Re: Help, problem--long,

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> ***===>Yes, sorry omitted that, she takes one capsule of Adrenal

Cortex per day and I'm glad you brought this up as I am more confused

about adrenal issues than just about anything, and that's saying

something. I don't notice her typical adrenal burnout, haven't noticed

it for about 9 or so months. At that time we saw a less than optimal

energy level, this has since abated and she is full of energy. Makes

me think the Idbenone might be contraindicated now as we were using

that for energy and increased oxygen and that appears to be solved.

Now even a day of swimming and she is tired but can maintain.

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> Back to the adrenal issues, we had, at the time of her most severe

fatigue, worked up to 3 capsules a day. I have to say that I never saw

that it helped her, doesn't mean that it didn't, but it was hard to

tell the difference. Several things that did help was; lots of C,

pantothenic acid (said to be good for stress) and B vitamins dosed

about 6 times a day.

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> Another helpful supplement was phosphatidylserine, initally added

for word retrieval problems, but it also appeared to help her

adrenals. In my reading it appears phosphatidylserine " balances "

cortisol which made me think maybe it wasn't that she didn't have

enough cortisol by maybe it was being released at the wrong time. Does

this make sense or have any possible relevance?***===>

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LJT

It does make sense.

Some people are ok from day to day but when stressed the adrenals or

the signals to the adrenals, fail in some way.

Many people who have used cortisol replacement and weaned off still

use cortisol for stress.

I have just started adrenal cortex extract (Thorne). If Andy says it

helps I expect it will. I also just started phosphtidylserine. I

take so many things it's difficult to say what helps.

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> What was the spasm like?

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> ===>I wasn't present but my dd described it kind of like she lost

control of some of her muscles and they were moving, this time

involuntarily. She also complained of some numbness in her right hand.

It only lasted for a short time and then she was fine. Her hand is

fine this morning. I saw her effortlessly writing a letter to her

little playfriend.===>

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LJT

I have had episodes something like that. My muscles can become weak

for a period of time. I have had so much transient numbness that I

don't even notice it anymore.

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> I was reading at the Amen web page about basal ganglia activity).

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> ==>Again pointing to adrenals and I have to say that chelating

with hypothyroidism adds a bit of complication. We have, just

recently, increased her Armour to 1 grain. We also started cooking

with coconut oil and that may be a piece of the puzzle as it really

seemed to increase her temperatures, perhaps adding to the stress on

her adrenals. She has not mentioned the CO detector since. I took her

home this morning and we set it off so she could hear what it sounds

like when it's warning of danger, but she appeared disinterested :-)===>

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LJT

The increase of Armour would put some extra stress on the adrenals.

(Sometime I should tell you the story about when I flipped out about

the propane tank leaking. A long story short, the fire dept came with

fire trucks and about 12 guys in big yellow suits, helmets, boots, and

told me that yes, the propane tank had leaked so much that it was

empty! It's one of those stories my husband loves to tell.)

> Because of all of this I have noticed that I 'cling' to calm

> reasonable people and try to stay away from people who would feed my

> fears.

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> ===>Two more good points. She has vagus vasal reactions (faints in

response to severe pain, happens a lot when you're a kid and running

around). She also had one incident when she fainted after an hour in

our steam shower and this is consistent with vagus vasal as anytime

the change is too great, the fainting occurs. We did have an EEG done,

nothing untoward was found but Andy has cautioned me to get the

neurologist's report and I need to get on my dd to get the dr's notes.

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> Because we have split up the duties since the beginning of her

mercury toxicity problem, it appears as if I have a bigger part in her

life than I actually do. We are close but she always prefers my dd,

the way it should be. And my dd is wonderful with her, much more

patient with her than I was with my dd. However, everyone has her

limit and I notice that toward the end of the week, when this

occurred, my dd has less patience with her so that may have been the

reason for the call. She (dgd) is much easier to care for now, like

any other 6 year old given enough sleep, the right food, enough

attention and structure and she is normally pleasant and happy. But

this has been terrifically hard for the whole family and we're

probably still feeling the stress from two years ago when the

problems were very serious.===>

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LJT

My daughter is somewhat adrenally insufficient (probably mercury

toxic), (she has had no chelation and refuses supplements). When she

was about 6 years old I found that I had to chose her teachers

carefully. She was fine with the calm gentle ones. She also had to

be in a classroom that was under control.

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> ***==>There is only one thing that makes me panic, a sick kid. I

had a serious kidney disease when I was 7 from an untreated strep

infection and saw my normally calm parents panic, so it's imprinted,

I'm afraid and I passed it on to my dd.***

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LJT

With me the panic happens when I'm short on cortisol.

Before I had cortisol I had to go to great lengths to avoid stress and

calm myself when stressed.

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> http://amenclinics.com/ac/

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> The reason that adrenally insufficient people need to replace Na is

> because the adrenals produce aldosterone, aldosterone is responsible

> to tell the kidneys to retain Na and excrete K, so if aldosterone

> production is less than normal we lose Na and retain K (someone

> correct me if I got it mixed up).

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> ===>The website is worth another look/see, thanks. Your

explanation of Na and K may be another clue here. Her hair potassium

is low/normal and her hair sodium was high, just to the yellow so we

have been pushing potassium in the form of potassium salt substitute,

maybe doubling the problem. I need to read over your explanation

several times and we'll try the drink. She likes to make lemonade.===>

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LJT

She probably doesn't need any where near as much Na as I do, but she

probably needs to replace some especially in the summer when it's hot

and when stressed.

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> ===>Thanks for the time and attention I know that it took to

thoughtfully respond to my post, it is appreciated. I feel more

balanced myself this morning and we all need a reminder of how lucky

we have been. She's in a good place, seems happy, has a creative and

nimble mind, loves and functions well in school and at home and has

lots of friends, that's all we ever wanted for her, if it takes 10

years to get the mercury out..then that's the way it is.

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