Re: high risk obgyn in dc area

[Guest guest]

I don't know of a high risk OB in DC, but get your hep to call and get an

appointment with

this doc that you want to see. Make the system work for you!

As for the Questran, I believe that it is not advisable while PG. You need the

fats and

cholesterol that it also binds with to maintain a healthy PG. The good news is

lots of

women go into remission while PG. I did both times with my two children and was

in

heaven (except for the morning sickness!) while PG. I wish I could be PG for the

rest of my

life, as I felt great, slept well and didn't itch!

Having a normal cycle is key. My other suggestion is to start using something

like Fertility

Friend to track your cycles -- sympto-thermal method worked like a charm for me.

Good luck!

Colleen

>

>

> I was wondering if anyone could recommend a high risk obgyn in the

> washington dc area... I am 33 pre transplant

> patient. My meld score is 12. I have had PSC for 12. It has progressed

> to cirrhosis . I have been stable for the last four years... would like to

attempt. I

> have a normal cycle. Also did anyone stop taking Questran while

> pregnant or was trying to concieve.

>

[Guest guest]

i wonder if any researchers have tried to reproduce the things in pregnancy that make the ladies who are pregnant go into remission. sounds kind of promising. wonder if it's hormones, or what it is.

psc pam

dx 2001Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.

[Guest guest]

-----Original

Message-----

i wonder if any researchers have tried

to reproduce the things in pregnancy that make the ladies who are pregnant go

into remission

Doctors can’t reproduce

it. The reason women go into

remission while pregnant is because the baby’s liver is doing the job for

both the baby and mom. This also

explains why the mom’s symptoms “seem” to come back with a vengeance

after delivery, the baby’s liver isn’t working for both of them any

longer. HTH

Barb (Proud mom of Ken) in Texas - Together in the Fight, Whatever it Takes!

Son Ken (34) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

..

[Guest guest]

Barb,

Have you found any actual research on this issue? I ask because I've

heard both theories (that the babies liver is helping, and that the

mothers immune system is altered by pregnancy) but never heard any

actual evidence to back up either one.

The " babies liver helping " theory sounds simpler to me, but leaves me

with a couple questions. For instance, the main problem in PSC is

getting the bile out, and that's usually done via the bile ducts into

the intestine and thence out of the body. Since the baby doesn't

actually have anywhere to send the bile it can't really help with

removing it that much. After all many newborns are jaundiced just from

trying to process their own bilirubin!

Of course I may be wrong about that, but I wonder if anyone's looked

into it deep enough to give a definitive answer.

athan

[Guest guest]

Just wanted to add my two cents worth here. When i was in nurseing

school , the one dutey that i had when on my ob gyn rotation , was to

give the new bornes their vitamin k injections . this is usually done

right asfter birth. this is done because the newborn liver is not

completely functioning and can not produce the vitamin k on its own.so

it would also stand to reason that the baby's liver would be incapeable

of functioning in the capacity needed to show improvement in the mother.

chris

[Guest guest]

-----Original Message----- Have

you found any actual research on this issue?

Nope, I never

looked. It was just something I heard

from someone in this group. Hopefully

will chime in and tell us what her doctor said.

Barb (Proud mom of Ken) in Texas - Together in the Fight, Whatever it Takes!

Son Ken (34) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

[Guest guest]

,

I can post my LFTs from pre-, during and post-PG and can back up that something

does

happen during PG. The only number that remained elevated was my Alk Phos, and

that is

because the placenta produces Alk Phos in addition to the liver. So my OB

explained to

me. All other numbers were within normal ranges, or just slightly elevated.

The theory I've heard is that a woman's immune system goes into a sort-of

suspended

animation in order to even maintain a PG -- since an embryo/fetus is 50%

" foreign,

invader " tissue, a normal immune response would be to attack and destroy. It

stands to

reason that a pacified immune response to maintain a PG is going to have an

affect

(effect?) on auto-immune disease as well. I felt fabulous for both my PGs

(morning

sickness and the last two weeks being the exception!!) and wish I could be PG

for the rest

of my life!

I do wonder if the hormone progesterone is partly responsible for the immuno-

modulation. It skyrockets during PG, and is high during the first half of a

woman's

menstrual cycle. I normally get a minor uptick in symptoms after I ovulate each

month,

and I have heard this anecdotally from other women with UC.

Regards,

Colleen

,

>

> Have you found any actual research on this issue? I ask because I've

> heard both theories (that the babies liver is helping, and that the

> mothers immune system is altered by pregnancy) but never heard any

> actual evidence to back up either one.

>

> athan

>

[Guest guest]

I'll have to chime in here too. After getting pregnant, I had my LFTs

checked maybe a month or so into the pregnancy and they returned to

normal. I'm certain that the baby's liver wasn't developed enough at

this point to help me out. I'm going with the immunosuppression

notion. I think my numbers became elevated again after birth, but

then returned to normal after going on a dairy-free diet. Haven't

returned to the diet yet. I will give it a try about a month before

my next blood test to see if it makes any difference...

[Guest guest]

I'll have to chime in here too. After getting pregnant, I had my LFTs

checked maybe a month or so into the pregnancy and they returned to

normal. I'm certain that the baby's liver wasn't developed enough at

this point to help me out. I'm going with the immunosuppression

notion. I think my numbers became elevated again after birth, but

then returned to normal after going on a dairy-free diet. Haven't

returned to the diet yet. I will give it a try about a month before

my next blood test to see if it makes any difference...

[Guest guest]

I'll have to chime in here too. After getting pregnant, I had my LFTs

checked maybe a month or so into the pregnancy and they returned to

normal. I'm certain that the baby's liver wasn't developed enough at

this point to help me out. I'm going with the immunosuppression

notion. I think my numbers became elevated again after birth, but

then returned to normal after going on a dairy-free diet. Haven't

returned to the diet yet. I will give it a try about a month before

my next blood test to see if it makes any difference...