question

[Guest guest]

Hi Angel,

My first guess was extreme hypertension but since you said his BP is fine,

perhaps it is a migraine. If he is on 10 mg every other day, I would doubt it

was related to the Prednisone. It would be a good idea to check with his

primary physician to be on the safe side.

I hope Cade feels better.

In a message dated 4/21/2005 8:51:19 A.M. Pacific Daylight Time,

saturn70006@... writes:

Hi everyone! I hope you are having as great a weather as we are down here

in Louisiana.

I have a question. My ten yr old, Cade, is being weaned off of Prednisone.

He is on 10 mg every other day, before that he was on 20 mg every other day

and so on. His next step is off completely....the last day on Pred. is

April

26.

The past week he has been having terrible headaches. He describes them

saying " it feels like his heart is in his head " . Last weekend he was with

me and

he became nauseaus with one of these headaches. His blood pressure was

good.

Sounds like a migraine.

Could the weaning of Prednisone be causing these headaches? And if not, do

you think its related to IgA/drugs at all?

Thanks,

Angel

[Guest guest]

Hi Susie,

I'm not sure if it is the same thing, but I grind my teeth at night.

It's different than I used to do before PLS, Now it's extremely loud,it

wakes up my husband too. It's kinda like a clicking, popping, grinding

sound. Hope this helps..................Jeannie

Question

> This is hard to explain because I really don't know is happening. I

> make this noise, usually at night, that I think is my jaw. It is loud

> enough that my husband hears it and he is hard of hearing. It wakes me

> up and sometimes him. It is like a popping sound and I do it many

> times with 30 to 60 seconds, or more, in between. My jaw is not sore

> or tired after a session of doing it. Sound familar to anyone? Do you

> know what it is? Susieq

>

>

>

>

>

>

>

[Guest guest]

Jeannie, I never actually grind my teeth but I used to grit my teeth at night.

I didn't know I was doing it but when I had five teeth die one after another the

dentist said that was what I was doing and I got a guard to sleep with. I'll

talk to my doc and dentist next time I go in for a check-up and see what they

say. Susieq

Jeanne Young wrote:Hi Susie,

I'm not sure if it is the same thing, but I grind my teeth at night.

It's different than I used to do before PLS, Now it's extremely loud,it

wakes up my husband too. It's kinda like a clicking, popping, grinding

sound. Hope this helps..................Jeannie

Question

> This is hard to explain because I really don't know is happening. I

> make this noise, usually at night, that I think is my jaw. It is loud

> enough that my husband hears it and he is hard of hearing. It wakes me

> up and sometimes him. It is like a popping sound and I do it many

> times with 30 to 60 seconds, or more, in between. My jaw is not sore

> or tired after a session of doing it. Sound familar to anyone? Do you

> know what it is? Susieq

>

>

>

>

>

>

>

[Guest guest]

Hi Tammy,

I know you already have had a couple of responses to your question on

dialysis/transplant timing, but I wanted to respond to your question about what

to

ask Blake's doctor. If you look under the files section on the web site,

there is a list of questions to ask your doctor that you can print out and take

to the appointment. It may be helpful to track his lab values, especially

creatinine and protein levels on a spread sheet.

Please let us know after his July 5th appointment. By the say, it is normal

to be a bit apprehensive before an appointment. Even after 30 years with

IgAN, I always feel a slight bit of nervousness about hearing my lab results,

especially these last couple of years when I have declined so much :-)

Thank you for your prayers! I pray for this group every day too!

In a message dated 5/31/2005 8:39:23 P.M. Pacific Daylight Time,

tav110@... writes:

Blake's follow up appoint will be July 5th. This will be our second

appointing with our current nephrologists since his being

diagnosed. I am getting a little nervous about his appoint, guess I

don't really want to know if there are any changes. But then again

I keep hoping it's not the aggressive type of IgaN. Also is there

anything I should ask the doctor on this visit. Still new at this.

As the only other visit we've had was the initial consultation and

diagnosis, still unsure of what to expect.

I don't post often, but glad that I found this website. It adds

warm knowing there are wonderful people such as all you guys and

gals here. I feel like I'm not alone in all this. To all of you a

big pat on the back. All of you on the list are in my prayers.

God Bless & Hugs

Tammy - Blake's mom

[Guest guest]

Hi Tammy,

I know you already have had a couple of responses to your question on

dialysis/transplant timing, but I wanted to respond to your question about what

to

ask Blake's doctor. If you look under the files section on the web site,

there is a list of questions to ask your doctor that you can print out and take

to the appointment. It may be helpful to track his lab values, especially

creatinine and protein levels on a spread sheet.

Please let us know after his July 5th appointment. By the say, it is normal

to be a bit apprehensive before an appointment. Even after 30 years with

IgAN, I always feel a slight bit of nervousness about hearing my lab results,

especially these last couple of years when I have declined so much :-)

Thank you for your prayers! I pray for this group every day too!

In a message dated 5/31/2005 8:39:23 P.M. Pacific Daylight Time,

tav110@... writes:

Blake's follow up appoint will be July 5th. This will be our second

appointing with our current nephrologists since his being

diagnosed. I am getting a little nervous about his appoint, guess I

don't really want to know if there are any changes. But then again

I keep hoping it's not the aggressive type of IgaN. Also is there

anything I should ask the doctor on this visit. Still new at this.

As the only other visit we've had was the initial consultation and

diagnosis, still unsure of what to expect.

I don't post often, but glad that I found this website. It adds

warm knowing there are wonderful people such as all you guys and

gals here. I feel like I'm not alone in all this. To all of you a

big pat on the back. All of you on the list are in my prayers.

God Bless & Hugs

Tammy - Blake's mom

[Guest guest]

> I don't know because all I know is that it should be between 4 and 7

according to what I have been told by my doctos.

We use different numbers, but I found this in your units:

4 to 7mmol/l before meals.

less than 10mmol/l 90 minutes after a meal

around 8mmol/l at bedtime

> I eat yoghurt, but it is a low fat version with bits of fruit in it

- is this stuff all right, because of the sugars in the fruit.

In the US yoghurt with fruit has a lot of sugar added. Also in the US

food has information on the label. Look for the section and find the

carbohydrates line. We just came back from a rip to Mexico and I was

shocked to discover the resort's " plain " yoghurt had sugar added! It

doesn't in my supermarket.

> I was told to eat lots of fruit - is that right.

See below. Many diabetics do not eat much fruit because of the

carbohydrate content, especially not " tropical " fruit. My husband

eats half an apple with peanut butter some afternoons as a snack. He

also eats berries.

Vegetables are a better idea.

> Confusion reigns supreme and is driving me insane.

The trouble is there is NOT agreement on diabetic treatment. The way

I understand it, the medical profession believes in a low fat diet to

avoid heart problems. The low carb people say help control your blood

glucose by not giving your body so much carbohydrates. The dietitian

in my husband's team is kind of in between. She discourages white

bread, potatoes, rice, etc. and encourages whole grains, flax cereals,

high fiber. Her carb recommendations are higher than we are on, but

I've told her that we are not hungry, we feel good, Gil's blood sugar

is excellent, and when we get too skinny we'll worry about it.

That's kind of why I suggested a middle ground for you right now to

reduce your stress and hopefully to make some progress. Then you can

look around and say what direction should I go now.

I'm sure it's extremely stressful for a lot of people to go against

the recommendations of the medical profession. However, I've been

watching them for most of my life (I'm in my 60s) and they have not

done well. I'm used to taking care of my own health, and luckily I

haven't had serious illnesses that a few supplements couldn't solve.

I joke that they do a good job of sewing up big holes and they did a

good job of putting my broken ankle back together. But for chronic

illnesses? Not so good... In general they treat the symptoms. My

preference is to go for the cause or as close to the cause as I can.

So if my husband's body can't handle carbs, duh, CUT THE CARBS!

[Guest guest]

Thanks Judith.

So it looks like todays figures are not too bad, could do with being a bit

lower, but yesterdays were too high.

Now I have an idea what I am supposed to be aiming for.

It was all sounding like a foreign language to me, one that used the same words

as english but in a different way.

I have got a better idea on the figures now so I understand what the limitations

are.

Fruit is a no no and so is fruit yoghurt because of sugar levels - ah well I was

getting sick of that anyway.

Thank you once again for your time..

Rob

[Guest guest]

Hi Rob - I am one that suffers depression and diabetes. I will not " gild the

lily " by saying that everything is roses but with the help of the people on this

list I have been able to get my glucose levels way down and most of the time I

do feel better. There are still days that I would like to chuck the whole thing,

but they are getting fewer and farther between. I take medication for

depression, but I believe it is time to talk to the doctor about changing or

adding to that medication. It is overwhelming, especially at first. I have

several other chronic conditions - I am 68 years old - I live in the woods of

New Hampshire - and there are times I feel like you do. But I also have a

" furbaby " - her name is Molly and every time I get down she just wags her tail

at me and I smile. That took a while, but it helps to find just one thing that

can make you smile and then do that one thing over and over until you are

smiling more and more often. It is not a solution, just a work-around. Check

with your doctor about the possibility of therapy or different medication until

you can get over this hump. There are several of us here who have a real

difficult time with depression so don't feel that you are alone - you certainly

are not.

Barb in NH

----- Original Message -----

You have my sympathy, Rob...there are many on this list who also have

depression - I'm sure there are enough to start a separate

diabetes/depression list.

Maybe some of you can help Rob out here.

There are many different kinds of depression meds and the only way to

find out which works best for you is trial and error, so if you haven't

tried them all, please don't give up -- just keep on trying to find the

one that does the job for you.

Also, I've read here that many times getting BGs under control does help

to improve depression.

Vicki

[Guest guest]

Hi Rob - I am one that suffers depression and diabetes. I will not " gild the

lily " by saying that everything is roses but with the help of the people on this

list I have been able to get my glucose levels way down and most of the time I

do feel better. There are still days that I would like to chuck the whole thing,

but they are getting fewer and farther between. I take medication for

depression, but I believe it is time to talk to the doctor about changing or

adding to that medication. It is overwhelming, especially at first. I have

several other chronic conditions - I am 68 years old - I live in the woods of

New Hampshire - and there are times I feel like you do. But I also have a

" furbaby " - her name is Molly and every time I get down she just wags her tail

at me and I smile. That took a while, but it helps to find just one thing that

can make you smile and then do that one thing over and over until you are

smiling more and more often. It is not a solution, just a work-around. Check

with your doctor about the possibility of therapy or different medication until

you can get over this hump. There are several of us here who have a real

difficult time with depression so don't feel that you are alone - you certainly

are not.

Barb in NH

----- Original Message -----

You have my sympathy, Rob...there are many on this list who also have

depression - I'm sure there are enough to start a separate

diabetes/depression list.

Maybe some of you can help Rob out here.

There are many different kinds of depression meds and the only way to

find out which works best for you is trial and error, so if you haven't

tried them all, please don't give up -- just keep on trying to find the

one that does the job for you.

Also, I've read here that many times getting BGs under control does help

to improve depression.

Vicki

[Guest guest]

On Fri, 2 Sep 2005 14:19:28 +0100 " Rob Fearnley "

writes:

>

> I am really getting more and more depressed everytime I think about

> this. As I said I all ready suffer from clinical depression and the

> pit just seems to be getting deeper.

>

> I know I have to come to grips with this as it is going to have to

> have a wide ranging impact on my lifestyle, but in all honesty all I

> want to do is curl up in a ball and forget everything.

>

Rob, would you believe that what you are feeling is not unusual for a

newbie? How about thinking about this out of the box or the pit you have

been digging. Most newbies are told they have DM and before they can

incorporate what the dx means in terms of change of lifestyle, eating,

weight loss, exercise they are thrown a pile of instructions (many

antiquated or useless) and you are expected to get a college degree in DM

management on your own and instantly. If a newbie doesn't get frustrated

or angry at the state they are left in, then they would surely get

depressed over the situation.

Unfortunately, many diabetes professionals are hopelessly inept, clueless

and fill in the blank with your choice. But there is an up side to all

this. On your own you went online and subscribed to this and maybe other

DM lists, which shows me that you are looking for ways to make this

situation work. To me, this is a sign that you are trying to view the

glass of water as half full and not half empty.

True, all this information and conflicting information at that can be and

is usually overwhelming but there is light at the end of the tunnel. Most

of the posters on this list are type II so they have already gone through

the experiences you are now experiencing. Cappie, basically on her own

lost weight, kept it off and figured out what foods worked for her and

has improved her health and outlook in the process. Alan had to deal with

two serious medical problems at the same time while working out what

foods could work with both medical problems and as you can see from his

posts, he is sitting at the top of your pit offering to help you. There

are a dozen or so other type IIs on this list from all over the world

that figured this situation out and have been successful. Successful

measured in years, not weeks or months.

I only have a few suggestions and I hope they might help.

First: Wipe the slate clean and put yourself in charge of your care. Not

doctors or other medical " professionals " and I use that term loosely,

know what you will know in a short time. Sit down with pencil and paper

and decide how many carbs you want to eat each day. Just as an example,

lets say 100 carbs a day. Then decide if you want to count just carbs or

substract fiber from the total carbs in your calculations. Some will say

start out just counting total carbs to keep things simple, others with

say you should substract fiber from the total carbs. You decide how you

want to do this for now. Nothing says you can't change this decision

later on but I think the important thing is to make a plan for yourself.

Second: Make a daily menu for yourself. There is no law that says you

have to have breakfast food for breakfast.

There is also no law that says you have to eat what you don't like for

this to work. If you like steak and egg or eggs, have it for breakfast

and you get the bonus of having a breakfast that has no carbs.

It might be helpful to get a carb counting book. They come in cheap

paperback versions. Get one that lists brand name products too so that

you will know what yogurt can be worked into your individual meal plan

Read labels of products so you know how many carbs are in a serving and

then will know if you can include your food of choice into your meal

plan. You asked about the yogurt you had in the house but you could also

find out by looking at the label. All yogurts are equal. Here in the US

the lowest carb yogurt that I have found is a house brand for a national

grocery store. Go figure. So go to your local market and read the labels

and if you are figuring for starters 30+ carbs a meal you can figure out

what you can have for that one meal or not.

Portion control. This is almost as important as counting carbs. If the

package of yougurt says 30 carbs per serving and a serving is the entire

package and 30 carbs is too much for one item in your meal plan then you

might try half a package or a 1/4 package at a meal and see if this works

for you. Also keep in mind that because an item is low carb it doesn't

mean you can eat more of it. Try using a smaller plate for your meal,

which could help you to eat less without feeling deprived.

Keep in mind that all carbs do not react the same. Some carbs have a high

glycemic load and some low. So 15 carbs of potato might not be as good a

choice and 15 carbs of a green veggie. Your meter will tell you if a food

has good carbs or bad carbs for you.

Many type IIs cannot handle the carbs from rice, potatoes, pasta

(noodles), chinese foods, fried foods, most bread products and pizza.

Initally you could keep these items off your menu, which you would

probably do to lose weight anyway. Once you get a routine that seems to

be working for you, then you can try small portions of the foods listed

above to see if you can handle them.

This is not a quick process. It is a lifelong process. Your meter will

tell you if you are eating well for you. What works for me has nothing to

do with what works for you. Diabetes is a very individualized disorder.

The doctor cannot tell you what works for you and the person who told you

to eat loads of fruit just doesn't have a clue as to what works for

you.Your meter does know what works for you and and all you have to do is

ask the meter (with a test strip) and it will tell you what you can eat

again and what you can't.

Thirdly: Walk, walk, walk. If you can only handle little bits of walking,

do it. Exercise works well with your meter. Pick a lamp post or traffic

light or the house next to yours and walk just that far over and over

again until you feel comfortable to extend the length of your walk to the

next house after that or around the corner. Take 15 minutes intially and

do something to exercise. As you feel better you can extend it to 20

minutes and raise it again when you feel better until you get to tell me

how long I should walk. :-)

Recently I spent a little time in London and found that you blokes

generally eat a lot of grease in the form of fat, fried foods etc. I

lived on salads with dressing on the side for breakfast, lunch and dinner

the entire time I was there, so I can understand the particular problems

you have in making choices that are good for you. Being offered warm

alcohol drinks (no ice cubes) really was a problem too but not related to

diabetes. :-)

Good luck

[Guest guest]

On Fri, 2 Sep 2005 14:19:28 +0100 " Rob Fearnley "

writes:

>

> I am really getting more and more depressed everytime I think about

> this. As I said I all ready suffer from clinical depression and the

> pit just seems to be getting deeper.

>

> I know I have to come to grips with this as it is going to have to

> have a wide ranging impact on my lifestyle, but in all honesty all I

> want to do is curl up in a ball and forget everything.

>

Rob, would you believe that what you are feeling is not unusual for a

newbie? How about thinking about this out of the box or the pit you have

been digging. Most newbies are told they have DM and before they can

incorporate what the dx means in terms of change of lifestyle, eating,

weight loss, exercise they are thrown a pile of instructions (many

antiquated or useless) and you are expected to get a college degree in DM

management on your own and instantly. If a newbie doesn't get frustrated

or angry at the state they are left in, then they would surely get

depressed over the situation.

Unfortunately, many diabetes professionals are hopelessly inept, clueless

and fill in the blank with your choice. But there is an up side to all

this. On your own you went online and subscribed to this and maybe other

DM lists, which shows me that you are looking for ways to make this

situation work. To me, this is a sign that you are trying to view the

glass of water as half full and not half empty.

True, all this information and conflicting information at that can be and

is usually overwhelming but there is light at the end of the tunnel. Most

of the posters on this list are type II so they have already gone through

the experiences you are now experiencing. Cappie, basically on her own

lost weight, kept it off and figured out what foods worked for her and

has improved her health and outlook in the process. Alan had to deal with

two serious medical problems at the same time while working out what

foods could work with both medical problems and as you can see from his

posts, he is sitting at the top of your pit offering to help you. There

are a dozen or so other type IIs on this list from all over the world

that figured this situation out and have been successful. Successful

measured in years, not weeks or months.

I only have a few suggestions and I hope they might help.

First: Wipe the slate clean and put yourself in charge of your care. Not

doctors or other medical " professionals " and I use that term loosely,

know what you will know in a short time. Sit down with pencil and paper

and decide how many carbs you want to eat each day. Just as an example,

lets say 100 carbs a day. Then decide if you want to count just carbs or

substract fiber from the total carbs in your calculations. Some will say

start out just counting total carbs to keep things simple, others with

say you should substract fiber from the total carbs. You decide how you

want to do this for now. Nothing says you can't change this decision

later on but I think the important thing is to make a plan for yourself.

Second: Make a daily menu for yourself. There is no law that says you

have to have breakfast food for breakfast.

There is also no law that says you have to eat what you don't like for

this to work. If you like steak and egg or eggs, have it for breakfast

and you get the bonus of having a breakfast that has no carbs.

It might be helpful to get a carb counting book. They come in cheap

paperback versions. Get one that lists brand name products too so that

you will know what yogurt can be worked into your individual meal plan

Read labels of products so you know how many carbs are in a serving and

then will know if you can include your food of choice into your meal

plan. You asked about the yogurt you had in the house but you could also

find out by looking at the label. All yogurts are equal. Here in the US

the lowest carb yogurt that I have found is a house brand for a national

grocery store. Go figure. So go to your local market and read the labels

and if you are figuring for starters 30+ carbs a meal you can figure out

what you can have for that one meal or not.

Portion control. This is almost as important as counting carbs. If the

package of yougurt says 30 carbs per serving and a serving is the entire

package and 30 carbs is too much for one item in your meal plan then you

might try half a package or a 1/4 package at a meal and see if this works

for you. Also keep in mind that because an item is low carb it doesn't

mean you can eat more of it. Try using a smaller plate for your meal,

which could help you to eat less without feeling deprived.

Keep in mind that all carbs do not react the same. Some carbs have a high

glycemic load and some low. So 15 carbs of potato might not be as good a

choice and 15 carbs of a green veggie. Your meter will tell you if a food

has good carbs or bad carbs for you.

Many type IIs cannot handle the carbs from rice, potatoes, pasta

(noodles), chinese foods, fried foods, most bread products and pizza.

Initally you could keep these items off your menu, which you would

probably do to lose weight anyway. Once you get a routine that seems to

be working for you, then you can try small portions of the foods listed

above to see if you can handle them.

This is not a quick process. It is a lifelong process. Your meter will

tell you if you are eating well for you. What works for me has nothing to

do with what works for you. Diabetes is a very individualized disorder.

The doctor cannot tell you what works for you and the person who told you

to eat loads of fruit just doesn't have a clue as to what works for

you.Your meter does know what works for you and and all you have to do is

ask the meter (with a test strip) and it will tell you what you can eat

again and what you can't.

Thirdly: Walk, walk, walk. If you can only handle little bits of walking,

do it. Exercise works well with your meter. Pick a lamp post or traffic

light or the house next to yours and walk just that far over and over

again until you feel comfortable to extend the length of your walk to the

next house after that or around the corner. Take 15 minutes intially and

do something to exercise. As you feel better you can extend it to 20

minutes and raise it again when you feel better until you get to tell me

how long I should walk. :-)

Recently I spent a little time in London and found that you blokes

generally eat a lot of grease in the form of fat, fried foods etc. I

lived on salads with dressing on the side for breakfast, lunch and dinner

the entire time I was there, so I can understand the particular problems

you have in making choices that are good for you. Being offered warm

alcohol drinks (no ice cubes) really was a problem too but not related to

diabetes. :-)

Good luck

[Guest guest]

On Fri, 2 Sep 2005 14:19:28 +0100 " Rob Fearnley "

writes:

>

> I am really getting more and more depressed everytime I think about

> this. As I said I all ready suffer from clinical depression and the

> pit just seems to be getting deeper.

>

> I know I have to come to grips with this as it is going to have to

> have a wide ranging impact on my lifestyle, but in all honesty all I

> want to do is curl up in a ball and forget everything.

>

Rob, would you believe that what you are feeling is not unusual for a

newbie? How about thinking about this out of the box or the pit you have

been digging. Most newbies are told they have DM and before they can

incorporate what the dx means in terms of change of lifestyle, eating,

weight loss, exercise they are thrown a pile of instructions (many

antiquated or useless) and you are expected to get a college degree in DM

management on your own and instantly. If a newbie doesn't get frustrated

or angry at the state they are left in, then they would surely get

depressed over the situation.

Unfortunately, many diabetes professionals are hopelessly inept, clueless

and fill in the blank with your choice. But there is an up side to all

this. On your own you went online and subscribed to this and maybe other

DM lists, which shows me that you are looking for ways to make this

situation work. To me, this is a sign that you are trying to view the

glass of water as half full and not half empty.

True, all this information and conflicting information at that can be and

is usually overwhelming but there is light at the end of the tunnel. Most

of the posters on this list are type II so they have already gone through

the experiences you are now experiencing. Cappie, basically on her own

lost weight, kept it off and figured out what foods worked for her and

has improved her health and outlook in the process. Alan had to deal with

two serious medical problems at the same time while working out what

foods could work with both medical problems and as you can see from his

posts, he is sitting at the top of your pit offering to help you. There

are a dozen or so other type IIs on this list from all over the world

that figured this situation out and have been successful. Successful

measured in years, not weeks or months.

I only have a few suggestions and I hope they might help.

First: Wipe the slate clean and put yourself in charge of your care. Not

doctors or other medical " professionals " and I use that term loosely,

know what you will know in a short time. Sit down with pencil and paper

and decide how many carbs you want to eat each day. Just as an example,

lets say 100 carbs a day. Then decide if you want to count just carbs or

substract fiber from the total carbs in your calculations. Some will say

start out just counting total carbs to keep things simple, others with

say you should substract fiber from the total carbs. You decide how you

want to do this for now. Nothing says you can't change this decision

later on but I think the important thing is to make a plan for yourself.

Second: Make a daily menu for yourself. There is no law that says you

have to have breakfast food for breakfast.

There is also no law that says you have to eat what you don't like for

this to work. If you like steak and egg or eggs, have it for breakfast

and you get the bonus of having a breakfast that has no carbs.

It might be helpful to get a carb counting book. They come in cheap

paperback versions. Get one that lists brand name products too so that

you will know what yogurt can be worked into your individual meal plan

Read labels of products so you know how many carbs are in a serving and

then will know if you can include your food of choice into your meal

plan. You asked about the yogurt you had in the house but you could also

find out by looking at the label. All yogurts are equal. Here in the US

the lowest carb yogurt that I have found is a house brand for a national

grocery store. Go figure. So go to your local market and read the labels

and if you are figuring for starters 30+ carbs a meal you can figure out

what you can have for that one meal or not.

Portion control. This is almost as important as counting carbs. If the

package of yougurt says 30 carbs per serving and a serving is the entire

package and 30 carbs is too much for one item in your meal plan then you

might try half a package or a 1/4 package at a meal and see if this works

for you. Also keep in mind that because an item is low carb it doesn't

mean you can eat more of it. Try using a smaller plate for your meal,

which could help you to eat less without feeling deprived.

Keep in mind that all carbs do not react the same. Some carbs have a high

glycemic load and some low. So 15 carbs of potato might not be as good a

choice and 15 carbs of a green veggie. Your meter will tell you if a food

has good carbs or bad carbs for you.

Many type IIs cannot handle the carbs from rice, potatoes, pasta

(noodles), chinese foods, fried foods, most bread products and pizza.

Initally you could keep these items off your menu, which you would

probably do to lose weight anyway. Once you get a routine that seems to

be working for you, then you can try small portions of the foods listed

above to see if you can handle them.

This is not a quick process. It is a lifelong process. Your meter will

tell you if you are eating well for you. What works for me has nothing to

do with what works for you. Diabetes is a very individualized disorder.

The doctor cannot tell you what works for you and the person who told you

to eat loads of fruit just doesn't have a clue as to what works for

you.Your meter does know what works for you and and all you have to do is

ask the meter (with a test strip) and it will tell you what you can eat

again and what you can't.

Thirdly: Walk, walk, walk. If you can only handle little bits of walking,

do it. Exercise works well with your meter. Pick a lamp post or traffic

light or the house next to yours and walk just that far over and over

again until you feel comfortable to extend the length of your walk to the

next house after that or around the corner. Take 15 minutes intially and

do something to exercise. As you feel better you can extend it to 20

minutes and raise it again when you feel better until you get to tell me

how long I should walk. :-)

Recently I spent a little time in London and found that you blokes

generally eat a lot of grease in the form of fat, fried foods etc. I

lived on salads with dressing on the side for breakfast, lunch and dinner

the entire time I was there, so I can understand the particular problems

you have in making choices that are good for you. Being offered warm

alcohol drinks (no ice cubes) really was a problem too but not related to

diabetes. :-)

Good luck

[Guest guest]

Just chip away at it.

I would hang around here and especially read the answers to newbie

questions. It sure takes a while to let it all sink in, learn the

terminology, etc. I think it helps a lot to have a community of

people facing the same or similar challenges.

I didn't start completely from scratch with this because I have a

diabetic cat on insulin. He eats high protein now, but he's a cat!

Similar to the human situation, cats fed high carb diets get diabetes.

Pretty much a " epidemic " in the feline world now. Same as humans,

not all cats on the high carb dry food, obviously, get diabetes. But

I had no idea that cats shouldn't eat dry food. Neither did the vets

at that time, but now many of them do. They actually formulated a

high carb dry food for diabetic cats! Now most vets recommend high

protein canned food or, if it must be dry, a special diabetic high

protein dry food.

Although my husband has type 2 diabetes in his family I still didn't

realize the basic principles. I thought if his fasting sugar was OK

he was OK. Now I know that was not true and he was probably on a

downhill slide that I could have slowed or stopped had I been more

aware of the basics. I didn't even realize that a potato is as bad as

sugar.

Did you look at " What they Don't Tell You About Diabetes " ? When you

feel like it, you can learn more there. I thought it was a well

organized presentation of important information for diabetics.

http://www.geocities.com/lottadata4u/?20051

Regards,

Judy

[Guest guest]

Just chip away at it.

I would hang around here and especially read the answers to newbie

questions. It sure takes a while to let it all sink in, learn the

terminology, etc. I think it helps a lot to have a community of

people facing the same or similar challenges.

I didn't start completely from scratch with this because I have a

diabetic cat on insulin. He eats high protein now, but he's a cat!

Similar to the human situation, cats fed high carb diets get diabetes.

Pretty much a " epidemic " in the feline world now. Same as humans,

not all cats on the high carb dry food, obviously, get diabetes. But

I had no idea that cats shouldn't eat dry food. Neither did the vets

at that time, but now many of them do. They actually formulated a

high carb dry food for diabetic cats! Now most vets recommend high

protein canned food or, if it must be dry, a special diabetic high

protein dry food.

Although my husband has type 2 diabetes in his family I still didn't

realize the basic principles. I thought if his fasting sugar was OK

he was OK. Now I know that was not true and he was probably on a

downhill slide that I could have slowed or stopped had I been more

aware of the basics. I didn't even realize that a potato is as bad as

sugar.

Did you look at " What they Don't Tell You About Diabetes " ? When you

feel like it, you can learn more there. I thought it was a well

organized presentation of important information for diabetics.

http://www.geocities.com/lottadata4u/?20051

Regards,

Judy

[Guest guest]

Just chip away at it.

I would hang around here and especially read the answers to newbie

questions. It sure takes a while to let it all sink in, learn the

terminology, etc. I think it helps a lot to have a community of

people facing the same or similar challenges.

I didn't start completely from scratch with this because I have a

diabetic cat on insulin. He eats high protein now, but he's a cat!

Similar to the human situation, cats fed high carb diets get diabetes.

Pretty much a " epidemic " in the feline world now. Same as humans,

not all cats on the high carb dry food, obviously, get diabetes. But

I had no idea that cats shouldn't eat dry food. Neither did the vets

at that time, but now many of them do. They actually formulated a

high carb dry food for diabetic cats! Now most vets recommend high

protein canned food or, if it must be dry, a special diabetic high

protein dry food.

Although my husband has type 2 diabetes in his family I still didn't

realize the basic principles. I thought if his fasting sugar was OK

he was OK. Now I know that was not true and he was probably on a

downhill slide that I could have slowed or stopped had I been more

aware of the basics. I didn't even realize that a potato is as bad as

sugar.

Did you look at " What they Don't Tell You About Diabetes " ? When you

feel like it, you can learn more there. I thought it was a well

organized presentation of important information for diabetics.

http://www.geocities.com/lottadata4u/?20051

Regards,

Judy

[Guest guest]

> I don't know because all I know is that it should be between 4 and 7

according to what I have been told by my doctos.>

> I have been testing 8 times a day for the last 2 days and the values

are just over 7 when I get up, but they are in the 9's today and were

between 9.5 and 11.5 yesterday.

>

Hi Rob

The others have given some good advice, so I have a couple of

questions and a request. And relax mate - your numbers are what we

expect to see from a newby and better than some. The good news is that

they will continue to improve if you take this one step at a time. You

are in control ofr what happens from now on.

What was the timing of those 8 tests, related to the meals and snacks

you ate yesterday, and what did you eat, including portion sizes, at

those meals?

It may help if you would post the exact results of yesterday's tests

and the portions and menu you ate.

Something like:

0700 Fasting 7.1

0730 Breakfast: 1/2 cup of oat cereal, 1/2 cup of milk, one apple, tea

with milk.

0830 11.5

and so on - you get the idea.

The following are direct quotes from 's great advice, which

you will find in full at

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

First: Eat whatever you've been currently eating... but write it all

down.

Test yourself at the following times:

Upon waking (fasting)

1 hour after each meal

2 hours after each meal

At bedtime

Here's my opinion on what numbers to aim for, they are non-diabetic

numbers. For those in the mmol parts of the world:

Fasting.......................Under 6

One hour after meals..........Under 8

Two hours after meals.......Under 6.5

Cheers Alan, T2, Australia.

--

Diet and not enough exercise.

I have no medical qualifications beyond my own experience.

Choose your advisers carefully, because experience can be

an expensive teacher.

Everything in Moderation - Except Laughter

[Guest guest]

> I don't know because all I know is that it should be between 4 and 7

according to what I have been told by my doctos.>

> I have been testing 8 times a day for the last 2 days and the values

are just over 7 when I get up, but they are in the 9's today and were

between 9.5 and 11.5 yesterday.

>

Hi Rob

The others have given some good advice, so I have a couple of

questions and a request. And relax mate - your numbers are what we

expect to see from a newby and better than some. The good news is that

they will continue to improve if you take this one step at a time. You

are in control ofr what happens from now on.

What was the timing of those 8 tests, related to the meals and snacks

you ate yesterday, and what did you eat, including portion sizes, at

those meals?

It may help if you would post the exact results of yesterday's tests

and the portions and menu you ate.

Something like:

0700 Fasting 7.1

0730 Breakfast: 1/2 cup of oat cereal, 1/2 cup of milk, one apple, tea

with milk.

0830 11.5

and so on - you get the idea.

The following are direct quotes from 's great advice, which

you will find in full at

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

First: Eat whatever you've been currently eating... but write it all

down.

Test yourself at the following times:

Upon waking (fasting)

1 hour after each meal

2 hours after each meal

At bedtime

Here's my opinion on what numbers to aim for, they are non-diabetic

numbers. For those in the mmol parts of the world:

Fasting.......................Under 6

One hour after meals..........Under 8

Two hours after meals.......Under 6.5

Cheers Alan, T2, Australia.

--

Diet and not enough exercise.

I have no medical qualifications beyond my own experience.

Choose your advisers carefully, because experience can be

an expensive teacher.

Everything in Moderation - Except Laughter

[Guest guest]

> I don't know because all I know is that it should be between 4 and 7

according to what I have been told by my doctos.>

> I have been testing 8 times a day for the last 2 days and the values

are just over 7 when I get up, but they are in the 9's today and were

between 9.5 and 11.5 yesterday.

>

Hi Rob

The others have given some good advice, so I have a couple of

questions and a request. And relax mate - your numbers are what we

expect to see from a newby and better than some. The good news is that

they will continue to improve if you take this one step at a time. You

are in control ofr what happens from now on.

What was the timing of those 8 tests, related to the meals and snacks

you ate yesterday, and what did you eat, including portion sizes, at

those meals?

It may help if you would post the exact results of yesterday's tests

and the portions and menu you ate.

Something like:

0700 Fasting 7.1

0730 Breakfast: 1/2 cup of oat cereal, 1/2 cup of milk, one apple, tea

with milk.

0830 11.5

and so on - you get the idea.

The following are direct quotes from 's great advice, which

you will find in full at

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

First: Eat whatever you've been currently eating... but write it all

down.

Test yourself at the following times:

Upon waking (fasting)

1 hour after each meal

2 hours after each meal

At bedtime

Here's my opinion on what numbers to aim for, they are non-diabetic

numbers. For those in the mmol parts of the world:

Fasting.......................Under 6

One hour after meals..........Under 8

Two hours after meals.......Under 6.5

Cheers Alan, T2, Australia.

--

Diet and not enough exercise.

I have no medical qualifications beyond my own experience.

Choose your advisers carefully, because experience can be

an expensive teacher.

Everything in Moderation - Except Laughter

[Guest guest]

Hi Alan

Checked back and it was 7 tests each day, got mixed up because of way I'd listed

everything.

1st test . . . . .after waking 7.1

breakfast . . . .approx 30gm oat cereal w semi skimmed milk + mug tea w semi

skimmed milk

2nd test . . . . .1 h 25 after breakfast 11.2

3rd test . . . . . 2h 18 after breakfast 10.0

Lunch . . . . . . 1 slice roast beef in white roll + apple pie flavour light

yoghurt + mug of tea w semi skimmed milk

4th test . . . . .43m after lunch 11.4

5th test . . . . .1h 38 after lunch 9.5

dinner . . . . . .pre packaged corn beef hash + apple pie flavour light yoghurt

+ mug of tea w semi skimmed milk

6th test . . . . .1h 10 after dinner 11.5

7th test . . . . .2h 25 after dinner 10.7

But I also ate some Rich Tea biscuits about 10 of them as snacks during day +

some low fat apple and sultans wafer biscuits.

1st test . . . . .after waking 7.4

breakfast . . . .approx 30gm oat cereal w semi skimmed milk + mug tea w semi

skimmed milk

2nd test . . . . .1 h 15 after breakfast 9.9

3rd test . . . . . 2h 30 after breakfast 9.5

Lunch . . . . . . 1 rasher bacon + 1 egg omelette+ apple pie flavour light

yoghurt + mug of tea w semi skimmed milk

4th test . . . . .1h 05 after lunch 9.2

5th test . . . . .1h 52 after lunch 9.3

dinner . . . . . .2 franks + 4 new potatoes+ 30 g peas + apple pie flavour light

yoghurt + mug of tea w semi skimmed milk

6th test . . . . .1h 25 after dinner 8.6

7th test . . . . .2h 25 after dinner 5.7

But I also ate some Rich Tea biscuits about 10 of them as snacks during day +

some low fat apple and sultans wafer biscuits.

The snacks are not going to be bought from now on so that I am not tempted by

them - if they are there I will eat them.

I gave up chocolate so I can give up biscuits - funny never liked Rich Tea until

my doctor told me I could eat them.

I am in the process of creating a database so that I can keep check of my tests

and also what I eat. then I can cross reference and see what is causing me

problems in combination also.

regards

Rob T2 Met, etc

[Guest guest]

> When I turned my holter in the nurse and tech who read the strips

said I had Afib.

> I made a mistake and read. I see words like sudden cardiac death

that are combined with WPW and VPA, or TPA. I have a four year old

who needs his mother. Except for this stupid arrhythmia, I love my

life.

*****

Marna,

You need to talk to the doctor. Not that the nurses are not terrific,

sometimes, in my experience, they can be more helpful than the

doctor. But you need to find out what all these diagnoses mean for

you.

Don't ever think, I made a mistake and read. You need to read and

know what's going on with you. Especially because you have a four

year old.

I was diagnosed with afib when I was 51. My son was grown. I really

can't imagine how hard it is for you with a four year old.

My advice to you would be to call the doctor right away and insist

that you need answers to your questions. If you can't get any

satisfaction there, try to find a new doctor.

Easy for me say. I don't have a four year old anymore. Mine is 29!

But you need to find out what these diagnoses are and how they will

impact your life. Best of luck to you. Feel free to email me anytime.

[Guest guest]

I have a four year old who needs his mother.

I totally understand your worry. I have a 3 year old and I just want to

be here for him. Like you said in your post I also most of the time

enjoy my life. Its this crazy heartbeat that makes me miserable. I

would just call your Dr and talk to him or the nurse. I called the

other day twice. Email me anytime Mprudhomme1@...

[Guest guest]

Hi Marna,

It's michele again. Please calm down. If it were

dangerous, the doctor would have called you in

immediately. I went through the same thing. If you

are in AFIB all the time then it is persistant afib,

if it comes and goes it is paroxysmal. I have that

one. Let them put all the info together and then they

will decide the best meds for you. ONE word of advice,

do not take Cordarone (also known as amiodarone) it

has very bad side effects and is not to be used on

younger people. I am 53 and my doctor considers me

" Young " for amiodarone. I was with another Cardio who

just told me, to take it for the rest of my life and

that was it. Thank God I found my current doctor. He

is wonderful and a blessing. There are plenty of other

meds that you can take to help. Let me know how you

make out. my email bellagem@... Michele

--- Marna wrote:

> When I turned my holter in the nurse and tech who

> read the strips said I had Afib.

>

> My doctors PA stated my cardiologist thought I had

> afib. Didn't say what kind.

>

> So I am reading my diagnoses here:

>

> Wolff Parkinson White Syndrome (I knew I had that)

> Ventricular Premature Beats

> Tachycardia, Paroxysmal

>

> I don't see AFIB, would it say AFIB or is that what

> these:

>

> Ventricular Premature Beats

> Tachycardia, Paroxysmal

>

> Are?

>

> I made a mistake and read. I see words like sudden

> cardiac death that are combined with WPW and VPA, or

> TPA. I have a four year old who needs his mother.

> Except for this stupid arrhythmia, I love my life.

>

> I know there are no guarantee's in life, but God,

> Thursday is far off, I feel like I am ticking time

> bomb, who can't lay down for fear it will occur.

>

> Anyone clue me in on my diagnoses?

>

> Marna

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

This is what they used to say about nuts but now they are known to have

" good " fats which can actually help cholesterol in that it changes the

ratios to be better. At least this is what I have read. The reason it

might be said that one shouldn't eat too many is because of the high

calories. If you are eating natural or unsalted nuts they are actually

good for you. It all depends on how high your cholesterol is. Mine is

very low. I eat lots of nuts and seeds. They actually taste sweet when

not salted and have lots of minerals and vitamins. Higher than some

meats or other proteins. I wouldn't avoid eating them but limit the

quantities due to calorie content.

> I seem to recall reading in a post or info about not eating too

>many walnuts or almonds because they can change the over all

>cholesterol numbers. Anyone heard or know about this one?

>

[Guest guest]

Researchers defined one serving as one ounce or 28 gm, and they found that

the Nurses who ate 5 servings a week had reduced risk of diabetes (27

percent) and heart disease. Eating less helped but not

http://www.hsph.harvard.edu/press/releases/press11262002.html

Women Who Eat Nuts or Peanut Butter Regularly Significantly Reduce Their

Risk for Type 2 Diabetes

For immediate release: Tuesday, November 26, 2002

There are several reports elsewhere of the same research.

On a personal note. I was eating more than 1 ounce a day until my

endocrinologist told me to reduce the amount of fat in my diet (to reduce

weight urgently). I miss the nuts - but it's certainly helped me lose

weight.

Bea

> I seem to recall reading in a post or info about not eating too

>many walnuts or almonds because they can change the over all

>cholesterol numbers. Anyone heard or know about this one?

>

[Guest guest]

Researchers defined one serving as one ounce or 28 gm, and they found that

the Nurses who ate 5 servings a week had reduced risk of diabetes (27

percent) and heart disease. Eating less helped but not

http://www.hsph.harvard.edu/press/releases/press11262002.html

Women Who Eat Nuts or Peanut Butter Regularly Significantly Reduce Their

Risk for Type 2 Diabetes

For immediate release: Tuesday, November 26, 2002

There are several reports elsewhere of the same research.

On a personal note. I was eating more than 1 ounce a day until my

endocrinologist told me to reduce the amount of fat in my diet (to reduce

weight urgently). I miss the nuts - but it's certainly helped me lose

weight.

Bea

> I seem to recall reading in a post or info about not eating too

>many walnuts or almonds because they can change the over all

>cholesterol numbers. Anyone heard or know about this one?

>