Re: Newbie here, Connie from Alaska with lots of questions

[Guest guest]

Hi Connie,

I looking forward to getting to know you too.

Of course, like you said, all of us wonder why doctors don't know what to do

with it or even sometimes acknowledge it exists. My Sarcoidosis doctor told me

last Thursday that he didn't believe in Fibromyalgia. How do you not believe in

something so many people have? Is it just convenient I wonder so they don't

have to deal with it? He's good at treating Sarcoid, I believe, so it kind of

through me for a loop when he said that.

Like you my Fibromyalgia changed over the years. It started out as unexplained

aches and pains and fatigue and took things from my life over the years I've had

it, until now it has sucked most of the life right out of me.

I'm glad you have a supportive husband, but sorry that he also has problems.

It sounds like you try hard to do the best you can and that's what we all do.

I hope today brings a better day,

Marti

Connie Grudzinski wrote:

Well, here goes! I have so many questions I do not know where to

start. What is this hideous dragon that has shredded my body! Why

don't the docs know what to do with it? What can I do about it?

Well, probably those are the questions that we all have.

I started hurting several years ago, a spot on my back, about the

right shoulder blade. I had a couple of docs look at it, both said

nothing was wrong. I have been to massage therapy as well as

chiropractor. Sometimes it helps and sometimes it hurts so much that

I cry. As the years rolled on I complained about my back less, since

the docs just dismiss it. I had breast cancer back in '92 at the

ripe old age of 34! It was a bad one, already spreading into the

lymph nodes, but I had the best care and I am a survivor. I get

regular checkups, of course, but the body paid is never addressed,

just no help there. My rear end and hips have been hurting for a

couple years now. I just blame it on the weather and hard work.

Most of my joints hurt, but I take something and keep going.

Sometimes after work, I cannot even move. I fight the tears that

would just flow like a river if I let them. I do not have time to be

sick, I refuse to give in. For some reason now the bottom of my foot

is killing me. If I sit for a while and then get up, I cannot bear

the pain of my own weight on my foot and I nearly fall. I consider

myself a very strong person, but if I sit, I nearly have to get help

getting on my feet again. My co-workers jokingly (and lovingly) call

me Granny! I also have restless leg syndrom, but when that was

finally diagnosed and I got the pills (Requip) It irritated my

stomach so badly that I was vomiting every night. When I had the

upper GI to look at the stomach, the doc said it looked like I

swallowed a grinder! So, still I suffer!

I take over the counter herbs for what ails me. I try not to be sick

or even unwell. I just hate this stuff. It gets depressing to say

the least!

I am married to a very supportive retired Army Sgt who is also

disabled 100%. Money should not be a problem, but it is since we

both like to spend. I work full time as a cashier and cashier

trainer at Fred Meyer, and I am sort of retired as a teacher. We are

both outdoorsy, but that has been on hold for a few years while my

hubby has had 3 knee replacements (no typos here) a year of chemo,

several bouts of pneumonia and staph infections. He raises racing

pigeons, we just built a greenhouse for better gardening. We built

our own log house a few years ago, and now we just have little

ongoing projects all the time. I used to train horses, I have also

run a sled dog team. You name it, we have done it! Now I sit and

cry from the pain.

It is getting warmer now, newrly 20 degrees in the daytime, so very

soon I will be back outside. I am looking forward to getting to know

youall. I hope to learn more about this thing that has attacked me.

It does need a bit of updating, but if you would like to know more

about me, I have a website that shows my pretty log house and my

hubby's pigeons. (how we built it is linked on 's page)

www.geocities.com/mrspiddles/firstpage.html?1042436907440

I will fix that address some day!

Thanks for the ear,

Connie from Alaska

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