also want natural childbirth with no episiotomy. To each his own, I

guess.

> But I will choose " pain free " any day. Women are faced with so many

> decisions on what to do with bodies. I don't have the years left to

try the

> " natural or homeopathic " methods. And I want to spend my later years

> enjoying the time I have left in comfort. I postponed having my yearly

> mammogram, because I have been lying on my side in bed all year. I could

> have something far worse going on that I don't even know about. When

I go to

> PT, they put me in a room right away, because they know I cannot

sit. It is

> very humiliating and embarrassing to continually explain that I

cannot sit,

> much less why I can't. I chose to have surgery so that I can get on

with my

> life. I have made some great friends on this list who I hope to stay in

> touch with for a very long time, but I am thrilled to say I no

longer need

> to be part of the group, because of need, just hoping to find a

solution to

> a problem I now no longer have. I am free. I found my doctor through

a woman

> I found on this list, and I will be forever grateful to her. Rosie

> O'Donnell wrote on her blog - " Don't b afraid 2 share your truth.

It's YOUR

> Truth. It may not b true 4 some & that's OK. Y r we so afraid 2

search 4 the

> truth & 2 share our own? We need 2 Listen.then seek & speak the

truth. Ours.

> " That so says how I feel. For those who choose surgery, I will

always be

> available to support them in their decision.

>

> nne

>

>

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ] On Behalf Of Bunny

> Sent: Saturday, September 15, 2007 11:59 AM

> To: vulvardisorders

> Subject: [sPAM] Surgeons

>

>

>

> Don't worry, I knew what you ment:) when I first was diagnosed I

too was

> concerned about the surgery because I had heard so many negative things

> about it. And it did seem barbaric to me. I would never have

concidered it

> the first few years I suffered until the reality of my diagnosis hit

me and

> I saw that none of the other treatments out there were working. This

> disease forces a whole lot of education on us and its bound to change

> anyones way of thinking. And I firmly believe that we all are

entitled to

> our own beliefs on what is best for us. There are women on this

group who

> would never consider the surgery who pursue treatments that I think

are more

> barbaric, and others who take a purely homeopathic aproach. We all come

> from different backgrounds and not all of us are dealing with

exactly the

> same pain disorder so I find no offense in anyones differing opinion.

>

> " Without rabbits a rabbits foot would be nothing but a

disembodied

> hand full of unidentified toes. " -Pogo

>

> _____

>

[Guest guest]

hi marianne--

i am really so thrilled for you that you had such a successful

surgery. i am interested in talking with you more about what kind of

vulvar symptoms you had....

i just want to say that until recently i hadn't heard anything more

than 1 positive story about surgery, and i had heard many, many

stories of women who were worse off from it. i had a friend who had

surgery, and they re-stitched her improperly and then refused to

return her calls and she attempted suicide right then and there

because the pain was so bad. luckily her husband came home and found

her. so she was taken care of before she actually died.

she is fine now, pain free (not from surgery but from meds she took

many months later), but i just want to say these stories are why i

considered surgery barbaric.

now that i've heard more successful stories from women who have

symptoms like me, constant pain in the vestibule, i want to consider

it as an option.

from what i had heard, surgery just meant more pain, it didn't mean

that i would be pain free.

so i just wanted to explain that. i am really so happy for you that

you have found some relief.

i know you had constant pain, but was it localized to the vestibule?

what type of vestibulectomy specifically did dr. conway perform? (like

i know that christina had a complete vestibulectomy where they removed

the glands entirely instead of just the surface.)

again, so happy for you. please enjoy some freedom from pain for me!!!

julie

>

> I guess the women who feel that surgery is barbaric are the same

women who

> also want natural childbirth with no episiotomy. To each his own, I

guess.

> But I will choose " pain free " any day. Women are faced with so many

> decisions on what to do with bodies. I don't have the years left to

try the

> " natural or homeopathic " methods. And I want to spend my later years

> enjoying the time I have left in comfort. I postponed having my yearly

> mammogram, because I have been lying on my side in bed all year. I could

> have something far worse going on that I don't even know about. When

I go to

> PT, they put me in a room right away, because they know I cannot

sit. It is

> very humiliating and embarrassing to continually explain that I

cannot sit,

> much less why I can't. I chose to have surgery so that I can get on

with my

> life. I have made some great friends on this list who I hope to stay in

> touch with for a very long time, but I am thrilled to say I no

longer need

> to be part of the group, because of need, just hoping to find a

solution to

> a problem I now no longer have. I am free. I found my doctor through

a woman

> I found on this list, and I will be forever grateful to her. Rosie

> O'Donnell wrote on her blog - " Don't b afraid 2 share your truth.

It's YOUR

> Truth. It may not b true 4 some & that's OK. Y r we so afraid 2

search 4 the

> truth & 2 share our own? We need 2 Listen.then seek & speak the

truth. Ours.

> " That so says how I feel. For those who choose surgery, I will

always be

> available to support them in their decision.

>

> nne

>

>

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ] On Behalf Of Bunny

> Sent: Saturday, September 15, 2007 11:59 AM

> To: vulvardisorders

> Subject: [sPAM] Surgeons

>

>

>

> Don't worry, I knew what you ment:) when I first was diagnosed I

too was

> concerned about the surgery because I had heard so many negative things

> about it. And it did seem barbaric to me. I would never have

concidered it

> the first few years I suffered until the reality of my diagnosis hit

me and

> I saw that none of the other treatments out there were working. This

> disease forces a whole lot of education on us and its bound to change

> anyones way of thinking. And I firmly believe that we all are

entitled to

> our own beliefs on what is best for us. There are women on this

group who

> would never consider the surgery who pursue treatments that I think

are more

> barbaric, and others who take a purely homeopathic aproach. We all come

> from different backgrounds and not all of us are dealing with

exactly the

> same pain disorder so I find no offense in anyones differing opinion.

>

> " Without rabbits a rabbits foot would be nothing but a

disembodied

> hand full of unidentified toes. " -Pogo

>

> _____

>

[Guest guest]

hi marianne--

i am really so thrilled for you that you had such a successful

surgery. i am interested in talking with you more about what kind of

vulvar symptoms you had....

i just want to say that until recently i hadn't heard anything more

than 1 positive story about surgery, and i had heard many, many

stories of women who were worse off from it. i had a friend who had

surgery, and they re-stitched her improperly and then refused to

return her calls and she attempted suicide right then and there

because the pain was so bad. luckily her husband came home and found

her. so she was taken care of before she actually died.

she is fine now, pain free (not from surgery but from meds she took

many months later), but i just want to say these stories are why i

considered surgery barbaric.

now that i've heard more successful stories from women who have

symptoms like me, constant pain in the vestibule, i want to consider

it as an option.

from what i had heard, surgery just meant more pain, it didn't mean

that i would be pain free.

so i just wanted to explain that. i am really so happy for you that

you have found some relief.

i know you had constant pain, but was it localized to the vestibule?

what type of vestibulectomy specifically did dr. conway perform? (like

i know that christina had a complete vestibulectomy where they removed

the glands entirely instead of just the surface.)

again, so happy for you. please enjoy some freedom from pain for me!!!

julie

>

> I guess the women who feel that surgery is barbaric are the same

women who

> also want natural childbirth with no episiotomy. To each his own, I

guess.

> But I will choose " pain free " any day. Women are faced with so many

> decisions on what to do with bodies. I don't have the years left to

try the

> " natural or homeopathic " methods. And I want to spend my later years

> enjoying the time I have left in comfort. I postponed having my yearly

> mammogram, because I have been lying on my side in bed all year. I could

> have something far worse going on that I don't even know about. When

I go to

> PT, they put me in a room right away, because they know I cannot

sit. It is

> very humiliating and embarrassing to continually explain that I

cannot sit,

> much less why I can't. I chose to have surgery so that I can get on

with my

> life. I have made some great friends on this list who I hope to stay in

> touch with for a very long time, but I am thrilled to say I no

longer need

> to be part of the group, because of need, just hoping to find a

solution to

> a problem I now no longer have. I am free. I found my doctor through

a woman

> I found on this list, and I will be forever grateful to her. Rosie

> O'Donnell wrote on her blog - " Don't b afraid 2 share your truth.

It's YOUR

> Truth. It may not b true 4 some & that's OK. Y r we so afraid 2

search 4 the

> truth & 2 share our own? We need 2 Listen.then seek & speak the

truth. Ours.

> " That so says how I feel. For those who choose surgery, I will

always be

> available to support them in their decision.

>

> nne

>

>

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ] On Behalf Of Bunny

> Sent: Saturday, September 15, 2007 11:59 AM

> To: vulvardisorders

> Subject: [sPAM] Surgeons

>

>

>

> Don't worry, I knew what you ment:) when I first was diagnosed I

too was

> concerned about the surgery because I had heard so many negative things

> about it. And it did seem barbaric to me. I would never have

concidered it

> the first few years I suffered until the reality of my diagnosis hit

me and

> I saw that none of the other treatments out there were working. This

> disease forces a whole lot of education on us and its bound to change

> anyones way of thinking. And I firmly believe that we all are

entitled to

> our own beliefs on what is best for us. There are women on this

group who

> would never consider the surgery who pursue treatments that I think

are more

> barbaric, and others who take a purely homeopathic aproach. We all come

> from different backgrounds and not all of us are dealing with

exactly the

> same pain disorder so I find no offense in anyones differing opinion.

>

> " Without rabbits a rabbits foot would be nothing but a

disembodied

> hand full of unidentified toes. " -Pogo

>

> _____

>