Re: Re: Intro / MB

[Guest guest]

MB ... I found out some startling news from SS the other day (at least to me).

When a person is under 65 one can collect disability. When one passes the age of 65, that same person will then automatically go on SS. Even if the amount is less!

That's why I cannot get disability...I'm already on SS.

Thought this may be worth mentioning to the board...

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Intro > To: Breathe-Support@ yahoogroups. com> Date: Sunday, December 7, 2008, 11:08 PM> > > You say sliced and diced and sectioned and x-rayed. Does> that mean the> diagnosis was made from CT scans? Who made it. All the> waffling and the> 2 lpm continuous and everything just don't give me a> comfortable> feeling. If not made at a teaching hospital with PF> expertise, I'd> recommend a second opinion.> > As to specifics of your comments. NSIP often has an> autoimmune disease> as an underlying cause. Hopefully you can get another> opinion that feels> stronger one way or another. A rheumatologist should be> able to figure> out if there is an autoimmune disease.> > Ok, as to oxygen. It's rare that we would need the same> flow all the> time. Most of us need one flow sitting and a very different> one when> engaging in activity. Do you have an oximeter? If not, you> need one.> Also, have you had an overnight sleep oximeter to determine> nighttime> use. As to getting better, I can't say thats the case,> but if you get> the right amount of oxygen and adjust to the disease, life> can be> better.> > The level of exhaustion you describe and the sweating> don't sound like> you're getting enough oxygen or certainly some issue.> At 2 lpm you're at> such a low amount that I wouldn't hope you'd feel> as bad as you> describe. Thats why I question the amount of oxygen and the> overall> management.> > As to catching a cold, first you need to avoid germs in> every possible> way. Second, you need to get immediate medical care when> you catch> anything.> > What medications are you on?> > > > >> > I have been poked and prodded, x-rayed, given Dracula> a couple of> gallons of blood,> > sliced diced and sectioned, then pftd and walked into> the floor for> the past year.> >> > Basically, last year I caught what was supposedly a> cold. Then a> couple of weeks later, it> > was changed to must have been the flu. Then, oops,> looks like ground> glass, sorry it is> > IPF. Maybe. Or NSIP. Maybe. Or NSIP with an autoimmune> disease> component. Several> > months later, and the diagnosis is currently NSIP with> an autoimmune> disease component> > and a connective tissue disease with it. Personally,> sounds like a> catch all. Sorry if I sound> > frustrated. I am. And scared.> >> > I was put on oxygen 3 months ago, 2 liters continuous.> Thought that I> did not need it,> > now not sure I can be without it. Not sure if I will> ever get better.> Does it get better?> >> > I work full time, am single parent of 2 kids still at> home and> caregiver to my elderly> > mother (although honestly, she is taking more care of> me than I am of> her lately.)> >> > A couple of questions...> > 1) I feel exhausted a lot of the time, to the point> that my body seems> to made of lead. If> > that normal? Yesterday I was able to do the dishes. It> took an HOUR!> then, I need a 2> > hour nap. I am exhausted.> >> > 2) I start sweat buckets sporadically throughout the> day. (no, not> menopause). I get> > drenched. Is that part of this process?> >> > 3) Oh, yeah, and just for fun, I think that I am> catching a cold!! So,> what do I do now?> > normally, not an issue. But with whatever I have, and> the medications> that I am on what> > should I do? Is there something that I should do or> not do?> >> > Sorry for the long winded message.> >> > Later,> > > > DX 08 still pending??> >> > >> >