Kristy/ -nne

[Guest guest]

Hi Kristy,

Thank you for

the kind words, but I still feel I am learning and I am not very good with the

technical areas or dialog. I have a lot of friends on the pudendal.info site –

and I consider them VERY knowledgeable (especially Violet and ). is

the woman who is having her PNE surgery done this coming week. She developed

her PNE when delivering her son almost three years ago. And Violet is a woman who

is close in age to myself and who had very similar PN symptoms. She gives me a

lot of hope as after almost three years she is 98% well. She had the same TIR

surgery as I did, and did not see even the slightest hint of recovery for 3-4

months, plus she did not stop taking narcotics for nine months. So I have a long

way to go, but I will make it. And my doctor said the worse symptoms take the

longest recovery.

I definitely

will pray for your Mother, Kristy. My mother lived with me for 27 years before

she died at age 90. It is definitely hard when you have a parent who lives with

you and you are so intimately involved with their care, plus you have your own

health problems that you are dealing with at the same time. And I am so glad

that you are happy with the doctors at the Mayo Clinic. Please let us know how

she is doing and how her tests come out.

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of Kristy Sokoloski

Sent: Saturday, September 22, 2007 4:39 AM

To: VulvarDisorders

Subject: [sPAM] Re: Kristy/ what/who to believe?-nne

nne,

Thanks. I wish your friends well with their recovery.

Have you thought of starting a group for those that might be

dealing with PNE and Pudenal Neuralgia? The reason I ask is

because I thought about what you said about that it's not as

rare as we might have previously thought. I think you would be

a great group leader.

On the thing Dr. Conway told me, I had never heard that either

and I may ask my Pain Management doctor about that when I see

her next month because I thought that in a lot of cases of

neuropathy (other than Diabetic Neuropathy which my one uncle

has) you always felt some kind of pain. I've had the zapping

kind of pain you mentioned but not my pudenal nerve but in my

genitofemoral nerve.

Also, would you please keep my mom in your thoughts? She got

her tests done yesterday and we will get the results on Mon and

they are going to run another PET Scan because it's time. The

stress of all this has had some affect on my fibro but not my

vulvodynia yet thank goodness. I'm trying to make sure I make

it to every doctor's appt she goes to for all this so that we

can both learn. And the visits to Mayo Clinic ville have

been much better than the doctors we started out with.

Will keep everyone posted on how things go.

Kristy