Re: My Misunderstood Post.......

January 28, 2002

--- MomFurman@... wrote:

> Dear Ms. Positive Thinker:

>

> I thought that the purpose of a Support group

> was so that you could talk

> about the PAIN, the sore butthole, the night

> cramps, the dry eyes that feels

> like someone tried to sand them out with coarse

> grit sandpaper.

>

> I thought the support group was there to listen

> to you cry about not being

> unable to stand long enough to get thru a long

> check out line at the store,

> or not being able to sit up long enough to go

> to the movies with your family.

>

> I thought the support group was there to hear

> and understand when you are so

> upset that when you took your kids to Disney

> World and they had to push you

> around in a wheelchair because your hips and

> ankles were so red and swollen

> that if you took one more step you knew you

> would die on the spot.

>

> I thought that this support group was here so

> that when we have to attend our

> little brothers funeral, (because he too had

> fibro and no relief from the

> pain. And no support group. He thought that it

> would be easier to eat his

> gun than it would be to live with this Shitty

> hand that he have been dealt)

> and was unable to kneel during the church

> service because your left knee hurt

> like someone had a burning steel rod jammed

> inside it, and the reason you

> needed help to the car was not only because you

> were so upset over the tragic

> event that had occurred, but you could no

> longer walk that day.

>

> This group has been there for me during all the

> events above. I read about

> every bump, ache, sore asshole, head ache, back

> pain and limp that someone

> writes, Why do I do that..... Well, because

> someone did it for me, and then

> they took the time to write back and tell me

> where I could get some relief

> for the pain, or they just said " I

> UNDERSTAND, and I am praying for you "

> That my friend is support. Don't come in here

> telling us that we need to be

> POSITIVE and stop frightening the newbie's with

> our pain. If the NEWBIES

> didn't have the same damn pain they would not

> have come in here for support

> to begin with. I want to hear about Serena's

> bad day ... you know why,

> because I want to be able to tell her that I

> UNDERSTAND HER PAIN and I want

> to tell her that it may be better tomorrow, but

> if it isn't I WILL STILL

> UNDERSTAND HER PAIN. It is all about

> validation, it is called SUPPORT, and

> if that isn't what you want to do then go away

> ... we don't need ya.

>

> Joan W. Furman

> Hilliard, Ohio

>

> [Non-text portions of this message have been

> removed]

>

I just wanted to know why your asshole is

sore......just what have you been doing? Now,

before this starts a war, I'm kidding! My butt

gets sore, but after 28 years, I can say my

rectum dosn't hurt. But, do you ever get the

pain deep in your butt cheek. Ugh, I hate that!

Joanne

P.S. I didn't read the letter from the person

who pissed everyone off, but as my fibro is in

remission, there is one thing I read that I

agreed with. When my pain was excrutiating

(1974-1990), I thought about it non stop. I

tried not to, and sometimes I don't read all the

letters about pain because I don't want it to

come back, so maybe it's not good to talk and

read about it all the time. One time, my worst

attack, I remember waking up in the morning and

for the first ten seconds I couldn't feel any

pain. Then, all those musceles knoted up like a

rope. I have to say that when it was so bad, I

really couldn't think of anything else,so I think

that person really didn't have it.

__________________________________________________

January 28, 2002

--- MomFurman@... wrote:

> Dear Ms. Positive Thinker:

>

> I thought that the purpose of a Support group

> was so that you could talk

> about the PAIN, the sore butthole, the night

> cramps, the dry eyes that feels

> like someone tried to sand them out with coarse

> grit sandpaper.

>

> I thought the support group was there to listen

> to you cry about not being

> unable to stand long enough to get thru a long

> check out line at the store,

> or not being able to sit up long enough to go

> to the movies with your family.

>

> I thought the support group was there to hear

> and understand when you are so

> upset that when you took your kids to Disney

> World and they had to push you

> around in a wheelchair because your hips and

> ankles were so red and swollen

> that if you took one more step you knew you

> would die on the spot.

>

> I thought that this support group was here so

> that when we have to attend our

> little brothers funeral, (because he too had

> fibro and no relief from the

> pain. And no support group. He thought that it

> would be easier to eat his

> gun than it would be to live with this Shitty

> hand that he have been dealt)

> and was unable to kneel during the church

> service because your left knee hurt

> like someone had a burning steel rod jammed

> inside it, and the reason you

> needed help to the car was not only because you

> were so upset over the tragic

> event that had occurred, but you could no

> longer walk that day.

>

> This group has been there for me during all the

> events above. I read about

> every bump, ache, sore asshole, head ache, back

> pain and limp that someone

> writes, Why do I do that..... Well, because

> someone did it for me, and then

> they took the time to write back and tell me

> where I could get some relief

> for the pain, or they just said " I

> UNDERSTAND, and I am praying for you "

> That my friend is support. Don't come in here

> telling us that we need to be

> POSITIVE and stop frightening the newbie's with

> our pain. If the NEWBIES

> didn't have the same damn pain they would not

> have come in here for support

> to begin with. I want to hear about Serena's

> bad day ... you know why,

> because I want to be able to tell her that I

> UNDERSTAND HER PAIN and I want

> to tell her that it may be better tomorrow, but

> if it isn't I WILL STILL

> UNDERSTAND HER PAIN. It is all about

> validation, it is called SUPPORT, and

> if that isn't what you want to do then go away

> ... we don't need ya.

>

> Joan W. Furman

> Hilliard, Ohio

>

> [Non-text portions of this message have been

> removed]

>

I just wanted to know why your asshole is

sore......just what have you been doing? Now,

before this starts a war, I'm kidding! My butt

gets sore, but after 28 years, I can say my

rectum dosn't hurt. But, do you ever get the

pain deep in your butt cheek. Ugh, I hate that!

Joanne

P.S. I didn't read the letter from the person

who pissed everyone off, but as my fibro is in

remission, there is one thing I read that I

agreed with. When my pain was excrutiating

(1974-1990), I thought about it non stop. I

tried not to, and sometimes I don't read all the

letters about pain because I don't want it to

come back, so maybe it's not good to talk and

read about it all the time. One time, my worst

attack, I remember waking up in the morning and

for the first ten seconds I couldn't feel any

pain. Then, all those musceles knoted up like a

rope. I have to say that when it was so bad, I

really couldn't think of anything else,so I think

that person really didn't have it.

__________________________________________________

January 28, 2002

--- MomFurman@... wrote:

> Dear Ms. Positive Thinker:

>

> I thought that the purpose of a Support group

> was so that you could talk

> about the PAIN, the sore butthole, the night

> cramps, the dry eyes that feels

> like someone tried to sand them out with coarse

> grit sandpaper.

>

> I thought the support group was there to listen

> to you cry about not being

> unable to stand long enough to get thru a long

> check out line at the store,

> or not being able to sit up long enough to go

> to the movies with your family.

>

> I thought the support group was there to hear

> and understand when you are so

> upset that when you took your kids to Disney

> World and they had to push you

> around in a wheelchair because your hips and

> ankles were so red and swollen

> that if you took one more step you knew you

> would die on the spot.

>

> I thought that this support group was here so

> that when we have to attend our

> little brothers funeral, (because he too had

> fibro and no relief from the

> pain. And no support group. He thought that it

> would be easier to eat his

> gun than it would be to live with this Shitty

> hand that he have been dealt)

> and was unable to kneel during the church

> service because your left knee hurt

> like someone had a burning steel rod jammed

> inside it, and the reason you

> needed help to the car was not only because you

> were so upset over the tragic

> event that had occurred, but you could no

> longer walk that day.

>

> This group has been there for me during all the

> events above. I read about

> every bump, ache, sore asshole, head ache, back

> pain and limp that someone

> writes, Why do I do that..... Well, because

> someone did it for me, and then

> they took the time to write back and tell me

> where I could get some relief

> for the pain, or they just said " I

> UNDERSTAND, and I am praying for you "

> That my friend is support. Don't come in here

> telling us that we need to be

> POSITIVE and stop frightening the newbie's with

> our pain. If the NEWBIES

> didn't have the same damn pain they would not

> have come in here for support

> to begin with. I want to hear about Serena's

> bad day ... you know why,

> because I want to be able to tell her that I

> UNDERSTAND HER PAIN and I want

> to tell her that it may be better tomorrow, but

> if it isn't I WILL STILL

> UNDERSTAND HER PAIN. It is all about

> validation, it is called SUPPORT, and

> if that isn't what you want to do then go away

> ... we don't need ya.

>

> Joan W. Furman

> Hilliard, Ohio

>

> [Non-text portions of this message have been

> removed]

>

I just wanted to know why your asshole is

sore......just what have you been doing? Now,

before this starts a war, I'm kidding! My butt

gets sore, but after 28 years, I can say my

rectum dosn't hurt. But, do you ever get the

pain deep in your butt cheek. Ugh, I hate that!

Joanne

P.S. I didn't read the letter from the person

who pissed everyone off, but as my fibro is in

remission, there is one thing I read that I

agreed with. When my pain was excrutiating

(1974-1990), I thought about it non stop. I

tried not to, and sometimes I don't read all the

letters about pain because I don't want it to

come back, so maybe it's not good to talk and

read about it all the time. One time, my worst

attack, I remember waking up in the morning and

for the first ten seconds I couldn't feel any

pain. Then, all those musceles knoted up like a

rope. I have to say that when it was so bad, I

really couldn't think of anything else,so I think

that person really didn't have it.

__________________________________________________

January 29, 2002

Joanne: (and thank-you for the interest in my sphincter LOL)

Well... As my sister would say...... I have " bathroom problems " With all the

meds I am on it has been a long time since I have had was would be called

normal BM's I also have chronic kidney pain. Forty-seven people in the

country have been DX with the condition that I have called Loin pain

Hemituria Syndrome. What that means is I have blood in the urine and I have

no Idea why and neither does anyone else, and I have pain on a scale of 1-10

that is a 15 in my right kidney all of the time. I take strong pain killers

all of the time. The doctors tell me that they don't know what causes it, or

what to do about it other than take pain killers, and that none of the people

who have it have died from it, and someday it will just go away. The Doctor

I am seeing is World famous in nephrology, and works out of Ohio State

Medical Center & also the Cleveland Clinic. I cannot get better doctors that

I have right now.

So my butthole hurts, because I have had the TROTTS for about 2 years. I go

20 times a day, and because I am on antibiotics everyday for the kidney

infections I get, I am always fighting a yeast infection. The combo has

taken a toll on my poor little sphincter ;-( (like anyone really wanted

or needed to know this ... right! see.... Now you can smile and say..... " hey

it isn't so bad, I could have major sphincter problems too!!!! " )

Joan

February 3, 2002

Dear Joan,

Well said, I have just read your email and just cried and cried. It is great

to know that you understand. I am one of the new people on this site and

have been diagnosed 3 months ago . I had a car accident 4 years ago and from

doing everything in my life from playing with the kids to sorting out the

housework and bills to not being able to cope with the everyday normal take

for granted things. I thought I was going mad until I was diagnosed with

fibro, cfs and ibs. I started looking on the website for some understanding

of this horrible illness and that is where I found this support website.

YOU HAVE HELPED ME AND OTHERS AS WE NOW KNOW THAT WE ARE NOT ON OUR OWN.

GOD BLESS

AND THANK YOU

LIN XXXXXXXOOOOOOOXXXXX

February 3, 2002