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Hi there,

You and your boys are troopers! That is a long trip, I would do it

too! Great news about Everett. I bet those extra hours out of the

bar are going to be awesome.

I am sorry that Dr. P didn't feel there is anything he can do to help

's feet more. How is his mobility with it? Are there any

exercises that might help?

Louisa

6-27-99

Zoe 2-22-04 RCF

> Hello,

> we made it to Iowa and back! Eleven hours up and twelve hours back

(several traffic jams around Kansas City). Dr. Ponseti was so

thrilled with Everett's progress! He just grinned ear to ear and

kept talking about how happy he was. Everett showed off pushing the

stool (on wheels) around the hall way. He reduced the braces to 60

degrees rather than 70, and reduced our hours down to the 12 - 14

per day range! Woo Hooo! We got our new shoes; the design

is slightly different now but nothing major.

>

> As for 's check up - hmm, I'm not sure what to say.

had the tendon-transfer surgery four years ago by Dr. Dietz. His

feet are very stiff, etc. and Dr. Ponseti said they are OK but the

look on his face and the tone of his voice said other wise......he

spent a great deal of time handling the feet, and he just didn't seem

happy with what he found but told me they were basically as good as

they were going to get. He only has 15 degrees of rotation on one

foot and 10 degrees on the other., almost zero range going up and

down and some other things he said I didn't quite catch because he

was talking to a doctor in training from Brazil. He asked me if

Dietz has seen since he was three yr. old and I said no (he's

never been around when we came back for check ups). Ponseti wanted

Dietz to look at and asked a nurse to get him but he never did

come look although I saw him n the hall a couple times. But Ponseti

kept saying stuff like, " I think Dr. Dietz should look at these

feet. " in such a way as he was displeased and wanted Dietz to see the

feet with his own two eyes. Maybe I'm making more of it than there

was and I certainly mean no disrespect to Dr. Dietz but I was left

feeling unsettled by it all. I've worried a lot about 's feet

and I guess i was hoping to find out maybe I was worried over nothing

but it seems his tendon transfer results or something anyway are not

up to par and there's nothing left to be done about it.

>

> s.

>

>

>

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Share on other sites

Hi there,

You and your boys are troopers! That is a long trip, I would do it

too! Great news about Everett. I bet those extra hours out of the

bar are going to be awesome.

I am sorry that Dr. P didn't feel there is anything he can do to help

's feet more. How is his mobility with it? Are there any

exercises that might help?

Louisa

6-27-99

Zoe 2-22-04 RCF

> Hello,

> we made it to Iowa and back! Eleven hours up and twelve hours back

(several traffic jams around Kansas City). Dr. Ponseti was so

thrilled with Everett's progress! He just grinned ear to ear and

kept talking about how happy he was. Everett showed off pushing the

stool (on wheels) around the hall way. He reduced the braces to 60

degrees rather than 70, and reduced our hours down to the 12 - 14

per day range! Woo Hooo! We got our new shoes; the design

is slightly different now but nothing major.

>

> As for 's check up - hmm, I'm not sure what to say.

had the tendon-transfer surgery four years ago by Dr. Dietz. His

feet are very stiff, etc. and Dr. Ponseti said they are OK but the

look on his face and the tone of his voice said other wise......he

spent a great deal of time handling the feet, and he just didn't seem

happy with what he found but told me they were basically as good as

they were going to get. He only has 15 degrees of rotation on one

foot and 10 degrees on the other., almost zero range going up and

down and some other things he said I didn't quite catch because he

was talking to a doctor in training from Brazil. He asked me if

Dietz has seen since he was three yr. old and I said no (he's

never been around when we came back for check ups). Ponseti wanted

Dietz to look at and asked a nurse to get him but he never did

come look although I saw him n the hall a couple times. But Ponseti

kept saying stuff like, " I think Dr. Dietz should look at these

feet. " in such a way as he was displeased and wanted Dietz to see the

feet with his own two eyes. Maybe I'm making more of it than there

was and I certainly mean no disrespect to Dr. Dietz but I was left

feeling unsettled by it all. I've worried a lot about 's feet

and I guess i was hoping to find out maybe I was worried over nothing

but it seems his tendon transfer results or something anyway are not

up to par and there's nothing left to be done about it.

>

> s.

>

>

>

Link to comment
Share on other sites

Hi there,

You and your boys are troopers! That is a long trip, I would do it

too! Great news about Everett. I bet those extra hours out of the

bar are going to be awesome.

I am sorry that Dr. P didn't feel there is anything he can do to help

's feet more. How is his mobility with it? Are there any

exercises that might help?

Louisa

6-27-99

Zoe 2-22-04 RCF

> Hello,

> we made it to Iowa and back! Eleven hours up and twelve hours back

(several traffic jams around Kansas City). Dr. Ponseti was so

thrilled with Everett's progress! He just grinned ear to ear and

kept talking about how happy he was. Everett showed off pushing the

stool (on wheels) around the hall way. He reduced the braces to 60

degrees rather than 70, and reduced our hours down to the 12 - 14

per day range! Woo Hooo! We got our new shoes; the design

is slightly different now but nothing major.

>

> As for 's check up - hmm, I'm not sure what to say.

had the tendon-transfer surgery four years ago by Dr. Dietz. His

feet are very stiff, etc. and Dr. Ponseti said they are OK but the

look on his face and the tone of his voice said other wise......he

spent a great deal of time handling the feet, and he just didn't seem

happy with what he found but told me they were basically as good as

they were going to get. He only has 15 degrees of rotation on one

foot and 10 degrees on the other., almost zero range going up and

down and some other things he said I didn't quite catch because he

was talking to a doctor in training from Brazil. He asked me if

Dietz has seen since he was three yr. old and I said no (he's

never been around when we came back for check ups). Ponseti wanted

Dietz to look at and asked a nurse to get him but he never did

come look although I saw him n the hall a couple times. But Ponseti

kept saying stuff like, " I think Dr. Dietz should look at these

feet. " in such a way as he was displeased and wanted Dietz to see the

feet with his own two eyes. Maybe I'm making more of it than there

was and I certainly mean no disrespect to Dr. Dietz but I was left

feeling unsettled by it all. I've worried a lot about 's feet

and I guess i was hoping to find out maybe I was worried over nothing

but it seems his tendon transfer results or something anyway are not

up to par and there's nothing left to be done about it.

>

> s.

>

>

>

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Share on other sites

  • 6 years later...
Guest guest

Okay, so I applied for disability I also applied for SSI, I was told that this was standard.  I got my disability last August, and because it would be so long before the disability back payment came through, my lawyer told me to request an SSI back payment, to get the money started coming in earlier.  I did that.  So I got a small payment, and I started getting my monthly payments earlier.  All of this was deducted from my SSDI back payment.  When I got the SSDI bck payment, there was some money I couldn't figure out where it went, but I didn't think much of it.  Then I got another payment in January.  They said my SSI back payment is broken up into three lumps.  The first two lumps are smaller amounts, at six month intervals, and then the last lump is the remainder of what you are owed, again, six months later.  I forgot that this payment is my third and final payment.  I called social security today to find out when I get it and how much it is, and oh boy!  I get it Saturday, and let's just say the amount is more than generous.  Good news indeed!

Tina

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Guest guest

Wonderful!! What a way to start off a new month:) Enjoy the bounty and have a great weekend.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Thu, June 30, 2011 1:19:03 PMSubject: Good news

Okay, so I applied for disability I also applied for SSI, I was told that this was standard. I got my disability last August, and because it would be so long before the disability back payment came through, my lawyer told me to request an SSI back payment, to get the money started coming in earlier. I did that. So I got a small payment, and I started getting my monthly payments earlier. All of this was deducted from my SSDI back payment. When I got the SSDI bck payment, there was some money I couldn't figure out where it went, but I didn't think much of it. Then I got another payment in January. They said my SSI back payment is broken up into three lumps. The first two lumps are smaller amounts, at six month intervals, and then the last lump is the remainder of what you are owed, again, six months later. I forgot that this payment is my third and final payment. I called social security today to

find out when I get it and how much it is, and oh boy! I get it Saturday, and let's just say the amount is more than generous. Good news indeed!

Tina

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