Re: cfs/fms

[Guest guest]

I did forever it seems until I got the gluten and

dairy free diet under control. It all went away like

magic for me.

Arline

--- rachel metzdorf

wrote:

> I'm wondering how many of you have cfs/fms?

>

>

>

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[Guest guest]

,

I have fibromyalgia as my one of many health problems.

Kristy

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[Guest guest]

Baab

stated:

“I

was diagnosed with Fibromyalgia and CFS and was told

that they were incurable. Since the doctors hadn't a

clue what caused it I didn't figure they had a clue

whether or not it was incurable because it didn't make

any sense at all and there was no way I would swallow

such a fairy story.”

Lots

of things impact the nervous system--simple

things like milk and gluten and other toxic peptides.

Mine was certainly impacted. Many people are diagnosed

with MS symptoms who really have Celiac disease (and

probably other diseases).

My opinion is that when we are told that our condition

is hopeless and uncurable we should keep looking.

The

terms incurable or curable don’t really apply to true CFS – at

least not currently. Not enough is understood about the illness. One positive

is that It does not appear to be“degenerative” like MS. What I

should have gone on to say after my comment “CFS is one’s lifelong

companion” is that CFS will be with you and requirement aggressive

management until effective treatments are found.

I

certainly did not mean to imply that having CFS is hopeless. Proactive and aggressive

management of the illness is critical to success. If one rolls over and gives

up, one really is in a bad spot. However, at this point, treating the illness

is at the level of management and treatment of symptoms. Just as Baab stated –

she tooks steps with her diet which resulted in a significant improvement. That

is what I mean by “management”. Another big CFS trigger is

exercise. Research has shown that if you have true CFS, aerobic exercise is a

very bad thing – it will trigger a cascade of symptoms. So, one needs to

notch physical activity to walking, yoga, etc.

And

finally, what was I trying to say regarding CFS-MS-pudendal nerve is quite

simple: CFS impacts the central system. It is quite reasonable to postulate

that vulvodynia and vestibulodynia could be triggered by that CNS impact.

Steph