Re: Re: Miranda

[Guest guest]

Peggy,

Hi. I am 28 yrs old and live in So. Cali. Yes the prednisone does make it hard to lose the weight. And having a 3 month old baby doesnt help much either. I was diagnosed in 05'. I was ok and able to lead a active life untill I got pregnant. I got worse fast. Since I had her I have been on between 6 and 10 ltrs of O2. There are times I cant walk to the bathroom without turning blue. Right now I am doing good. Trying to stay away from the sick kids.

Nice to talk to you.

Keep on keepin' on,

Miranda

California / IPF 05'

To: Breathe-Support Sent: Monday, January 5, 2009 3:56:34 PMSubject: Re: MirandaMiranda, I was told I am to fat... LOL I am... I am 5'3" and was 229 at the time I talked with the transplant Dr.

He told me to get down to 175 then call for another appointment.

I ask him since they gave me the wonderful drug prednisone that helped me gain 70 pounds in 8 weeks how about a magic pill to help me take it back off.. he was not very amused. I am still a chunky. Just way to short for my height.

I am a sweet addict and don't think it would have been possible for me to do. Maybe but I had already decided against having a transplant so I guess I was feeling a little cocky.. I am 66 and was 62 at the time.

You look to be very young so I think you could do it. I love the picture of you and your children.

I haven't seen a post from you before how old are you ? Where do you live? look at my signature and you can

see how we do them. It does help keep track of all the peeps here.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

I have a question.... I know the Drs. want you to be under a certain weight before doing a transplant and even getting on the list. Does anyone know what would be concidered too heavy ? Thanks,Miranda.... IPF 3/05>> Welcome! Just wanted to add my 2 cents and welcome you to Breathe Support. As we always say, I'm sorry you had reason to look for us but since you did I'm glad you found us. My name is Beth, I am 49 and live in Durham NC. I was diagnosed with pulmonary fibrosis in June of 2006 and have been learning to live with it ever since.> Continue asking questions, getting second, third etc opinions. Keep copies of all your records

so that you can keep track of everything yourself. Don't depend on the doctors to keep track of your records and all your test results. You have to advocate for yourself. Your son being so involved will be a tremendous help. In the beginning I took one of my sisters with me to some of my doctors appointments, she'd take notes and since my sister Amy is a physician she also thought of questions that I didn't. > If your doctor hasn't suggested it ask him/her about pulmonary rehab. The rehab I went to changed my life and helped me in a HUGE way. I learned about living with lung disease and how to live and exercise safely with my compromised lungs. > > So hang around, ask questions and make friends. I've been part of this group for over 2 and a half years. I despise this disease but I can't deny the blessings it has brought into my life. Of those blessings this group is the brightest!> > Beth in North Carolina> Moderator> Fibrotic NSIP 06/06 Dermatomyositi s 11/08>