Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Hi Sher! I haven't had much success with any of the remedies for my stuffy nose. I've tried a little of everything (neti-pot and neilmed), vick's vapo-rub, but the doc gave me some nasacort and it is doing some good. i think my sinus issues may be somewhat allergy related. but i have had some relief and even a runny nose the last 2 days! take care, God Bless Tina Tina From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: HI EVERYONETo: Breathe-Support@ yahoogroups. comDate: Thursday, January 22, 2009, 3:13 PM  Diane...Want to say hi to you. There have been a few sad posts today and I sense your fear and frustration and fatigue. Acceptance is a hard thing to do, I work on it all the time. I don't think Hospice is always 'morphine and death'...Vicky has been w/Hospice for quite awhile and has actually improved. She was at death's door 2-3 times. Yes, she is on morphine but each of us are different and morphine (I think) can be a good med for us. I needed and had relief from morphine but I'm allergic to it so it's been hard finding something else that works as well for my compromised lungs. Pulmodude and the pain clinic both state that morphine is one of the better drugs for "us". If it comes to that for you I hope a little encouragement that it does work well for many will be of help. Everything is trial and error anyway. I hate this disease! I think it's a good thing tho' that you are working on getting your affairs in order. It is suggested to ALL of us that we do that, sooner than later. A warm hug to you Diane, keep us posted on how you are doing. Love, MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI EVERYONE Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide.Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Tina I'm with you. As much as I hate going to another doctor, if my current ones can't address it, I'm going to have to go to a specialist. I've read a lot about sinusitis and it perpetually returning once you really get it. Some think antibiotics help, some say they just temporarily reduce the inflammation. I can't do a neti pot as I have solid blockage and it can't get through. I think because it's not life threatening they just tend to ignore it and not treat it as serious. However, right now, I'm more uncomfortable from congestion and sinuses than I am from the PF. I did try Mucinex D too. It pushed my pulse way up, even at rest, so like being on speed for me I guess. > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > Subject: Re: HI EVERYONE > To: Breathe-Support@ yahoogroups. com > Date: Thursday, January 22, 2009, 3:13 PM > > > > >  > Diane...Want to say hi to you. There have been a few sad posts today and I sense your fear and frustration and fatigue. > Acceptance is a hard thing to do, I work on it all the time. > I don't think Hospice is always 'morphine and death'...Vicky has been w/Hospice for quite awhile and has actually improved. She was at death's door 2-3 times. Yes, she is on morphine but each of us are different and morphine (I think) can be a good med for us. I needed and had relief from morphine but I'm allergic to it so it's been hard finding something else that works as well for my compromised lungs. Pulmodude and the pain clinic both state that morphine is one of the better drugs for " us " . If it comes to that for you I hope a little encouragement that it does work well for many will be of help. > Everything is trial and error anyway. I hate this disease! > I think it's a good thing tho' that you are working on getting your affairs in order. It is suggested to ALL of us that we do that, sooner than later. > A warm hug to you Diane, keep us posted on how you are doing. > Love, >  > MamaSher, age 70. IPF 3-06, OR.  > Nasturtiums > Don't fret about tomorrow, God is already there! > > > HI EVERYONE > > > > Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will > be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide. > > Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Tina I'm with you. As much as I hate going to another doctor, if my current ones can't address it, I'm going to have to go to a specialist. I've read a lot about sinusitis and it perpetually returning once you really get it. Some think antibiotics help, some say they just temporarily reduce the inflammation. I can't do a neti pot as I have solid blockage and it can't get through. I think because it's not life threatening they just tend to ignore it and not treat it as serious. However, right now, I'm more uncomfortable from congestion and sinuses than I am from the PF. I did try Mucinex D too. It pushed my pulse way up, even at rest, so like being on speed for me I guess. > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > Subject: Re: HI EVERYONE > To: Breathe-Support@ yahoogroups. com > Date: Thursday, January 22, 2009, 3:13 PM > > > > >  > Diane...Want to say hi to you. There have been a few sad posts today and I sense your fear and frustration and fatigue. > Acceptance is a hard thing to do, I work on it all the time. > I don't think Hospice is always 'morphine and death'...Vicky has been w/Hospice for quite awhile and has actually improved. She was at death's door 2-3 times. Yes, she is on morphine but each of us are different and morphine (I think) can be a good med for us. I needed and had relief from morphine but I'm allergic to it so it's been hard finding something else that works as well for my compromised lungs. Pulmodude and the pain clinic both state that morphine is one of the better drugs for " us " . If it comes to that for you I hope a little encouragement that it does work well for many will be of help. > Everything is trial and error anyway. I hate this disease! > I think it's a good thing tho' that you are working on getting your affairs in order. It is suggested to ALL of us that we do that, sooner than later. > A warm hug to you Diane, keep us posted on how you are doing. > Love, >  > MamaSher, age 70. IPF 3-06, OR.  > Nasturtiums > Don't fret about tomorrow, God is already there! > > > HI EVERYONE > > > > Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will > be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide. > > Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009  Tina.. so you didn't try what I suggested to you? I was so anxious to see if it worked for you. The Benzedrex, made by Ayr.... Well you nose is running a bit so that is a good thing! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI EVERYONE Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide.Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009  Tina.. so you didn't try what I suggested to you? I was so anxious to see if it worked for you. The Benzedrex, made by Ayr.... Well you nose is running a bit so that is a good thing! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI EVERYONE Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide.Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008 Quote Link to comment Share on other sites More sharing options...
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