Re: Looking for feedback on a draft of a brochure on PSC Diagnosis

[Guest guest]

Under Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

I really like the brochure, . I wish I had had an explanation

about the antibodies when Pearl was diagnosed.

[Guest guest]

I really like the brochure, . I wish I had had an explanation

about the antibodies when Pearl was diagnosed.

[Guest guest]

I really like the brochure, . I wish I had had an explanation

about the antibodies when Pearl was diagnosed.

[Guest guest]

, I thought your brochure was very informative. It is very detailed and thorough. Some parts are very technical and I just skimmed over them. But it is good information to have as a reference when I have more questions, especially about the lab levels.Martha B.(mom of Matt, UC 5/07, PSC 6/07) wrote: Dear All; I would appreciate any feedback (positive or negative) on a draft of a brochure on "PSC Diagnosis", available for download at: http://www.pscpartners.org/PSCDiagnosis.pdf Thank you, Dave R. (father of (22); PSC 07/03; UC 08/03)

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

, I thought your brochure was very informative. It is very detailed and thorough. Some parts are very technical and I just skimmed over them. But it is good information to have as a reference when I have more questions, especially about the lab levels.Martha B.(mom of Matt, UC 5/07, PSC 6/07) wrote: Dear All; I would appreciate any feedback (positive or negative) on a draft of a brochure on "PSC Diagnosis", available for download at: http://www.pscpartners.org/PSCDiagnosis.pdf Thank you, Dave R. (father of (22); PSC 07/03; UC 08/03)

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

, I thought your brochure was very informative. It is very detailed and thorough. Some parts are very technical and I just skimmed over them. But it is good information to have as a reference when I have more questions, especially about the lab levels.Martha B.(mom of Matt, UC 5/07, PSC 6/07) wrote: Dear All; I would appreciate any feedback (positive or negative) on a draft of a brochure on "PSC Diagnosis", available for download at: http://www.pscpartners.org/PSCDiagnosis.pdf Thank you, Dave R. (father of (22); PSC 07/03; UC 08/03)

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

LOL!!!

In Christ's Love,

Bethany Hunt

" And he

[Jesus] is the propitiation for our sins: and not for ours only, but also

for the sins of the whole world. " 1 2:2

From:

[mailto: ] On Behalf

Of Chaim Boermeester

Sent: Thursday, May 01, 2008 8:47 AM

To:

Subject: RE: Looking for feedback on a draft of a brochure

on PSC Diagnosis

I did a

googlefight at www.googlefight.com .

It counts the times a certain word appears on the internet.

Anus had

15.800.000 hits, rectum 5.060.000 hits.

Anus is

the winnerrrrr……

Chaim

Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking for feedback on a draft of a brochure

on PSC Diagnosis

Under Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

LOL!!!

In Christ's Love,

Bethany Hunt

" And he

[Jesus] is the propitiation for our sins: and not for ours only, but also

for the sins of the whole world. " 1 2:2

From:

[mailto: ] On Behalf

Of Chaim Boermeester

Sent: Thursday, May 01, 2008 8:47 AM

To:

Subject: RE: Looking for feedback on a draft of a brochure

on PSC Diagnosis

I did a

googlefight at www.googlefight.com .

It counts the times a certain word appears on the internet.

Anus had

15.800.000 hits, rectum 5.060.000 hits.

Anus is

the winnerrrrr……

Chaim

Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking for feedback on a draft of a brochure

on PSC Diagnosis

Under Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

LOL!!!

In Christ's Love,

Bethany Hunt

" And he

[Jesus] is the propitiation for our sins: and not for ours only, but also

for the sins of the whole world. " 1 2:2

From:

[mailto: ] On Behalf

Of Chaim Boermeester

Sent: Thursday, May 01, 2008 8:47 AM

To:

Subject: RE: Looking for feedback on a draft of a brochure

on PSC Diagnosis

I did a

googlefight at www.googlefight.com .

It counts the times a certain word appears on the internet.

Anus had

15.800.000 hits, rectum 5.060.000 hits.

Anus is

the winnerrrrr……

Chaim

Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking for feedback on a draft of a brochure

on PSC Diagnosis

Under Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

I did a googlefight at www.googlefight.com . It counts the

times a certain word appears on the internet.

Anus had 15.800.000 hits, rectum 5.060.000

hits.

Anus is the winnerrrrr……

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking

for feedback on a draft of a brochure on PSC Diagnosis

Under

Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

I did a googlefight at www.googlefight.com . It counts the

times a certain word appears on the internet.

Anus had 15.800.000 hits, rectum 5.060.000

hits.

Anus is the winnerrrrr……

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking

for feedback on a draft of a brochure on PSC Diagnosis

Under

Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

I did a googlefight at www.googlefight.com . It counts the

times a certain word appears on the internet.

Anus had 15.800.000 hits, rectum 5.060.000

hits.

Anus is the winnerrrrr……

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of stonehollow@...

Sent: Thursday, May 01, 2008 01:40

To:

Subject: Re: Looking

for feedback on a draft of a brochure on PSC Diagnosis

Under

Common Symptoms:

The only thing I'd note is that many report vomiting with cholangitis episodes

(I've not), and many report pale stools/dark urine (I have).

Under Antibodies:

I can't remember any discussion on antibodies - either at initial diagnosis or

followup at Mayo (but I may have not been paying attention either!).

Under Colonoscopy:

A quick look at the internet descriptions (wrt anus) shows about an equal

division between the use of anus, rectum and no mention.

In conclusion ----- I wish I'd had this 8 years ago!!!!!!! Great job!

Arne

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartners.org/PSCDiagnosis.pdf

[Guest guest]

I would use right upper quadrant since that is what the medical field

uses. I vote for rectum, I have a hard time thinking I would say anus

to a pt face to face. Also did I total miss the " treatment " part of

this brochure.

PSC 5/07 Listed

[Guest guest]

Dear ,

Thanks for doing a great job on the brochure.

I thought that i would let you know about some few points and so you can decide

if you would like to add them or not:

Pain: That the Upper Right Quadrant pain does radiates into the Back, right

side, and to the right shoulder, sometimes, too. Recently my pain has started to

radiates into my shoulder blade, a lot.

Cholangitis Attacks: when there is a sludge in the bile duct [no fever] but

accompanied by chills, too [for myself], pain and nuasea.

Joint and Muscle pain, in general.

I do not know if you would like to add depression, as a symptom, too. I guess

that is caused by fatique, anyway.

So much appreciation for your continous and unrelentless efforts for our group.

wrote:

Dear All;

I would appreciate any feedback (positive or negative) on a draft of a

brochure on " PSC Diagnosis " , available for download at:

http://www.pscpartn ers.org/PSCDiagn osis.pdf

Thank you,

Dave R.

(father of (22); PSC 07/03; UC 08/03)

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

,It was really nice to finally meet you.As to the brochure, I thought it was great. I would use the term RUQ (right upper quadrant) - I think that's the term used most frequently. Also, I would have a few words in there about treatment (or lack thereof) and prognosis, since that is upper most in the minds of those newly diagnosed.Marie

Make Windows Vista more reliable and secure with Windows Vista Service Pack 1. Learn more.