Re: clitorodynia & LP - Melinda

[Guest guest]

spanishmiss430 wrote: >>>>>>>>>>>I wish so much that I caught it earlier. Had the discharge for years and thought it was normal=( Lost a lot of architecture before I was Dx, and now it appears to have spread to my clitoral area. Melinda Hey Melinda, if you get a spare moment would you write in and explain a little more about Lichen Planus (especially symptoms). I know Dee has the LS/LP group, but I think it would be good for us to stay updated here too. Is it hard to diagnose? Thanks so much, ~Chelle

[Guest guest]

Hi Chelle,

I don't post very often on this group anymore because I, like Melinda, have LP and I am mostly on Dee's LS/LP group. There is also an LP group that is not owned by Dee that Melinda and I are a part of. Anyway, I wondered for months what was wrong with me. That alone is so disrupting to your life and your emotions. I went to a number of doctors trying to find someone to help me and give me answers and also someone to LISTEN to me and not DISMIS what I was saying. I was diagnosed with "vulvodynia, yeast, BV, etc." I had persistent burning, itching, inflammation and purplish spots on my vulvar area. Occasionally, I will get whitish areas that go away when I up the steroids for a few days. I finally found a OB/GYN that listened to me and tried different things to help me, even biopsy. She still could not figure out what was going on and referred me to Dr. in Mass. She is the one who has diagnosed me with LP. I use ultravate, emu oil, OCCASIONAL Estrace and what has halped me significantly recently is switching from Neurontin to Lyrica for the nerve ending pain associatiated with LP. Now, I have involvement in my mouth, which is something else a woman should keep track of if she is having symptoms similar to genital LP.

Mindy (oh, and congrat's on the wonderful job a moderator!)

> Hey Melinda, if you get a spare moment would you write in and explain a little more about Lichen Planus (especially symptoms). I know Dee has the LS/LP group, but I think it would be good for us to stay updated here too. Is it hard to diagnose? Thanks so much, ~Chelle>