Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 Help me find the information I need. What can I take to show the doctors that ... I don't know... Urso brings the bloods back to normal in PSC ... that I don't know... what else do I need to back me up going in? That HE can exist without ammonia levels being high?! What was Ivor's " plan " for what the protocol for watching a PSCer should be as per Chapman or whoever...I know I am asking a lot...but I feel like if I am going to do this...I better have my crap together. Slivka has his own ideas of how often the liver should be under surveillance and so far none of that has been followed with Noah. He has not had his liver looked at (ultrasound or the like) since diagnosis in May of '05. I am a shaking, sobbing mess over this. I don't know where to even begin. Don't think I am crazy. I just want to do the right thing. I did call Slivka's nurse...no return call yet. I may call Amy this afternoon, but honestly...I think I need to be more well-armed...or send Rob in to do it. Any other ideas? Quote Link to comment Share on other sites More sharing options...
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