Tina/Just Entering this group

[Guest guest]

Yes I had great results but we moved jan. 13 of this year and its been hell again. The docters keep telling me they can only do this 3times a year. I want them now. My pain is in the obturator internus muscle which is also connect the syatic nerve which then makes both legs ache like hell and which is not pleasurable. Where do you live? I am in littleton COTina millburytimes wrote: Hi Tina, I currently am having trigger point injections in the perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will be having more in a couple of weeks in different areas. Are you feeling any better from your injections? nne From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of TinaSent: Tuesday, March 04, 2008 5:53 PMTo: VulvarDisorders Subject: Just Entering this group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Yes I had great results but we moved jan. 13 of this year and its been hell again. The docters keep telling me they can only do this 3times a year. I want them now. My pain is in the obturator internus muscle which is also connect the syatic nerve which then makes both legs ache like hell and which is not pleasurable. Where do you live? I am in littleton COTina millburytimes wrote: Hi Tina, I currently am having trigger point injections in the perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will be having more in a couple of weeks in different areas. Are you feeling any better from your injections? nne From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of TinaSent: Tuesday, March 04, 2008 5:53 PMTo: VulvarDisorders Subject: Just Entering this group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I am in Boston. I am having the injections in the sit bones

area. Next time (in about ten days), I will take a permanent type of marker and

mark the spot before I leave for the doctor. I can spend a lot of time then

finding the exact areas. Otherwise, when I was there last time, I was in a lot

of pain, he was giving me Percocet and Valium and then having me poke the area

and he was poking the area, and them trying to mark the area with a pen, aiming

the needle, etc. etc., - all the time I was curled up in the fetal position on

the table. It reminded me of the clowns in the little car! LOL!!! I already had

an injection (ganglion of Impar block) done about six weeks ago. So I wonder

how much more I can have. We are going to do Botox also. I can’t possibly

wait a year to have these done again! I need them now!

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Tina Kohlman

Sent: Thursday, March 06, 2008 12:12 AM

To: VulvarDisorders

Subject: Re: Tina/Just Entering this group

Yes I had great results but we moved jan. 13 of this year and its been hell

again. The docters keep telling me they can only do this 3times a

year. I want them now. My pain is in the obturator internus muscle which

is also connect the syatic nerve which then makes both legs ache like hell and

which is not pleasurable. Where do you live? I am in littleton CO

Tina

millburytimes wrote:

Hi Tina, I currently am having trigger point injections in the

perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will

be having more in a couple of weeks in different areas. Are you feeling

any better from your injections?

nne

From: VulvarDisorders [mailto:VulvarDisorders ]

On Behalf Of Tina

Sent: Tuesday, March 04, 2008 5:53 PM

To: VulvarDisorders

Subject: Just Entering this group

Hi everyone My name is Tina and have chronic pelvic floor

issues going

on. I am now doing injections of the internous muscle. The numbing

stuff works for 6 hours and steroids (sp) work for a while. Is anyone

experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo

your homepage.

[Guest guest]

I want to do the botox also but my insurance won't pay for it and the only place that I have found is AZ and the vials are 500.00 each. The injections I'm doing now are 175.oo I am going in today for the 3rd time which havent worked if they would do a steroid maybe I feel like i am wasting my money on the numbing stuff. This disease can be very expensive and can go to the poor house. Does your insurance cover botox? And where are you going to have this done?millburytimes wrote: I am in Boston. I am having the injections in the sit bones area. Next time (in about ten days), I will take a permanent type of marker and mark the spot before I leave for the doctor. I can spend a lot of time then finding the exact areas. Otherwise, when I was there last time, I was in a lot of pain, he was giving me Percocet and Valium and then having me poke the area and he was poking the area, and them trying to mark the area with a pen, aiming the needle, etc. etc., - all the time I was curled up in the fetal position on the table. It reminded me of the clowns in the little car! LOL!!! I already had an injection (ganglion of Impar block) done about six weeks ago. So I wonder how much more I can have. We are going to do Botox also. I can’t possibly wait a year to have these done again! I need them now! nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Tina KohlmanSent: Thursday, March 06, 2008 12:12 AMTo: VulvarDisorders Subject: Re: Tina/Just Entering this

group Yes I had great results but we moved jan. 13 of this year and its been hell again. The docters keep telling me they can only do this 3times a year. I want them now. My pain is in the obturator internus muscle which is also connect the syatic nerve which then makes both legs ache like hell and which is not pleasurable. Where do you live? I am in littleton COTina millburytimes <millburytimes (AT) verizon (DOT) net> wrote: Hi Tina, I currently am having trigger point injections in the perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will be having more in a

couple of weeks in different areas. Are you feeling any better from your injections? nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of TinaSent: Tuesday, March 04, 2008 5:53 PMTo: VulvarDisorders Subject: Just Entering this group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for

6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Marinne, wow that sounds to cheap to be true. would you trust that stuff? I would buy it if it was the real thing. With that stuff you have to be really careful don't you think? I am so scared to do that. I called the person in AZ and she said your there for 6 hours. 2 to get prepared, 2 hours in the operating room cause they go through the alcox cannal with a needle stopping taking pictures to get really close to the pudenal nerve then you have 2 hours to see if has stopped the pain. The nurse also said on one women it didn't work so I guess that the chance we have to take and I also asked her if they gave any drugs while this procedure and she said NO> they want you to tell them if it works and it also hurts. God we are dammed already hahaha When I go get the stroids in my pelvic he gives me pain meds and I can still tell him that Yes that muscle hurts like HELL Loves>Tina millburytimes

wrote: I don‘t know yet if my insurance covers it or not. I know one woman who was quoted $600.00 for it. But there are a lot of doctors that will do it besides AZ. My pain management doctor will do it and he is in New Hampshire. And I know of a woman in California who was going to have it done by her doctor – don’t know yet if she has had it done yet – I need to call her. And I do know of a woman who had a

prescription for the Botox. She had to get it from the pharmacy herself and take the vial to her doctor. She went to Target – was all prepared to pay the $600 and because of how the doctor wrote the prescription, she only had to pay $3.10. She was in shock and so was the pharmacist. The doctor wrote Dx: dystonia" on the script. Her insurance is Medicare Part D through AARP and Medicaid. She had the injection done yesterday, so I am very anxious to hear how she did. Allergan, the manufacturer of the Botox used for these kinds of procedures, has a patient assistance program for people who are financially challenged, so if you are in that situation you can call them. Also, Medicaid will pay $300 of the $600 for Botox. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Tina KohlmanSent: Thursday, March 06, 2008 11:59 AMTo: VulvarDisorders Subject: Re: Tina/Just Entering this group I want to do the botox also but my insurance won't pay for it and the only place that I have

found is AZ and the vials are 500.00 each. The injections I'm doing now are 175.oo I am going in today for the 3rd time which havent worked if they would do a steroid maybe I feel like i am wasting my money on the numbing stuff. This disease can be very expensive and can go to the poor house. Does your insurance cover botox? And where are you going to have this done?andmillburytimes <millburytimes (AT) verizon (DOT) net> wrote: I am in Boston. I am having the injections in the sit bones area. Next time (in about ten days), I will take a permanent type of marker and mark the spot before I leave for the doctor. I can spend a lot of time then finding the exact areas. Otherwise,

when I was there last time, I was in a lot of pain, he was giving me Percocet and Valium and then having me poke the area and he was poking the area, and them trying to mark the area with a pen, aiming the needle, etc. etc., - all the time I was curled up in the fetal position on the table. It reminded me of the clowns in the little car! LOL!!! I already had an injection (ganglion of Impar block) done about six weeks ago. So I wonder how much more I can have. We are going to do Botox also. I can’t possibly wait a year to have these done again! I need them now! nne From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of Tina KohlmanSent: Thursday, March 06, 2008 12:12 AMTo: VulvarDisorders Subject: Re: Tina/Just Entering this group Yes I had great results but we moved jan. 13 of this year and its been hell again. The docters keep telling me they can only do this 3times a year. I want them now. My pain is in the obturator internus muscle which is also connect the syatic nerve which then makes both legs ache like hell and which is not pleasurable. Where do you live? I am in littleton COTina millburytimes <millburytimes (AT) verizon (DOT) net> wrote: Hi Tina, I currently am having trigger point injections in the perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will be having more in a couple of weeks in different areas. Are you feeling any better from your injections? nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of TinaSent: Tuesday, March 04, 2008 5:53 PMTo: VulvarDisorders Subject: Just Entering this

group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Marinne, wow that sounds to cheap to be true. would you trust that stuff? I would buy it if it was the real thing. With that stuff you have to be really careful don't you think? I am so scared to do that. I called the person in AZ and she said your there for 6 hours. 2 to get prepared, 2 hours in the operating room cause they go through the alcox cannal with a needle stopping taking pictures to get really close to the pudenal nerve then you have 2 hours to see if has stopped the pain. The nurse also said on one women it didn't work so I guess that the chance we have to take and I also asked her if they gave any drugs while this procedure and she said NO> they want you to tell them if it works and it also hurts. God we are dammed already hahaha When I go get the stroids in my pelvic he gives me pain meds and I can still tell him that Yes that muscle hurts like HELL Loves>Tina millburytimes

wrote: I don‘t know yet if my insurance covers it or not. I know one woman who was quoted $600.00 for it. But there are a lot of doctors that will do it besides AZ. My pain management doctor will do it and he is in New Hampshire. And I know of a woman in California who was going to have it done by her doctor – don’t know yet if she has had it done yet – I need to call her. And I do know of a woman who had a

prescription for the Botox. She had to get it from the pharmacy herself and take the vial to her doctor. She went to Target – was all prepared to pay the $600 and because of how the doctor wrote the prescription, she only had to pay $3.10. She was in shock and so was the pharmacist. The doctor wrote Dx: dystonia" on the script. Her insurance is Medicare Part D through AARP and Medicaid. She had the injection done yesterday, so I am very anxious to hear how she did. Allergan, the manufacturer of the Botox used for these kinds of procedures, has a patient assistance program for people who are financially challenged, so if you are in that situation you can call them. Also, Medicaid will pay $300 of the $600 for Botox. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Tina KohlmanSent: Thursday, March 06, 2008 11:59 AMTo: VulvarDisorders Subject: Re: Tina/Just Entering this group I want to do the botox also but my insurance won't pay for it and the only place that I have

found is AZ and the vials are 500.00 each. The injections I'm doing now are 175.oo I am going in today for the 3rd time which havent worked if they would do a steroid maybe I feel like i am wasting my money on the numbing stuff. This disease can be very expensive and can go to the poor house. Does your insurance cover botox? And where are you going to have this done?andmillburytimes <millburytimes (AT) verizon (DOT) net> wrote: I am in Boston. I am having the injections in the sit bones area. Next time (in about ten days), I will take a permanent type of marker and mark the spot before I leave for the doctor. I can spend a lot of time then finding the exact areas. Otherwise,

when I was there last time, I was in a lot of pain, he was giving me Percocet and Valium and then having me poke the area and he was poking the area, and them trying to mark the area with a pen, aiming the needle, etc. etc., - all the time I was curled up in the fetal position on the table. It reminded me of the clowns in the little car! LOL!!! I already had an injection (ganglion of Impar block) done about six weeks ago. So I wonder how much more I can have. We are going to do Botox also. I can’t possibly wait a year to have these done again! I need them now! nne From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of Tina KohlmanSent: Thursday, March 06, 2008 12:12 AMTo: VulvarDisorders Subject: Re: Tina/Just Entering this group Yes I had great results but we moved jan. 13 of this year and its been hell again. The docters keep telling me they can only do this 3times a year. I want them now. My pain is in the obturator internus muscle which is also connect the syatic nerve which then makes both legs ache like hell and which is not pleasurable. Where do you live? I am in littleton COTina millburytimes <millburytimes (AT) verizon (DOT) net> wrote: Hi Tina, I currently am having trigger point injections in the perineum/vaginal area. Mine (the steroids) have lasted for a month now. I will be having more in a couple of weeks in different areas. Are you feeling any better from your injections? nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of TinaSent: Tuesday, March 04, 2008 5:53 PMTo: VulvarDisorders Subject: Just Entering this

group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Tina, what doctor do you see? I saw Slocumb at CU and Agguire at Colorado Urogyn As. and a lady doc in boulder whose name I can't remember but she wrote a book about Yoga and IC. The PTs I saw were Christy Sanger, Stacey Tuckwell, Margaret Woodward, and Dawn Sandalcidi. (Don't bother with any of them) I did meet a PT, though named Terry Nishimoto, who I think really knows her stuff. She is at the Denver Athletic Club. She has studied with Prendergast (The PT who saved my life).

I received a nerve block from Dr. Slocumb. He administered it wrong (through the vagina) and I had to pay him cash and wait until the end of the day (very weird). But in any case, it worked, thank God and I have not needed another. This was my second. The first was given by Dr. Weiss in San Francisco.

love, Molly

Just Entering this group

Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Tina, what doctor do you see? I saw Slocumb at CU and Agguire at Colorado Urogyn As. and a lady doc in boulder whose name I can't remember but she wrote a book about Yoga and IC. The PTs I saw were Christy Sanger, Stacey Tuckwell, Margaret Woodward, and Dawn Sandalcidi. (Don't bother with any of them) I did meet a PT, though named Terry Nishimoto, who I think really knows her stuff. She is at the Denver Athletic Club. She has studied with Prendergast (The PT who saved my life).

I received a nerve block from Dr. Slocumb. He administered it wrong (through the vagina) and I had to pay him cash and wait until the end of the day (very weird). But in any case, it worked, thank God and I have not needed another. This was my second. The first was given by Dr. Weiss in San Francisco.

love, Molly

Just Entering this group

Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I did when I was so sick. I only went once, but it was nice to finally be diagnosed correctly with pudendal neuralgia. It was also great to finally see an excellent PT. is the best. When she worked on me it became crystal clear that all the PTs up until that point were substandard. Thankfully, my husband has a gift fot PT and between he and I, I had PT once or twice a day for a year. I am now well.

I think it is definitely worth it to spend the money to see a good PT at least one time. So you know to what standard of care you are striving. I saw four times while I was there for a week. Something that I have noticed about the good PTs ( and Rhonda in Chicago) is that they don't waste much time evaluating. It seemed like all Dawn did was evaluate.

I live in Glenwood Springs.

love, Molly

Just Entering this group

Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I did when I was so sick. I only went once, but it was nice to finally be diagnosed correctly with pudendal neuralgia. It was also great to finally see an excellent PT. is the best. When she worked on me it became crystal clear that all the PTs up until that point were substandard. Thankfully, my husband has a gift fot PT and between he and I, I had PT once or twice a day for a year. I am now well.

I think it is definitely worth it to spend the money to see a good PT at least one time. So you know to what standard of care you are striving. I saw four times while I was there for a week. Something that I have noticed about the good PTs ( and Rhonda in Chicago) is that they don't waste much time evaluating. It seemed like all Dawn did was evaluate.

I live in Glenwood Springs.

love, Molly

Just Entering this group

Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks

Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Molly, you flew all the way there? wow I want a cure from this you should call me cause I will do anything Just see my credit card- to get rid of this. Are you pain free now? I would love to have there #. My cell # is call me. My marriage is falling apart and have just my family to depend on he still lives here but don't know for how long. Loves>Tina molly ring wrote: I did when I was so sick. I only went once, but it was nice to finally be diagnosed correctly with pudendal neuralgia. It was also great to finally see an excellent PT. is the best. When she worked on me it became crystal clear that all the PTs up until that point were substandard. Thankfully, my husband has a gift fot PT and between he and I, I had PT once or twice a day for a year. I am now well. I think it is definitely worth it to spend the money to see a good PT at least one time. So you know to what standard of care you are striving. I saw four times while I was there for a week. Something that I have noticed about the good PTs

( and Rhonda in Chicago) is that they don't waste much time evaluating. It seemed like all Dawn did was evaluate. I live in Glenwood Springs. love, Molly Just Entering this group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Molly, you flew all the way there? wow I want a cure from this you should call me cause I will do anything Just see my credit card- to get rid of this. Are you pain free now? I would love to have there #. My cell # is call me. My marriage is falling apart and have just my family to depend on he still lives here but don't know for how long. Loves>Tina molly ring wrote: I did when I was so sick. I only went once, but it was nice to finally be diagnosed correctly with pudendal neuralgia. It was also great to finally see an excellent PT. is the best. When she worked on me it became crystal clear that all the PTs up until that point were substandard. Thankfully, my husband has a gift fot PT and between he and I, I had PT once or twice a day for a year. I am now well. I think it is definitely worth it to spend the money to see a good PT at least one time. So you know to what standard of care you are striving. I saw four times while I was there for a week. Something that I have noticed about the good PTs

( and Rhonda in Chicago) is that they don't waste much time evaluating. It seemed like all Dawn did was evaluate. I live in Glenwood Springs. love, Molly Just Entering this group Hi everyone My name is Tina and have chronic pelvic floor issues going on. I am now doing injections of the internous muscle. The numbing stuff works for 6 hours and steroids (sp) work for a while. Is anyone experienced injections I live in Littleton colorado thanks Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.