Cholangiocarcinoma ? Please Help

[Guest guest]

hI,

mY HUSBAND HAS uc and PSC. On a routine assessment this week, The CT

scan picked up something which could be an intrahepatic infiltrating

cholangiocarcinoma. We are petrified. Hubby is having a MRI and PET on

Wed and an ERCP on thurs. Please pray for good news. We have

just 'accepted' PSC. He ahs all the symptoms in the book and we have

been struggling. He is only 36 years old and we have a very young

family (son 2 yrs old and daughter 5 ).We live in sydney, Oz and were

told that if he does have CC, they would not transplant him...

Robbie incidentally has Ca 19-9 level of 157.

thanks,

Pam