hello again!

[Guest guest]

hi guys,

its been ages since i have been on the site!

i guess i just exploded with millions of questions and emotions a

couple of months ago after diagnosis, (and cried heaps too) but it

seems to be a lot better with my mental capacity, and i hope i am not

in denial, maybe i am? dunno, but just took a break from reading

stuff for a bit. maybe i needed it you know!

i finished my first 3months of chemo in december and had another ct

and lung function test to see what happened after the initial

treatment. the ct showed a very slight improvement and i had a slight

improvement on my lf test aswell. improvement is good, but my

specialist was hoping for alot bigger knock out sooner, so i am

having another 3 x monthly treatments again, and do the tests again

after that.

if nothing changes much, she may try some newer type drugs from

overseas. may have mentioned " tacrolimus " ? or such?

not sure what she will do then,

i do feel alot better though, and a couple of weeks ago purchased one

of those eliptical cross trainers, and boy, is that hard work!

my body doesnt know what hit it. its good though, even for the muscle

disease, as i have so much wastage and then 30 kilos of fat on top of

not much muscle,,,hmmmm,,,, getting there!

havent been crying hardly at all of late, which is good, and trying

to incorporate alot more " good stuff " into my world!

thanks so much for listening to me again....

regards monique. xxx