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,

Check your local newspaper. In the want ads they normally have a section on

" Meetings " That is where I found the one here in town. i know that this

sounds bad but they are in the same section as where they announce the AA

meetings.

Joan

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Check your local newspaper. In the want ads they normally have a section on

" Meetings " That is where I found the one here in town. I know that this

sounds bad but they are in the same section as where they announce the AA

meetings.

Our paper on the first Sunday of the month runs a page of things happening in

the month ahead. Also they run a little later a list of support groups.

Check and see if your paper has something like this.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

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I live in Philadelphia and I having problems finding any groups in my

area too.

Let me know if you find anything and I will post if I find anything.

Tara

>

> I am looking for a support group in my area, south central

PA,can

> anyone help me?

> Thanks, .

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I live in Philadelphia and I having problems finding any groups in my

area too.

Let me know if you find anything and I will post if I find anything.

Tara

>

> I am looking for a support group in my area, south central

PA,can

> anyone help me?

> Thanks, .

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  • 2 years later...

Hi Joanne,

Thanks for the suggestions! I will put them on my list of ideas :)

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 days left!)

Owen and 3/20/99

> Hi Marilouise,

>

> I think a support group for dr. H patients would be great. We're

only about

> an hour away, so it would be pretty easy for us to attend...

>

> Two ideas of where to meet: I've never been in the playroom on the

5th

> floor, but perhaps if we let Dr. H. know about the group, he could

arrange

> for us to use the playroom if it's not too small...There's also a

small

> conference room up there. We could just bring our own toys, lunch,

etc.

>

> Also, across the street from Sinai is the house like a

Mc

> house. They probably have a playroom and/or meeting room they

might let us

> use, especially if it was a support group sanctioned by Dr. H.

They might

> even have some suggestions for other local places to meet.

>

> I think and I will still start a group here in Northern

Virginia for

> those parents who don't have internet or don't think to do

research on the

> internet until their child is 8 months old and facing surgery! or

there's a

> problem with treatment.

>

> My idea of people starting support groups was in response to the

realization

> that the vast majority of parents either don't have internet

access,

> wouldn't think to question their doctor, or won't think to do

research on

> their own until there's a problem with their treatment...

>

> Thanks for being willing to find a place for us to meet!

> Best, Joanne W.

>

> _________________________________________________________________

> FREE pop-up blocking with the new MSN Toolbar – get it now!

> http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/

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Hi Joanne,

Thanks for the suggestions! I will put them on my list of ideas :)

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 days left!)

Owen and 3/20/99

> Hi Marilouise,

>

> I think a support group for dr. H patients would be great. We're

only about

> an hour away, so it would be pretty easy for us to attend...

>

> Two ideas of where to meet: I've never been in the playroom on the

5th

> floor, but perhaps if we let Dr. H. know about the group, he could

arrange

> for us to use the playroom if it's not too small...There's also a

small

> conference room up there. We could just bring our own toys, lunch,

etc.

>

> Also, across the street from Sinai is the house like a

Mc

> house. They probably have a playroom and/or meeting room they

might let us

> use, especially if it was a support group sanctioned by Dr. H.

They might

> even have some suggestions for other local places to meet.

>

> I think and I will still start a group here in Northern

Virginia for

> those parents who don't have internet or don't think to do

research on the

> internet until their child is 8 months old and facing surgery! or

there's a

> problem with treatment.

>

> My idea of people starting support groups was in response to the

realization

> that the vast majority of parents either don't have internet

access,

> wouldn't think to question their doctor, or won't think to do

research on

> their own until there's a problem with their treatment...

>

> Thanks for being willing to find a place for us to meet!

> Best, Joanne W.

>

> _________________________________________________________________

> FREE pop-up blocking with the new MSN Toolbar – get it now!

> http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/

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  • 4 years later...

Bruce, I envy your connection with support groups in person. I have

not been able to find any lung support group in the Cincinnati area. I

moved here from IL in May 07 and have only met a few neighbors at HOA

meetings. My HOA has social gathers but I have not attended since I am

immune suppressed and going to a party in a house where people people

are attending is too risky for me especial during the holidays when

cold and flu germs are at such high levels.

Love and Aloha,

Judy (Ohio) IPF 11/06 TX 8/07

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Judy

There are none in the DFW area either. I'm driving 4 1/2 hours to go to

this one at least this once. So, 9 hours of driving for 1 1/2 hours of

meeting.....sounds silly but I look forward to it.

I've also found just meeting memeber to be very nice. I don't know who

is close to you but I'm sure someone that you could meet halfway for

lunch.

So far I've met Leanne in Chicago, several in Snyder TX at a fund

raiser, many more at the San gathering, MB in Durham, and three

here locally. Everyone of those experiences has been very nice. The

nearest support group I know to you is in fort, KY which is about

an hour and a half away.

I share your concern about larger groups. I will gather with small

groups of people who I know understand my condition and wouldn't expose

me. However, large groups this time of year, you just know someone will

be sick.

>

> Bruce, I envy your connection with support groups in person. I have

> not been able to find any lung support group in the Cincinnati area.

I

> moved here from IL in May 07 and have only met a few neighbors at HOA

> meetings. My HOA has social gathers but I have not attended since I

am

> immune suppressed and going to a party in a house where people people

> are attending is too risky for me especial during the holidays when

> cold and flu germs are at such high levels.

> Love and Aloha,

> Judy (Ohio) IPF 11/06 TX 8/07

>

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Judy

There are none in the DFW area either. I'm driving 4 1/2 hours to go to

this one at least this once. So, 9 hours of driving for 1 1/2 hours of

meeting.....sounds silly but I look forward to it.

I've also found just meeting memeber to be very nice. I don't know who

is close to you but I'm sure someone that you could meet halfway for

lunch.

So far I've met Leanne in Chicago, several in Snyder TX at a fund

raiser, many more at the San gathering, MB in Durham, and three

here locally. Everyone of those experiences has been very nice. The

nearest support group I know to you is in fort, KY which is about

an hour and a half away.

I share your concern about larger groups. I will gather with small

groups of people who I know understand my condition and wouldn't expose

me. However, large groups this time of year, you just know someone will

be sick.

>

> Bruce, I envy your connection with support groups in person. I have

> not been able to find any lung support group in the Cincinnati area.

I

> moved here from IL in May 07 and have only met a few neighbors at HOA

> meetings. My HOA has social gathers but I have not attended since I

am

> immune suppressed and going to a party in a house where people people

> are attending is too risky for me especial during the holidays when

> cold and flu germs are at such high levels.

> Love and Aloha,

> Judy (Ohio) IPF 11/06 TX 8/07

>

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Judy

There are none in the DFW area either. I'm driving 4 1/2 hours to go to

this one at least this once. So, 9 hours of driving for 1 1/2 hours of

meeting.....sounds silly but I look forward to it.

I've also found just meeting memeber to be very nice. I don't know who

is close to you but I'm sure someone that you could meet halfway for

lunch.

So far I've met Leanne in Chicago, several in Snyder TX at a fund

raiser, many more at the San gathering, MB in Durham, and three

here locally. Everyone of those experiences has been very nice. The

nearest support group I know to you is in fort, KY which is about

an hour and a half away.

I share your concern about larger groups. I will gather with small

groups of people who I know understand my condition and wouldn't expose

me. However, large groups this time of year, you just know someone will

be sick.

>

> Bruce, I envy your connection with support groups in person. I have

> not been able to find any lung support group in the Cincinnati area.

I

> moved here from IL in May 07 and have only met a few neighbors at HOA

> meetings. My HOA has social gathers but I have not attended since I

am

> immune suppressed and going to a party in a house where people people

> are attending is too risky for me especial during the holidays when

> cold and flu germs are at such high levels.

> Love and Aloha,

> Judy (Ohio) IPF 11/06 TX 8/07

>

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Bruce, Thank you for the info. I will certainly check out the

fort, KY group when the weather gets warmer. This monring it

was -6 here with windchills -20. So I am staying inside and warm.

Judy (Ohio) IPF 11/06 TX 8/07

> >

> > Bruce, I envy your connection with support groups in person. I

have

> > not been able to find any lung support group in the Cincinnati

area.

> I

> > moved here from IL in May 07 and have only met a few neighbors at

HOA

> > meetings. My HOA has social gathers but I have not attended

since I

> am

> > immune suppressed and going to a party in a house where people

people

> > are attending is too risky for me especial during the holidays

when

> > cold and flu germs are at such high levels.

> > Love and Aloha,

> > Judy (Ohio) IPF 11/06 TX 8/07

> >

>

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Bruce, Thank you for the info. I will certainly check out the

fort, KY group when the weather gets warmer. This monring it

was -6 here with windchills -20. So I am staying inside and warm.

Judy (Ohio) IPF 11/06 TX 8/07

> >

> > Bruce, I envy your connection with support groups in person. I

have

> > not been able to find any lung support group in the Cincinnati

area.

> I

> > moved here from IL in May 07 and have only met a few neighbors at

HOA

> > meetings. My HOA has social gathers but I have not attended

since I

> am

> > immune suppressed and going to a party in a house where people

people

> > are attending is too risky for me especial during the holidays

when

> > cold and flu germs are at such high levels.

> > Love and Aloha,

> > Judy (Ohio) IPF 11/06 TX 8/07

> >

>

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