Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce with on demand does inhaling through the nose signal the equipment because i have a freestyle and the hose is 7 ft and i think iam going to switch to a 4ft. the 7 ft always gets caught on my shopping cart anyway. sharonp asthma ph 2008 Subject: Re: PinkTo: Breathe-Support Date: Wednesday, January 28, 2009, 10:36 AM Pink JoyceYour needs and use of the Marathon are very nearly the same as mine withthe exception that I have days I can't use the demand at all. My nose istoo congested to send a message to the equipment.I noticed the "start talking" part too. Now, talking on the treadmill inrehab did impact me but in general I'm not affected as much by eatingand talking as most seem to be. I've had that pointed out to me byseveral including Gwynne and Beth and I think Leanne evencommented. I feel very lucky in that respect so far. Even though Itypically need 4 lpm and sometimes if I'm in a hurry even 5, I cannormally sit, rest a little, and then eat a meal without oxygen. Now, ifI stand up from the table before hooking it up, I realize it extremelyquickly.> > >> > > I was diagnosed with IPF in March 2005. I'm unable to do things> > > without my oxygen. When I try without the oxygen, it's difficult> and I> > > cough uncontrollably. So the doctor put me on 3 liters 24/7. I> take a> > > portable tank with me when I go out.> > >> > > The cough is very annoying. There are times that I'm unable to> speak> > > because I'm unable to breath and the coughing. When I cough, I> have a> > > burning sensation in the back of my throat. The pain goes into> the> > > base of my neck (below my adam's apple).> > >> > > I'm going to my PCP next week to discuss this. Does anyone else> have> > > this type of problem?> > >> > > Thanks for your thoughts.> > >> > > > > >> > >> > > ------------ --------- --------- --------- --------- --------- -> -------> > >> > >> > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com> > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release> Date: 1/26/2009 7:08 AM> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce with on demand does inhaling through the nose signal the equipment because i have a freestyle and the hose is 7 ft and i think iam going to switch to a 4ft. the 7 ft always gets caught on my shopping cart anyway. sharonp asthma ph 2008 Subject: Re: PinkTo: Breathe-Support Date: Wednesday, January 28, 2009, 10:36 AM Pink JoyceYour needs and use of the Marathon are very nearly the same as mine withthe exception that I have days I can't use the demand at all. My nose istoo congested to send a message to the equipment.I noticed the "start talking" part too. Now, talking on the treadmill inrehab did impact me but in general I'm not affected as much by eatingand talking as most seem to be. I've had that pointed out to me byseveral including Gwynne and Beth and I think Leanne evencommented. I feel very lucky in that respect so far. Even though Itypically need 4 lpm and sometimes if I'm in a hurry even 5, I cannormally sit, rest a little, and then eat a meal without oxygen. Now, ifI stand up from the table before hooking it up, I realize it extremelyquickly.> > >> > > I was diagnosed with IPF in March 2005. I'm unable to do things> > > without my oxygen. When I try without the oxygen, it's difficult> and I> > > cough uncontrollably. So the doctor put me on 3 liters 24/7. I> take a> > > portable tank with me when I go out.> > >> > > The cough is very annoying. There are times that I'm unable to> speak> > > because I'm unable to breath and the coughing. When I cough, I> have a> > > burning sensation in the back of my throat. The pain goes into> the> > > base of my neck (below my adam's apple).> > >> > > I'm going to my PCP next week to discuss this. Does anyone else> have> > > this type of problem?> > >> > > Thanks for your thoughts.> > >> > > > > >> > >> > > ------------ --------- --------- --------- --------- --------- -> -------> > >> > >> > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com> > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release> Date: 1/26/2009 7:08 AM> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce with on demand does inhaling through the nose signal the equipment because i have a freestyle and the hose is 7 ft and i think iam going to switch to a 4ft. the 7 ft always gets caught on my shopping cart anyway. sharonp asthma ph 2008 Subject: Re: PinkTo: Breathe-Support Date: Wednesday, January 28, 2009, 10:36 AM Pink JoyceYour needs and use of the Marathon are very nearly the same as mine withthe exception that I have days I can't use the demand at all. My nose istoo congested to send a message to the equipment.I noticed the "start talking" part too. Now, talking on the treadmill inrehab did impact me but in general I'm not affected as much by eatingand talking as most seem to be. I've had that pointed out to me byseveral including Gwynne and Beth and I think Leanne evencommented. I feel very lucky in that respect so far. Even though Itypically need 4 lpm and sometimes if I'm in a hurry even 5, I cannormally sit, rest a little, and then eat a meal without oxygen. Now, ifI stand up from the table before hooking it up, I realize it extremelyquickly.> > >> > > I was diagnosed with IPF in March 2005. I'm unable to do things> > > without my oxygen. When I try without the oxygen, it's difficult> and I> > > cough uncontrollably. So the doctor put me on 3 liters 24/7. I> take a> > > portable tank with me when I go out.> > >> > > The cough is very annoying. There are times that I'm unable to> speak> > > because I'm unable to breath and the coughing. When I cough, I> have a> > > burning sensation in the back of my throat. The pain goes into> the> > > base of my neck (below my adam's apple).> > >> > > I'm going to my PCP next week to discuss this. Does anyone else> have> > > this type of problem?> > >> > > Thanks for your thoughts.> > >> > > > > >> > >> > > ------------ --------- --------- --------- --------- --------- -> -------> > >> > >> > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com> > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release> Date: 1/26/2009 7:08 AM> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 thanks Pink Joyce IPF 3/06 Pennsylvania Donate Life Subject: PinkTo: Breathe-Support Date: Thursday, January 29, 2009, 12:27 PM Pretty Blankie for the wee one. Do I see PINK walls ??? Love it. Red is my Fav. color. Don't think I can do red walls. LOL Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 thanks peggy yes you do see pink walls and a mauve rug the kitchen has a dark pink on the bottom and a light pink on top the bedroom has a cranberry accent wall, the rest of the walls are the same light pink and the rug is cranberry Pink Joyce IPF 3/06 Pennsylvania Donate Life Subject: PinkTo: Breathe-Support Date: Thursday, January 29, 2009, 12:27 PM Pretty Blankie for the wee one. Do I see PINK walls ??? Love it. Red is my Fav. color. Don't think I can do red walls. LOL Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
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