Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 jon wanted me to post for those of you who know us.. today jon and i went to our hemo. appt.. the dr. saw me, said.. we have some answers.. i didn't like the sound of it,, and soon we found out i was right. jon has what is called mds. myelodysplastic syndrome. other wise known as pre leukemia something or other.. its not cancer yet,, but left untreated or if the treatment doesn't work,, it can lead to leukemia. he will start chemo next week probably,, there are some factors yet not known , when they are in, the drs. will decide which form of chemo they will do. they are talking about using a pill,, or at last resort, there is a regime of 7 straight days of it a month. he is no longer able to have a lung transplant,, because of the bone marrow,, and not able to have a bone marrow transplant because of the lungs. so basically, its just a toss of the coin.. which disease will he die from?? we are naturally taking this hard,, our children are as well,, just when things were starting to look up,, once again we are hit down. we will try to keep breathing , but its not easy right now at all......... ((((hugs)))) teri jon ipf 5-06 mds 1-09 Quote Link to comment Share on other sites More sharing options...
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