Re: Trigeminal Neuralgia (nne)

April 23, 2011

Well my teeth aren't the best but we have no insurance and Medicare sure won't

pay. But my teeth feel ok. Hot or cold don't bother them. Can't feel any bumps

like an abcess. I have had this before. Went through it last year and all of a

sudden it disappeared and came back a few weeks ago. Right now its feeling ok.

Oh well, a couple of Tylenol and an Advil help it so thats what I will continue

to do. Could be a whole lot worse.

Hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Re: LDN....Re: â€¦ Please refresh my memory

>>

>> Sharon,

>>

>> I'm ta betting... since I haven't checked into LDN for quite

>> awhile

>> (probably should have kept my fingers still on that question)..

>> but I am

>> ta thinking that more and more doctors are recognizing, as you

>> said, LDN

>> and it's benefits. Pretty much like my primary insurance

>> company

>> doing

>> an authorization for my Provigil from no until 2099. When I

>> mentioned

>> my surprise on that to my health care manager from Highmark, she

>> said,

>> it was done that way because they (Highmark) recognize (now) the

>> actual

>> benefit of that drug for people with MS. Whereas, before now,

>> it

>> was an

>> uphill struggle to have something prescribed " off-label " and

>> have

>> it

>> approved easily.

>>

>> And on the second point, Butalbital (Esgic) wouldn't be any good

>> for

>> pain either, and would cancel out the LDN... Then I guess that I

>> wouldn't be able to switch to LDN either, because of the

>> prescription

>> for the ocular migraines (that I still don't understand.. the

>> ocular

>> migraines, not the prescription.. LOL)...

>>

>> Oh good grief.. wonder if I'm going to be told that I'm having

>> migraines

>> in my teeth now?? Looks as if I'm might be ruining someone's

>> holiday

>> weekend, and confusing a bunch of doctors in the ER as well.. IF

>> the

>> pain starts up again tonight in my jaw..

>>

>> I hate having to head for the ER.. for a toothache... but I'm

>> pretty

>> sure that a toothache stays a toothache and doesn't go away

>> during the

>> day, only to come back at night, but not every night.. or might

>> be here

>> during the day, but not at night.. and right now, I feel like

>> I've got

>> an earache..

>>

>> That's Trigeminal Neuralgia, isn't it?

>>

>> HUGS

>> |)onna

>>

>> >My well respected neurologist precribed LDN for me and had no

>> problem

>> >with it. I know Dan gets LDN from the neurologist at UCSF. I

>> think if

>> >the University of California at San Francisco is prescribing

>> LDN

>> then

>> >other neuros should take another look at it too. My opinion:)

>>>

>> >You can't be on narcotics when on LDN because they act against

>> each

>> >other. Naltrexone was originally used in treatment of

>> alcoholism and

>> >drug abuse to mute their effects. At least that's what I think

>> I

>> >remember;)

>>>

>> >hugs

>>>

>> >Sharon

>> >This email is a natural hand made product. The slight

>> variations

>> >in spelling and grammar enhance its individual character

>> and

>> >beauty and in no way are to be considered flaws or

>> defects.

>>>

>>

>>>

>

> ____________________________________________________________

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April 23, 2011

What you describe does sound like TN. I will keep you in my prayers.hugs! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Sat, April 23, 2011 11:56:01 AMSubject: RE: Trigeminal Neuralgia (nne)

Well my teeth aren't the best but we have no insurance and Medicare sure won't pay. But my teeth feel ok. Hot or cold don't bother them. Can't feel any bumps like an abcess. I have had this before. Went through it last year and all of a sudden it disappeared and came back a few weeks ago. Right now its feeling ok. Oh well, a couple of Tylenol and an Advil help it so thats what I will continue to do. Could be a whole lot worse. HugsnneTo the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com> Re: LDN....Re: â€¦ Please refresh my memory>> >> >> >> Sharon,>> >> I'm ta betting... since I haven't checked into LDN for quite>> awhile>> (probably should have kept my fingers still on that question)..>> but I am>> ta thinking that more and more doctors are recognizing, as you>> said, LDN>> and it's benefits. Pretty much like my primary insurance>> company>> doing>> an authorization for my Provigil from no until 2099. When I>> mentioned>> my surprise on that to my health care manager from

Highmark, she>> said,>> it was done that way because they (Highmark) recognize (now) the>> actual>> benefit of that drug for people with MS. Whereas, before now,>> it>> was an>> uphill struggle to have something prescribed "off-label" and>> have>> it>> approved easily.>> >> >> And on the second point, Butalbital (Esgic) wouldn't be any good>> for>> pain either, and would cancel out the LDN... Then I guess that I>> wouldn't be able to switch to LDN either, because of the>> prescription>> for the ocular migraines (that I still don't understand.. the>> ocular>> migraines, not the prescription.. LOL)...>>

>> >> Oh good grief.. wonder if I'm going to be told that I'm having>> migraines>> in my teeth now?? Looks as if I'm might be ruining someone's>> holiday>> weekend, and confusing a bunch of doctors in the ER as well.. IF>> the>> pain starts up again tonight in my jaw..>> >> >> I hate having to head for the ER.. for a toothache... but I'm>> pretty>> sure that a toothache stays a toothache and doesn't go away>> during the>> day, only to come back at night, but not every night.. or might>> be here>> during the day, but not at night.. and right now, I feel like>> I've got>> an earache..>> >> >> That's

Trigeminal Neuralgia, isn't it?>> >> HUGS>> |)onna>> >> >> >> >> >My well respected neurologist precribed LDN for me and had no>> problem>> >with it. I know Dan gets LDN from the neurologist at UCSF. I>> think if>> >the University of California at San Francisco is prescribing>> LDN>> then>> >other neuros should take another look at it too. My opinion:)>>> >> >You can't be on narcotics when on LDN because they act against>> each>> >other. Naltrexone was originally used in treatment of>> alcoholism and>> >drug abuse to mute their effects. At

least that's what I think>> I>> >remember;)>>> >> >hugs>>> >>> >> >Sharon>> >This email is a natural hand made product. The slight>> variations>> >in spelling and grammar enhance its individual character>> and>> >beauty and in no way are to be considered flaws or>> defects.>>> >> >>> > > ____________________________________________________________> Send your photos by email in seconds...> TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3> Works in all

emails, instant messengers, blogs, forums and social> networks.> > > ------------------------------------> >

April 23, 2011

What you describe does sound like TN. I will keep you in my prayers.hugs! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Sat, April 23, 2011 11:56:01 AMSubject: RE: Trigeminal Neuralgia (nne)

Well my teeth aren't the best but we have no insurance and Medicare sure won't pay. But my teeth feel ok. Hot or cold don't bother them. Can't feel any bumps like an abcess. I have had this before. Went through it last year and all of a sudden it disappeared and came back a few weeks ago. Right now its feeling ok. Oh well, a couple of Tylenol and an Advil help it so thats what I will continue to do. Could be a whole lot worse. HugsnneTo the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com> Re: LDN....Re: â€¦ Please refresh my memory>> >> >> >> Sharon,>> >> I'm ta betting... since I haven't checked into LDN for quite>> awhile>> (probably should have kept my fingers still on that question)..>> but I am>> ta thinking that more and more doctors are recognizing, as you>> said, LDN>> and it's benefits. Pretty much like my primary insurance>> company>> doing>> an authorization for my Provigil from no until 2099. When I>> mentioned>> my surprise on that to my health care manager from

Highmark, she>> said,>> it was done that way because they (Highmark) recognize (now) the>> actual>> benefit of that drug for people with MS. Whereas, before now,>> it>> was an>> uphill struggle to have something prescribed "off-label" and>> have>> it>> approved easily.>> >> >> And on the second point, Butalbital (Esgic) wouldn't be any good>> for>> pain either, and would cancel out the LDN... Then I guess that I>> wouldn't be able to switch to LDN either, because of the>> prescription>> for the ocular migraines (that I still don't understand.. the>> ocular>> migraines, not the prescription.. LOL)...>>

>> >> Oh good grief.. wonder if I'm going to be told that I'm having>> migraines>> in my teeth now?? Looks as if I'm might be ruining someone's>> holiday>> weekend, and confusing a bunch of doctors in the ER as well.. IF>> the>> pain starts up again tonight in my jaw..>> >> >> I hate having to head for the ER.. for a toothache... but I'm>> pretty>> sure that a toothache stays a toothache and doesn't go away>> during the>> day, only to come back at night, but not every night.. or might>> be here>> during the day, but not at night.. and right now, I feel like>> I've got>> an earache..>> >> >> That's

Trigeminal Neuralgia, isn't it?>> >> HUGS>> |)onna>> >> >> >> >> >My well respected neurologist precribed LDN for me and had no>> problem>> >with it. I know Dan gets LDN from the neurologist at UCSF. I>> think if>> >the University of California at San Francisco is prescribing>> LDN>> then>> >other neuros should take another look at it too. My opinion:)>>> >> >You can't be on narcotics when on LDN because they act against>> each>> >other. Naltrexone was originally used in treatment of>> alcoholism and>> >drug abuse to mute their effects. At

least that's what I think>> I>> >remember;)>>> >> >hugs>>> >>> >> >Sharon>> >This email is a natural hand made product. The slight>> variations>> >in spelling and grammar enhance its individual character>> and>> >beauty and in no way are to be considered flaws or>> defects.>>> >> >>> > > ____________________________________________________________> Send your photos by email in seconds...> TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3> Works in all

emails, instant messengers, blogs, forums and social> networks.> > > ------------------------------------> >

April 23, 2011

Thanks Sharon I appreciate it.

hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Re: LDN....Re: â€¦ Please refresh my memory

>>>

>>> Sharon,

>>>

>>> I'm ta betting... since I haven't checked into LDN for quite

>>> awhile

>>> (probably should have kept my fingers still on that question)..

>>> but I am

>>> ta thinking that more and more doctors are recognizing, as you

>>> said, LDN

>>> and it's benefits. Pretty much like my primary insurance

>>> company

>>> doing

>>> an authorization for my Provigil from no until 2099. When I

>>> mentioned

>>> my surprise on that to my health care manager from Highmark,

>>> she

>>> said,

>>> it was done that way because they (Highmark) recognize (now)

>>> the

>>> actual

>>> benefit of that drug for people with MS. Whereas, before now,

>>> it

>>> was an

>>> uphill struggle to have something prescribed " off-label " and

>>> have

>>> it

>>> approved easily.

>>>

>>> And on the second point, Butalbital (Esgic) wouldn't be any good

>>> for

>>> pain either, and would cancel out the LDN... Then I guess that

>>> I

>>> wouldn't be able to switch to LDN either, because of the

>>> prescription

>>> for the ocular migraines (that I still don't understand.. the

>>> ocular

>>> migraines, not the prescription.. LOL)...

>>>

>>> Oh good grief.. wonder if I'm going to be told that I'm having

>>> migraines

>>> in my teeth now?? Looks as if I'm might be ruining someone's

>>> holiday

>>> weekend, and confusing a bunch of doctors in the ER as well..

>>> IF

>>> the

>>> pain starts up again tonight in my jaw..

>>>

>>> I hate having to head for the ER.. for a toothache... but I'm

>>> pretty

>>> sure that a toothache stays a toothache and doesn't go away

>>> during the

>>> day, only to come back at night, but not every night.. or might

>>> be here

>>> during the day, but not at night.. and right now, I feel like

>>> I've got

>>> an earache..

>>>

>>> That's Trigeminal Neuralgia, isn't it?

>>>

>>> HUGS

>>> |)onna

>>>

>>> >My well respected neurologist precribed LDN for me and had no

>>> problem

>>> >with it. I know Dan gets LDN from the neurologist at UCSF. I

>>> think if

>>> >the University of California at San Francisco is prescribing

>>> LDN

>>> then

>>> >other neuros should take another look at it too. My opinion:)

>>>>

>>> >You can't be on narcotics when on LDN because they act against

>>> each

>>> >other. Naltrexone was originally used in treatment of

>>> alcoholism and

>>> >drug abuse to mute their effects. At least that's what I

>>> think

>>> I

>>> >remember;)

>>>>

>>> >hugs

>>>>

>>> >Sharon

>>> >This email is a natural hand made product. The slight

>>> variations

>>> >in spelling and grammar enhance its individual character

>>> and

>>> >beauty and in no way are to be considered flaws or

>>> defects.

>>>>

>>>

>>>>

>>

>> ____________________________________________________________

>> Send your photos by email in seconds...

>> TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3

>> Works in all emails, instant messengers, blogs, forums and social

>> networks.

>>

>> ------------------------------------

>>

April 23, 2011

Thanks Sharon I appreciate it.

hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Re: LDN....Re: â€¦ Please refresh my memory

>>>

>>> Sharon,

>>>

>>> I'm ta betting... since I haven't checked into LDN for quite

>>> awhile

>>> (probably should have kept my fingers still on that question)..

>>> but I am

>>> ta thinking that more and more doctors are recognizing, as you

>>> said, LDN

>>> and it's benefits. Pretty much like my primary insurance

>>> company

>>> doing

>>> an authorization for my Provigil from no until 2099. When I

>>> mentioned

>>> my surprise on that to my health care manager from Highmark,

>>> she

>>> said,

>>> it was done that way because they (Highmark) recognize (now)

>>> the

>>> actual

>>> benefit of that drug for people with MS. Whereas, before now,

>>> it

>>> was an

>>> uphill struggle to have something prescribed " off-label " and

>>> have

>>> it

>>> approved easily.

>>>

>>> And on the second point, Butalbital (Esgic) wouldn't be any good

>>> for

>>> pain either, and would cancel out the LDN... Then I guess that

>>> I

>>> wouldn't be able to switch to LDN either, because of the

>>> prescription

>>> for the ocular migraines (that I still don't understand.. the

>>> ocular

>>> migraines, not the prescription.. LOL)...

>>>

>>> Oh good grief.. wonder if I'm going to be told that I'm having

>>> migraines

>>> in my teeth now?? Looks as if I'm might be ruining someone's

>>> holiday

>>> weekend, and confusing a bunch of doctors in the ER as well..

>>> IF

>>> the

>>> pain starts up again tonight in my jaw..

>>>

>>> I hate having to head for the ER.. for a toothache... but I'm

>>> pretty

>>> sure that a toothache stays a toothache and doesn't go away

>>> during the

>>> day, only to come back at night, but not every night.. or might

>>> be here

>>> during the day, but not at night.. and right now, I feel like

>>> I've got

>>> an earache..

>>>

>>> That's Trigeminal Neuralgia, isn't it?

>>>

>>> HUGS

>>> |)onna

>>>

>>> >My well respected neurologist precribed LDN for me and had no

>>> problem

>>> >with it. I know Dan gets LDN from the neurologist at UCSF. I

>>> think if

>>> >the University of California at San Francisco is prescribing

>>> LDN

>>> then

>>> >other neuros should take another look at it too. My opinion:)

>>>>

>>> >You can't be on narcotics when on LDN because they act against

>>> each

>>> >other. Naltrexone was originally used in treatment of

>>> alcoholism and

>>> >drug abuse to mute their effects. At least that's what I

>>> think

>>> I

>>> >remember;)

>>>>

>>> >hugs

>>>>

>>> >Sharon

>>> >This email is a natural hand made product. The slight

>>> variations

>>> >in spelling and grammar enhance its individual character

>>> and

>>> >beauty and in no way are to be considered flaws or

>>> defects.

>>>>

>>>

>>>>

>>

>> ____________________________________________________________

>> Send your photos by email in seconds...

>> TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3

>> Works in all emails, instant messengers, blogs, forums and social

>> networks.

>>

>> ------------------------------------

>>

April 24, 2011

nne,

Being as the emergency room gave me a list of low-cost dentist,

as well as the dental schools for getting my teeth tended to..

I'm wondering, if you might not contact a fairly local Emergency

Room and have them give you a similar list, if they have one.

When I called my Medicare Assured supplement insurance company,

I was told that if I would call "this" number they could tell me

if a particular doctor accepted both the Medicare program

insurance AND medicaid.. (Of course when I called that number, I

was basically told.. nope, we don't have such a list.. and by

the way.. GOOD LUCK on finding any that accept both.. but left

totally on my own as to finding one)Â I wish that I had known

that the Emergency Room of a "teaching hospital" would have just

such a list, and kindly handed it to me yesterday as well.

I would think, as well, that the social work department of any

hospital would have a similar list. Couldn't hurt to give it a

stab -- no pun intended. At least for future reference.Â If it's

at all possible even if it's only a little bit on one tooth at a

time, please don't wait, like I did, until it's too late for

repair.Â I wish I hadn't been so darned stubborn when that moron

dentist promised composite fillings -- when I HAD dental

insurance -- and then after prepping and drilling out the whole

upper left side of my mouth started mixing up amalgam filling

material... in the MIDDLE OF WINTER!.. and I had no choice but

to allow him to replaced the missing fillings with the amalgam.Â

It was then that I swore that I would not see another dentist

until all my teeth were bad enough that they would have to be

pulled and replaced by dentures.. and then proceeded to do just

that!! I really wish I had not have done that.. but as the old

adage goes.. Hindsight is always 20/20..

HUGS

|)onna (who will be praying that you won't continue having mouth

pain.. because she thinks she'd rather be back in labor having a

baby than mouth pain)

Well my teeth aren't the best but we have no insurance and Medicare sure won't pay. But my teeth feel ok. Hot or cold don't bother them. Can't feel any bumps like an abcess. I have had this before. Went through it last year and all of a sudden it disappeared and came back a few weeks ago. Right now its feeling ok. Oh well, a couple of Tylenol and an Advil help it so thats what I will continue to do. Could be a whole lot worse. Hugs

nne

To the world you might be one person, but to one person you just might be the world"

"May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever"

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

Re: LDN....Re: â€¦ Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile

(probably should have kept my fingers still on that question)..

but I am

ta thinking that more and more doctors are recognizing, as you

said, LDN

and it's benefits. Pretty much like my primary insurance

company

doing

an authorization for my Provigil from no until 2099. When I

mentioned

my surprise on that to my health care manager from Highmark, she

said,

it was done that way because they (Highmark) recognize (now) the

actual

benefit of that drug for people with MS. Whereas, before now,

it

was an

uphill struggle to have something prescribed "off-label" and

have

it

approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good

for

pain either, and would cancel out the LDN... Then I guess that I

wouldn't be able to switch to LDN either, because of the

prescription

for the ocular migraines (that I still don't understand.. the

ocular

migraines, not the prescription.. LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines

in my teeth now?? Looks as if I'm might be ruining someone's

holiday

weekend, and confusing a bunch of doctors in the ER as well.. IF

the

pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty

sure that a toothache stays a toothache and doesn't go away

during the

day, only to come back at night, but not every night.. or might

be here

during the day, but not at night.. and right now, I feel like

I've got

an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN for me and had no

problem

with it. I know Dan gets LDN from the neurologist at UCSF. I

think if

the University of California at San Francisco is prescribing

LDN

then

other neuros should take another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against

each

other. Naltrexone was originally used in treatment of

alcoholism and

drug abuse to mute their effects. At least that's what I think

I

remember;)

hugs

Sharon

This email is a natural hand made product. The slight

variations

in spelling and grammar enhance its individual character

and

beauty and in no way are to be considered flaws or

defects.

____________________________________________________________

Send your photos by email in seconds...

TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3

Works in all emails, instant messengers, blogs, forums and social

networks.

------------------------------------

April 24, 2011