Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Welcome to Hello, Welcome to the E-mail list. SEND POST TO: fibromyalgia-cfs Would you share any or all of the things below? Your answer might just be a help to someone else in some areas. If you answer any of these questions please make a double space ( enter twice) between them so they will not all run together. Age range: 56 Male/female: female What are the symptoms? - I have muacle pain & sometimes joint pain in differents parts of my body at different times which, because of medication don't bother me most of the time any more. But then there are days which are much worse and the pain can't be masked by the medication. After breaking my wrist, pain settled there as well. Some of the areas of muscle pain, my doctor says are most strange. Has you illness been diagnosed? - Yes How long was it that you suffered before you found out what was wrong? - Not long. Although it took my doctor longer to believe that I knew what I was talking about. If Fibto-CFS How long have you been suffering with it? - Maybe 4 years or longer Is there a time that you can remember when it started? - No, but I remember the pain. Some of us have found lack of exercise we are overweight. Have you found this to be a problem also? - I AM overweight and find it difficult to exercise, as I have a muscular dystrophy, which makes exercising a real problem. I'm in a Catch 22. Are you on disability? - Yes If you are any pointers for others trying to get on disability? - It was really the muscular dystrophy that enabled me to get disability. I think the fibromyalgia factor also entered into it, as both diseases cause fatigue. What have you found that helps ease the pain, warm baths, medications etc.? - Definitely medication. I am looking for natural herbs that could replace my prescription drug. I thought I had found one and tried getting off my prescription med. I had forgotten how excrutiating the pain was before the drug and got right back on it. Do you have sleep problems? How do you deal with it? - No. My medication works wonders. Do you have family that understands your illness? - Yes Some have found certain foods causes problems with CFS or Fibor, have you? - No, but it certainly may be a possibility. - What I wonder about is the possibility of a compromised immune system being the right setting for the disease. I have read that researchers are looking into this. What type of Dr. have you found that has helped you the most? - my regular primary care physician If you want to leave a bio you may go to the groups page at www.yahoogroups,com log in to the file area and make a folder. There you can leave a picture of yourself, be sure to click to notify the list. You can also leave a bio by making text file then bio.txt Post are in text only not html codes. SEND POST TO: fibromyalgia-cfs Quote Link to comment Share on other sites More sharing options...
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