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UPDATE: Speech/Language Eval Friday 11am

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Hey gang!

Ok I'm really really tired I worked midnight shift last

night and then had this appointment for Bree today so I might get things

mixed up! They called and we got in earlier this morning than the

original 11am because someone canceled. So she tells me all of our

rights, etc and I have to sign for them to do the testing. This was ONLY

speech/language evaluation thru the county school district for E.I

pre-school (she is just 3).

While I was signing this paper and she was going thru it

Bree and is (my almost 2yro) were playing and such, Bree was talking

a little and did say some sentences that were 4-6 words in length so the

lady was like 'well I think I'll just do speech because her language

sounds fine' and she was pretty much saying that she wouldn't qualify

for services because we have to find 2 educational disabilities. Her PT

for toe walking doesn't count because it's not educational. And she was

saying that all the kids in the program are very much worse than Bree

appeared to be just playing there with her sister, etc.

So in the testing they ended up doing both speech and language, she did

spit out a whole 7 word sentence! She said her language skills are good,

and she didn't say anything about speech, I basically had to ask if I

will get a report in the mail, etc. She said that they will call before

they mail it and it has to be all typed up, etc. So I don't know any

specifics on speech.

Basically I'm getting AGAIN that because she's hearing in that speech

banana up and down zigzagging between 20 and 40db she doesn't need

anything. I DON " T CARE ABOUT NOW but what about that magical " 3rd grade "

that I keep reading about where the majority of these kids are

discovered with mild HL!!!! I got this same stuff from the old ENT, some

from the audiologist although they really didn't tell me much of

anything other than I had to go to an ENT as the next step. I just don't

get it, granted I'm running on NO sleep since I got up at 6:30 yesterday

morning but I'm about ready to cry (not to mention other marital issues

going on). Issue one is her audiogram says she is hearing UNDER normal

hearing that's in a sound booth so what is she out in the real world?!?

And second her tympanograms 8 weeks apart were both flat something can't

be right there!

Thanks for listening (reading) any suggestions are definitely welcome. I

just don't think I can afford to send her to preK this fall with the way

things are regarding the house and marriage.

-Robin

Memphis (sucks) mommy to Constance 6, Breanna 3, is (almost 2)

Robin,

I know it's too late for you to read this before going to the meeting,

but I

just had to respond... Yes, it does matter. Ian's hearing loss was a

cookie

bite pretty much halfway through the banana when it was correctly

diagnosed.

It DID have an effect on his education and language acquisition ... in

short

it does matter and needs to be taken seriously.

So, stand your ground and take it seriously. Is she missing the same

amount

as a " really deaf " kid? No, but why does she have to be " more deaf " for

people

to take it seriously? She has a need which requires attention and

support.

That is enough!

I went through this with Ian (15 and 35 db loss) and it is so-o-o-o-o-o

frustrating. Let us know how it goes and I'm sure we'll have suggestions

and

we'll definitely have plenty of empathy.

Best -- Jill

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