New Member - General Questions

[Guest guest]

4/28/07

Hi,

Our adult daughter has recently been diagnosed with PSC, although it

is described as " not a classic case. " She was hospitalized for

several days while tests were run, had a tube protracting from her

body, numerous procedures (e.g., ERCP), and currently has a stent.

We are told her liver is in pretty good shape and she is not

currently in need for a transplant.

PSC and its affects are new to us, and we are still trying to learn

more about the disease and its symptoms. I am listing below some of

the symptoms she is experiencing and would be interested in receiving

feedback from the group on whether, in your experiences, these are

common to, or associated with, PSC. Thank you in advance for any

feedback you can provide.

--itching - while we know this is a symptom, does anyone have any

suggestions on how to provide relief from this. She is currently

taking Benadryl?

--difficulty walking, especially lifting her feet. Has trouble

maintaining her balance.

--strong back pain.

--arms and fingers and fingertips tingle.

--blurred vision, hard to read (one of favorite things to do).

--dizziness.

--nauseous.

--bad headaches.

--body temperature- always seems to be hot.

--shaking of the body, especially arms, hands, and face.

--says her food feels like it is not going down - staying in throat

or on top of chest.

Mike