Thanks for the support - Request info. on Mayo

[Guest guest]

Thanks for all the support.If hubby does come up + with

cholangiocarcinoma, it looks like we will not get much help here in

Sydney. Have heard of Mayo in the US, but considering our insurance

will not apply, does anybody know what kind of money we are talking for

treatment/transplant etc? Would like to be prepared and work out if we

can manage it with the help of our parents.Also, which is the best

centre of Mayo, and the best specialist.

My biggest worry is that if it does come +, All our docs will wash

their hands off us. We have spoken to the transplant team, who has

communicated as much to us, and all the specialists we have been in

contact with due to PSC, they say 'Unfortunately, no one can help'...

I need to work out what to do next...

Please pray the cholangiocarcinoma tests come up negative...

Pam