RE: Re: Interesting Transplant Video presentation/ 4 stories

[Guest guest]

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But I think there is a crucial message here for everyone waiting

for transplant -- Wait as long as you can.

You may very well be

right, except……… *IF*

Ken had turned down the liver he was offered, and waited until later

when he was much sicker, he most probably wouldn’t have survived all the

complications he had. Of course we’ll

never know if those same complications would have happened if he had waited,

but they still would have removed his spleen and put him on Prograf, so I believe

they would have occurred anyway. Plus,

in Ken’s case he has a rare blood type, so if he had waited, he

might not have gotten an AB liver in time. No one in our family places any blame on

doctors, the donors or any decision we and they made, sadly s^*~ just happens. Even with all of the problems Ken has, we still believe everyone did the very best they could do,

that’s why we don’t like the direction this article was written.

Truth be told,

everyone with PSC (and actually those needing any transplant) walks a tightrope

and looking back with 20/20 hindsight doesn’t help answer any questions

we’re left with.

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas