Porphyrin Results and CFS - trying to figure this out...

[Guest guest]

I just got back my second porphryin test from the lab in france. The

first one I sent seemed to be a false negative since all values were

below the range. The one I just got back showed all in range except

Precoproporphyrin and Coproporphyrins I & III (cP). Pre was 10 on a

range of 5-9 (elevated by 1 point) and Co was 206 on a range of 80-200

(6 points elevated).

I have been trying to get to the bottom of what is causing my CFS like

illness. In March of 2006 (about a year ago, after unrelenting

stress), I got " sudden onset " CFS. Basically, I had been feeling run

down from my crazy job and then I had to have surgery and about 5

months after the surgery when I got back to my normal job schedule I

totally crashed. It happened in like 1 day. Didn't feel particularly

infectious (ie no fever, sore throat, etc..), just crashed...

My Dr. did a whole bunch of labs on me and it showed low normal

adrenals in the AM, but by PM very low... marginally low thyroid with

marginally elevated TSH (~3.6). They put me on a trial of synthroid,

which didn't help that much. Then a program to treat " adrenal

fatigue " which did help a bit, but they were mainly using adaptogens

so I don't know if it was enough. After 6 months of barely much

improvement, I had them retest me for a bunch of stuff.

My thyroid is now " normal " according to the labs, although some of my

T3 is getting shunted into ReverseT3, whatever that means. My

adrenals are " normal " at 8am, but still crash down as the day goes on

to be very low. I showed a moderately elevated titer to HHV6 which

they said indicated reactivation, and similar to mycoplasma pn. They

have recommended I try Valcyte, so I'm trying to decide on that.

My hair mercury was elevated at about 6 months post onset (3.88)

without evidence of mineral transport issues, and they found some

methyl mercury floating around in my blood which they said was typical

of people who eat fish. (Around the time this happened I ate sushi a

couple times a week). The blood mercury level has since subsided to

an undetectable level, and the unprovoked urine results (I wouldn't

let them do a challenge) were 4ug/day. I only have 4 very tiny

amalgams.

The reason I am writing is I am trying to figure out where this all

started and where it all ends. I don't think getting my amalgams out

would be a huge deal, but its a commitment and costs money. I am not

really sure what to make of the mercury in the hair and the porphryins

results since my " CFS " seems to be sudden onset, making me thing

something tipped me over the edge into an adrenal crash rather

suddenly. Most likely I am thinking a re-activation of one of the

infections.

I realize that in Amalgam Illness, Cutler says that mercury is at the

root of CFS many times. For the people on this list, did you guys get

gradually poisoned by mercury over time? Or did you have a sudden

onset with a reactivation of some infection? Did you go about treating

the infection first and then chelating later? Or if you started

chelating, did the infection go away on its own? What about adrenal

fatigue...

any help would be appreciated

thanks