Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 > > > ----- Original Message ----- > From: mmc2315 > > Wait..., are you saying the trouble coincided with the dose increase of ALA? > > << > The thing I don't understand is on the Ala she is complaining regularly that her head feels weird (right frontal lobe) and making this movement and the minute we stop the Ala and just give the Dmsa she is fine and she's always fine the very next day. , I don't know if this will be useful to you, but the " head feels weird " is something I'm very familiar with, so I'll just share my experience. I have had lots of " weird head " feelings on chelation. (Very similar to the feelings I get from killing yeast, actually.) At the worst, it evolves to become a type of dizziness. I had some of these feelings for years before chelating, but it got a lot worse when I started chelation. Part of the problem was not taking chelators often enough. When I took DMSA often enough the problem went away, but it came back worse than ever when I started ALA. The only thing that has helped since starting ALA is GABA. I started it for anxiety, and did not expect it to help the weird-headed feelings. A pleasant surprise, though, and made it possible to (finally) raise my ALA dose. My experience is the same - when I drop the ALA and continue DMSA, the weird head feelings go away promptly. I had never localized it before, but now you mention it, mine can be frontal or at the crown of my head. I get some jerky muscle movements at times, too, but these are not necessarily tied to the weird-headed feelings. Somewhat controllable, but not entirely voluntary. And I certainly get hyper moods, anxiety, panicky stuff. GABA has been a big help with a lot of these symptoms. Now that I think about it, this has all been better when my adrenals have been doing better, and makes me think now I am not on enough support. Interesting. I'm glad you posted about this, and glad Andy replied. I am in the process of pursuing some investigation of these problems, but to date I have not had an EEG. I did have a neuro exam that was normal (I think). I'd be interested to hear what happens with her situation - hopefully all will clear up quickly for her. -- (formerly a PA girl and born in OH > in Ohio, yeah for the Midwest > > in Illinois > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 ----- Original Message ----- From: > , I don't know if this will be useful to you, but the " head feels weird " is something I'm very familiar with, so I'll just share my experience. I have had lots of " weird head " feelings on chelation. (Very similar to the feelings I get from killing yeast, actually.) At the worst, it evolves to become a type of dizziness. I had some of these feelings for years before chelating, but it got a lot worse when I started chelation. Part of the problem was not taking chelators often enough. When I took DMSA often enough the problem went away, but it came back worse than ever when I started ALA. << >>>>>>>>>>>>> The only thing that has helped since starting ALA is GABA. I started it for anxiety, and did not expect it to help the weird-headed feelings. A pleasant surprise, though, and made it possible to (finally) raise my ALA dose. <<< >>>>>> My experience is the same - when I drop the ALA and continue DMSA, the weird head feelings go away promptly. I had never localized it before, but now you mention it, mine can be frontal or at the crown of my head. I get some jerky muscle movements at times, too, but these are not necessarily tied to the weird-headed feelings. Somewhat controllable, but not entirely voluntary. And I certainly get hyper moods, anxiety, panicky stuff. GABA has been a big help with a lot of these symptoms. Now that I think about it, this has all been better when my adrenals have been doing better, and makes me think now I am not on enough support. Interesting. I'm glad you posted about this, and glad Andy replied. << >>> Thanks , forgive the rambling, I sometimes get my best ideas when I am wandering aimlessly, cognitive-wise. (whose mother lives in Nevada, and says that Ohio is a great place to be FROM -- (formerly a PA girl and born in OH > in Ohio, yeah for the Midwest > > in Illinois > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 > > (whose mother lives in Nevada, and says that Ohio is a great place to be FROM > > -- (formerly a PA girl and born in OH > > > in Ohio, yeah for the Midwest > > > > in Illinois You girls are killin' me. , is Ohio really considered Midwest? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 > > ----- Original Message ----- > From: > was not taking chelators often enough. When I took DMSA often > enough the problem went away, but it came back worse than ever > when I started ALA. > > << Also, did you get the " weird head " feeling with Ala from the beginning? Yes, I did. I commented on her set of similar symptoms because I haven't seen any adults report a set of symptoms so similar to mine. Even though hers are more in the nature of an exacerbation and mine are more long-standing, I thought it interesting. I just think it's odd that we have used Ala for over 2 years and this is the first time we are hearing complaints, although Dean reports this same phenomena after a year, why? This sudden complaint made me question if the Ala pathway was somehow blocked previously and through some developmental stage is now open. Highly speculative here as I am hopelessly clueless about a lot of aspects of physiology and it's not for lack of trying. It sounds like you noticed effects with ALA in the past, so I doubt that an " ALA pathway " is suddenly open that wasn't before. What I was thinking was more that the brain has changed (anatomically? physiologically?) so that metals can come out from some location they could not before, or come out faster, or something... Don't know, just a thought. It would be possible that she needs to take ALA more often, possibly just temporarily (maybe her liver is detoxing?). > We did one round of just Ala, round 30, when she was 4. She was happy, euphoric even and spacey as heck. We tried another just Ala round at round 50 and got nothing, couldn't even tell we were giving her the Ala, continued for 10 rounds, and she actually lost a little ground there (could have been the stall period) so we put her back on the dmsa/ala combo and she continued to progress. > > And, yes, when asked where her head hurts/feels funny she will point to her right frontal lobe near the hairline to aout 2 inches down her forehead.>>>>>>>>>>>>>> Sounds pretty tightly localized. Mine is rarely so localized. Maybe a totally different thing. > The only thing that has helped since starting ALA is GABA. I > started it for anxiety, and did not expect it to help the > weird-headed feelings. A pleasant surprise, though, and made it > possible to (finally) raise my ALA dose. > > <<< >>>>>> I hope it helps. > << >>> In any case, it would make sense to use what you have done in the past, the adrenal cortex extract and the frequent C/B5. > Thanks , forgive the rambling, I sometimes get my best ideas when I am wandering aimlessly, cognitive-wise. Me too. Thanks for letting me. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 > > ----- Original Message ----- > From: > was not taking chelators often enough. When I took DMSA often > enough the problem went away, but it came back worse than ever > when I started ALA. > > << Also, did you get the " weird head " feeling with Ala from the beginning? Yes, I did. I commented on her set of similar symptoms because I haven't seen any adults report a set of symptoms so similar to mine. Even though hers are more in the nature of an exacerbation and mine are more long-standing, I thought it interesting. I just think it's odd that we have used Ala for over 2 years and this is the first time we are hearing complaints, although Dean reports this same phenomena after a year, why? This sudden complaint made me question if the Ala pathway was somehow blocked previously and through some developmental stage is now open. Highly speculative here as I am hopelessly clueless about a lot of aspects of physiology and it's not for lack of trying. It sounds like you noticed effects with ALA in the past, so I doubt that an " ALA pathway " is suddenly open that wasn't before. What I was thinking was more that the brain has changed (anatomically? physiologically?) so that metals can come out from some location they could not before, or come out faster, or something... Don't know, just a thought. It would be possible that she needs to take ALA more often, possibly just temporarily (maybe her liver is detoxing?). > We did one round of just Ala, round 30, when she was 4. She was happy, euphoric even and spacey as heck. We tried another just Ala round at round 50 and got nothing, couldn't even tell we were giving her the Ala, continued for 10 rounds, and she actually lost a little ground there (could have been the stall period) so we put her back on the dmsa/ala combo and she continued to progress. > > And, yes, when asked where her head hurts/feels funny she will point to her right frontal lobe near the hairline to aout 2 inches down her forehead.>>>>>>>>>>>>>> Sounds pretty tightly localized. Mine is rarely so localized. Maybe a totally different thing. > The only thing that has helped since starting ALA is GABA. I > started it for anxiety, and did not expect it to help the > weird-headed feelings. A pleasant surprise, though, and made it > possible to (finally) raise my ALA dose. > > <<< >>>>>> I hope it helps. > << >>> In any case, it would make sense to use what you have done in the past, the adrenal cortex extract and the frequent C/B5. > Thanks , forgive the rambling, I sometimes get my best ideas when I am wandering aimlessly, cognitive-wise. Me too. Thanks for letting me. -- Quote Link to comment Share on other sites More sharing options...
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