Vulvodynia/PN/LS/Nerve blocks/EMG testing

[Guest guest]

This must be my night to get caught up with

all my vulvar topics.

I also have LS diagnosed by Dr.

in MA (she wrote the “V”

book). I have had it about a year. I recently went to see her before I had my

vestibulectomy to see if there were still signs of it – which there were.

I mentioned it to Dr. Conway

who did my surgery, and he said that he found that all his patients that had LS

and had a vestibulectomy had a remission of the LS. He said he did not want to

say they were cured, but they have been in remission for a long time. I guess

we will wait and see what happens to me.

I am just getting caught up in my posts,

which is why I am posting so much today, but I wanted to congratulate all of the

women who I recently read mention that they were going to see Dr. Conway in NH.

He is a wonderful doctor and the only one in the US

who performs the TIR approach of Pudendal surgery taught by Dr. Bautrant

in France.

You couldn’t be going to a more knowledgeable doctor in woman’s

vulvar issues. In addition, he has a winning, fun personality! Here is bio   http://www.stjosephhospital.com/medicalsvc/painmgt.php

 and just by reading it you can see what I mean. He has women all over the

country come and see him and he also does phone consultants. I just saw him on

Friday for my checkout visit. After surgery, all patients have to stay in a

hotel within three miles of the hospital for seven days before you can go home.

 I am very happy to be home recuperating.

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On

Behalf Of mindy_4711

Sent: Sunday, September 02, 2007 12:00 PM

To:

VulvarDisorders

Subject: Re: clitorodynia

& LP - Melinda

Hi Chelle,

I don't post very often on this group anymore because I,

like Melinda, have LP and I am mostly

on Dee's

LS/LP group. There is also an LP group that is not owned by Dee that Melinda and I are a part of. Anyway, I wondered

for months what was wrong with me. That alone is so disrupting to your

life and your emotions. I went to a number of doctors trying to find

someone to help me and give me answers and also someone to LISTEN to me and not

DISMIS what I was saying. I was diagnosed with " vulvodynia, yeast,

BV, etc. " I had persistent burning, itching, inflammation and

purplish spots on my vulvar area. Occasionally, I will get whitish areas

that go away when I up the steroids for a few days. I finally found

a OB/GYN that listened to me and tried different things to help me, even

biopsy. She still could not figure out what was going on and referred me

to Dr.

in Mass.

She is the one who has diagnosed me with LP. I use ultravate, emu oil,

OCCASIONAL Estrace and what has halped me significantly recently is switching

from Neurontin to Lyrica for the nerve ending pain associatiated with LP.

Now, I have involvement in my mouth, which is something else a woman should

keep track of if she is having symptoms similar to genital LP.

Mindy (oh, and congrat's on the wonderful job a

moderator!)

> Hey Melinda, if you get a spare

moment would you write in and explain a little more about Lichen Planus

(especially symptoms). I know Dee

has the LS/LP group, but I think it would be good for us to stay updated here

too. Is it hard to diagnose? Thanks so much, ~Chelle

>

[Guest guest]

nne,

I am SO happy to hear from you! For some reason, I've been bouncing the

Happy Pelvis posts, so I'm glad you are posting on here again. I've

been thinking of you often...and my PT wants to know how you are

recovering=) She is very interested in Dr. Conway's work and hearing

more about it.

Melinda

[Guest guest]

nne,

I am SO happy to hear from you! For some reason, I've been bouncing the

Happy Pelvis posts, so I'm glad you are posting on here again. I've

been thinking of you often...and my PT wants to know how you are

recovering=) She is very interested in Dr. Conway's work and hearing

more about it.

Melinda