Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Bruce, Do you know what area of Pennsylvania? I live outside of Pottstown (not Pottsville, which is home of the Yeungling Brewery. Which is fine since I can not sample their brew anymore because of the meds) For Pulmonary I see Dr. Ahn Pham or his partner, Dr. Kennedy Sabat. It works out well for me as they are part of the same group as my Rheumatologist, Dr. Stacey Fitch, Hematologist Dr. Jeff s and my PCP. Dr. Pham and Sabat completed their fellowship at Drexel University (Philadelphia) and seem to keep in contact with them to know the latest. The communication between all of them is right on the money, so I feel blessed. Dr. Fitch is quite familiar with my autoinflammatory disease, Adult Onset Still's Disease, as she saw several cases as a fellow at Jefferson Medical Center in Philly. AOSD is rare and occurs in 1 in approximately 100,000 so frequently difficult to find a doc who understands it. Tom > > This question is to get information for someone not on this forum > (actually a daughter looking for a parent). The question is for those of > you in Pennsylvania. Where do you go for treatment and who do you see or > recommend? Thanks loads. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Bruce, Z. signing on..I go to the University of Pennsylvania Hospital Lung Center in Philadelphia (HUP) I see Horace Delisser MD.PHD. I live in a suburb northwest of the city and it takes about 45 minutes in traffic, and there's always traffic! Z 65, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara *“I’m gonna be iron like a lion in Zion” Bob Marley* *Vinca Minor-periwinkle is my flower* * * * * Bruce Moreland wrote: > > This question is to get information for someone not on this forum > (actually a daughter looking for a parent). The question is for those of > you in Pennsylvania. Where do you go for treatment and who do you see or > recommend? Thanks loads. > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Thanks. I knew one of you went there and thats where the person has a future appointment I believe. Knowing you go there and that you know the disease well so can judge good treatment makes me feel good about it. > > > > This question is to get information for someone not on this forum > > (actually a daughter looking for a parent). The question is for those of > > you in Pennsylvania. Where do you go for treatment and who do you see or > > recommend? Thanks loads. > > > > > > ------------------------------------------------------------------------ > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Thanks. I knew one of you went there and thats where the person has a future appointment I believe. Knowing you go there and that you know the disease well so can judge good treatment makes me feel good about it. > > > > This question is to get information for someone not on this forum > > (actually a daughter looking for a parent). The question is for those of > > you in Pennsylvania. Where do you go for treatment and who do you see or > > recommend? Thanks loads. > > > > > > ------------------------------------------------------------------------ > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce i go to U of P and see L Krieder for pulmonary and Vivek Ahya for transplant I live near I-95 and can usually get there in 30 to 45 minutes. the first pulmonary doc that i saw at Penn went into private practice in Doylestown PA--Pinak Acherya ( spelling?) where in PA is your friend? western PA would probably be U of Pittsburgh ( i think they have a transplant center) central PA would probably Hershey Medical Center s Hopkins in land may be convenient depending on where your friend lives Temple Univ in Phila also has a Lung Center and a transplant center Northeast PA might be close to New York City, there are a lot of teaching hospitals in NYC I think Coalition for PF teamed up with Mt Sinai for the conference that I went to a couple of years ago Pink Joyce IPF 3/06 Pennsylvania Donate Life > > This question is to get information for someone not on this forum > (actually a daughter looking for a parent). The question is for those of > you in Pennsylvania. Where do you go for treatment and who do you see or > recommend? Thanks loads. > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce i go to U of P and see L Krieder for pulmonary and Vivek Ahya for transplant I live near I-95 and can usually get there in 30 to 45 minutes. the first pulmonary doc that i saw at Penn went into private practice in Doylestown PA--Pinak Acherya ( spelling?) where in PA is your friend? western PA would probably be U of Pittsburgh ( i think they have a transplant center) central PA would probably Hershey Medical Center s Hopkins in land may be convenient depending on where your friend lives Temple Univ in Phila also has a Lung Center and a transplant center Northeast PA might be close to New York City, there are a lot of teaching hospitals in NYC I think Coalition for PF teamed up with Mt Sinai for the conference that I went to a couple of years ago Pink Joyce IPF 3/06 Pennsylvania Donate Life > > This question is to get information for someone not on this forum > (actually a daughter looking for a parent). The question is for those of > you in Pennsylvania. Where do you go for treatment and who do you see or > recommend? Thanks loads. > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Bruce i go to U of P and see L Krieder for pulmonary and Vivek Ahya for transplant I live near I-95 and can usually get there in 30 to 45 minutes. the first pulmonary doc that i saw at Penn went into private practice in Doylestown PA--Pinak Acherya ( spelling?) where in PA is your friend? western PA would probably be U of Pittsburgh ( i think they have a transplant center) central PA would probably Hershey Medical Center s Hopkins in land may be convenient depending on where your friend lives Temple Univ in Phila also has a Lung Center and a transplant center Northeast PA might be close to New York City, there are a lot of teaching hospitals in NYC I think Coalition for PF teamed up with Mt Sinai for the conference that I went to a couple of years ago Pink Joyce IPF 3/06 Pennsylvania Donate Life > > This question is to get information for someone not on this forum > (actually a daughter looking for a parent). The question is for those of > you in Pennsylvania. Where do you go for treatment and who do you see or > recommend? Thanks loads. > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: 1/26/2009 7:08 AM > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Pink Thanks. To someone starting, this information is so helpful. > > > > This question is to get information for someone not on this forum > > (actually a daughter looking for a parent). The question is for those of > > you in Pennsylvania. Where do you go for treatment and who do you see or > > recommend? Thanks loads. > > > > > > ------------------------------------------------------------------------ > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: > 1/26/2009 7:08 AM > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Pink Thanks. To someone starting, this information is so helpful. > > > > This question is to get information for someone not on this forum > > (actually a daughter looking for a parent). The question is for those of > > you in Pennsylvania. Where do you go for treatment and who do you see or > > recommend? Thanks loads. > > > > > > ------------------------------------------------------------------------ > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com > > Version: 8.0.176 / Virus Database: 270.10.13/1916 - Release Date: > 1/26/2009 7:08 AM > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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