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Hello,

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SEND POST TO: fibromyalgia-cfs

Would you share any or all of the things below? Your answer might just be a help

to someone else in some areas. If you answer any of these questions please make

a double space ( enter twice) between them so they will not all run together.

Age range: 56

Male/female: female

What are the symptoms? - I have muacle pain & sometimes joint pain in

differents parts of my body at different times which, because of medication

don't bother me most of the time any more. But then there are days which are

much worse and the pain can't be masked by the medication. After breaking my

wrist, pain settled there as well. Some of the areas of muscle pain, my doctor

says are most strange.

Has you illness been diagnosed? - Yes

How long was it that you suffered before you found out what was wrong? - Not

long. Although it took my doctor longer to believe that I knew what I was

talking about.

If Fibto-CFS How long have you been suffering with it? - Maybe 4 years or

longer

Is there a time that you can remember when it started? - No, but I remember the

pain.

Some of us have found lack of exercise we are overweight. Have you found this to

be a problem also? - I AM overweight and find it difficult to exercise, as I

have a muscular dystrophy, which makes exercising a real problem. I'm in a Catch

22.

Are you on disability? - Yes

If you are any pointers for others trying to get on disability? - It was really

the muscular dystrophy that enabled me to get disability. I think the

fibromyalgia factor also entered into it, as both diseases cause fatigue.

What have you found that helps ease the pain, warm baths, medications etc.? -

Definitely medication. I am looking for natural herbs that could replace my

prescription drug. I thought I had found one and tried getting off my

prescription med. I had forgotten how excrutiating the pain was before the drug

and got right back on it.

Do you have sleep problems? How do you deal with it? - No. My medication works

wonders.

Do you have family that understands your illness? - Yes

Some have found certain foods causes problems with CFS or Fibor, have you? -

No, but it certainly may be a possibility. - What I wonder about is the

possibility of a compromised immune system being the right setting for the

disease. I have read that researchers are looking into this.

What type of Dr. have you found that has helped you the most? - my regular

primary care physician

If you want to leave a bio you may go to the groups page at www.yahoogroups,com

log in to the file area and make a folder. There you can leave a picture of

yourself, be sure to click to notify the list. You can also leave a bio by

making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs

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