Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 , I had a rough time when I was first told I had PSC. Then I had a revelation that even if they find a cure for PSC tomorrow at some point I will still die. Death is inevitable for everyone, we all just take a different path to get there. I know that sounds negative but for me it wasn't. Now if I catch myself spinning off into a time of worry, panic or concern. I just stop, take a deep breath and remind myself that if I died tomorrow I would wish that I spent this time today doing something I enjoy or trying something new. So now that's exactly what I try to do. When I am gone I think the best thing people could say about me would be.....She may have had good days and bad days with her health but no matter what she always tried to have fun or learn something. I know some days you are just too sick to find anything fun in them but you can always take time to learn about your strength, ability to persevere, the wonders of medical science or about the unwavering love your family and friends have for you. I guess for me it took five or six months to adjust to this new lifestyle. In time you will find what you need. You'll be able to find the method that works for you to balance the fear of death with amazing moments of living. Darcy, 34 PSC 03/07 The other issue is that I am scared to death, literally scared of death, I don't feel like my chances are very good, because I have so many strikes against me. I am sad and wondering how long after diagnosis it took some of you to be ok, you know, mentally.... .. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Darcy, I totally agree with you. No one knows when our time to die is yet we all think that we have some control over it. My dad who had a brain tumor a couple of years ago came through surgery with no complications. But 3 weeks ago he came down with some strange virus that the docs cannot pin point and it infected his brain and we almost lost him. He just got out of ICU. Over time it does get easier to put it in perspective, not always easy to keep it there. But it does get easier. I laughed the other day when I was waiting in line to rent a car, the person in front of me was irate over having to wait in line and was making a big scene complaining about the wait. When he turned to me and said loudly can you believe we have to wait an hour just to rent a car. I could not help myself and replied I'm waiting for a liver transplant, so waiting for a car for an hour is no big deal! Needless to say he turned around and we never heard a peep out of him again. PSC 5/07 Listed -- In , Darcy Melzer wrote: > > , > > I had a rough time when I was first told I had PSC. Then I had a revelation that even if they find a cure for PSC tomorrow at some point I will still die. Death is inevitable for everyone, we all just take a different path to get there. I know that sounds negative but for me it wasn't. Now if I catch myself spinning off into a time of worry, panic or concern. I just stop, take a deep breath and remind myself that if I died tomorrow I would wish that I spent this time today doing something I enjoy or trying something new. So now that's exactly what I try to do. > > When I am gone I think the best thing people could say about me would be.....She may have had good days and bad days with her health but no matter what she always tried to have fun or learn something. I know some days you are just too sick to find anything fun in them but you can always take time to learn about your strength, ability to persevere, the wonders of medical science or about the unwavering love your family and friends have for you. > > I guess for me it took five or six months to adjust to this new lifestyle. In time you will find what you need. You'll be able to find the method that works for you to balance the fear of death with amazing moments of living. > > Darcy, 34 > PSC 03/07 > > > > The other issue is that I am scared to death, literally scared of death, I don't feel like my chances are very good, because I have so many strikes against me. I am sad and wondering how long after diagnosis it took some of you to be ok, you know, mentally.... .. > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Darcy, I totally agree with you. No one knows when our time to die is yet we all think that we have some control over it. My dad who had a brain tumor a couple of years ago came through surgery with no complications. But 3 weeks ago he came down with some strange virus that the docs cannot pin point and it infected his brain and we almost lost him. He just got out of ICU. Over time it does get easier to put it in perspective, not always easy to keep it there. But it does get easier. I laughed the other day when I was waiting in line to rent a car, the person in front of me was irate over having to wait in line and was making a big scene complaining about the wait. When he turned to me and said loudly can you believe we have to wait an hour just to rent a car. I could not help myself and replied I'm waiting for a liver transplant, so waiting for a car for an hour is no big deal! Needless to say he turned around and we never heard a peep out of him again. PSC 5/07 Listed -- In , Darcy Melzer wrote: > > , > > I had a rough time when I was first told I had PSC. Then I had a revelation that even if they find a cure for PSC tomorrow at some point I will still die. Death is inevitable for everyone, we all just take a different path to get there. I know that sounds negative but for me it wasn't. Now if I catch myself spinning off into a time of worry, panic or concern. I just stop, take a deep breath and remind myself that if I died tomorrow I would wish that I spent this time today doing something I enjoy or trying something new. So now that's exactly what I try to do. > > When I am gone I think the best thing people could say about me would be.....She may have had good days and bad days with her health but no matter what she always tried to have fun or learn something. I know some days you are just too sick to find anything fun in them but you can always take time to learn about your strength, ability to persevere, the wonders of medical science or about the unwavering love your family and friends have for you. > > I guess for me it took five or six months to adjust to this new lifestyle. In time you will find what you need. You'll be able to find the method that works for you to balance the fear of death with amazing moments of living. > > Darcy, 34 > PSC 03/07 > > > > The other issue is that I am scared to death, literally scared of death, I don't feel like my chances are very good, because I have so many strikes against me. I am sad and wondering how long after diagnosis it took some of you to be ok, you know, mentally.... .. > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Darcy, I totally agree with you. No one knows when our time to die is yet we all think that we have some control over it. My dad who had a brain tumor a couple of years ago came through surgery with no complications. But 3 weeks ago he came down with some strange virus that the docs cannot pin point and it infected his brain and we almost lost him. He just got out of ICU. Over time it does get easier to put it in perspective, not always easy to keep it there. But it does get easier. I laughed the other day when I was waiting in line to rent a car, the person in front of me was irate over having to wait in line and was making a big scene complaining about the wait. When he turned to me and said loudly can you believe we have to wait an hour just to rent a car. I could not help myself and replied I'm waiting for a liver transplant, so waiting for a car for an hour is no big deal! Needless to say he turned around and we never heard a peep out of him again. PSC 5/07 Listed -- In , Darcy Melzer wrote: > > , > > I had a rough time when I was first told I had PSC. Then I had a revelation that even if they find a cure for PSC tomorrow at some point I will still die. Death is inevitable for everyone, we all just take a different path to get there. I know that sounds negative but for me it wasn't. Now if I catch myself spinning off into a time of worry, panic or concern. I just stop, take a deep breath and remind myself that if I died tomorrow I would wish that I spent this time today doing something I enjoy or trying something new. So now that's exactly what I try to do. > > When I am gone I think the best thing people could say about me would be.....She may have had good days and bad days with her health but no matter what she always tried to have fun or learn something. I know some days you are just too sick to find anything fun in them but you can always take time to learn about your strength, ability to persevere, the wonders of medical science or about the unwavering love your family and friends have for you. > > I guess for me it took five or six months to adjust to this new lifestyle. In time you will find what you need. You'll be able to find the method that works for you to balance the fear of death with amazing moments of living. > > Darcy, 34 > PSC 03/07 > > > > The other issue is that I am scared to death, literally scared of death, I don't feel like my chances are very good, because I have so many strikes against me. I am sad and wondering how long after diagnosis it took some of you to be ok, you know, mentally.... .. > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 wrote: “When he turned to me and said loudly can you believe we have to wait an hour just to rent a car. I could not help myself and replied I'm waiting for a liver transplant, so waiting for a car for an hour is no big deal!” That is so funny, and how true! My husband has PSC and Indeterminate colitis and we are now expecting our first child. It is amazing how these things just put life into a different perspective. I find myself laughing at people that are rushing around life with such impatience. How they get frustrated over the slightest thing. Everything pales in comparison to major illnesses but, even with PSC, we are so richly blessed. We aren’t willing to let life just pass us by. , I pray that your humor stays with you during your waiting period! Blessings to all for this journey through life, Jeannie Denney Cincinnati, OH Wife to Nick Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.