Re:PSC affecting brain

[Guest guest]

Hi

I get the same symptoms after every meal. I am not in late stage PSC

and I do not have hepatoencephalophathy. My ammonia levels are normal.

So please don't think you are at the end of your disease.

I mentioned this problem to my hepatologist and he could not give a

reason for it but guessed it was just part of the over-all inflammation

of the digestive system. I have found that eating smaller meals helps

although I still need to nap after every meal. I think it's just part

of the fatigue that many people with liver disease suffer and which has

yet to be explained by medical research.

Good luck. (Sacramento dx UC and PSC 2001)

[Guest guest]

Hi

I get the same symptoms after every meal. I am not in late stage PSC

and I do not have hepatoencephalophathy. My ammonia levels are normal.

So please don't think you are at the end of your disease.

I mentioned this problem to my hepatologist and he could not give a

reason for it but guessed it was just part of the over-all inflammation

of the digestive system. I have found that eating smaller meals helps

although I still need to nap after every meal. I think it's just part

of the fatigue that many people with liver disease suffer and which has

yet to be explained by medical research.

Good luck. (Sacramento dx UC and PSC 2001)

[Guest guest]

Hi

I get the same symptoms after every meal. I am not in late stage PSC

and I do not have hepatoencephalophathy. My ammonia levels are normal.

So please don't think you are at the end of your disease.

I mentioned this problem to my hepatologist and he could not give a

reason for it but guessed it was just part of the over-all inflammation

of the digestive system. I have found that eating smaller meals helps

although I still need to nap after every meal. I think it's just part

of the fatigue that many people with liver disease suffer and which has

yet to be explained by medical research.

Good luck. (Sacramento dx UC and PSC 2001)

[Guest guest]

I think it's just part

> of the fatigue that many people with liver disease suffer and which has

> yet to be explained by medical research.

>

> Good luck. (Sacramento dx UC and PSC 2001)

>

I experience a mental fatigue and fuzziness when I get tired & it

doesn't have anything to do with eating (or hepatoencephalophathy.

I'm nowhere near end stage PSC). It is one of the things that led me

to get diagnosed in the first place. My husband and I call them

" check-out " episodes. It's always at the end of the day when I'm

tired & it's like I hit a wall. Not only does my body quit, but my

mind seems to quit, too. My husband says he can talk to me, but it's

like I'm not really there. I usually have a fuzzy memory about what

happens after that point, and I can't remember the conversations we

have. Once I have a chance to sleep, even if it's just a few hours,

I'm clear headed again.

It's a very frustrating thing because I am not conscious of the

decisions I make at that time. It's one thing if you're trying to get

something done at night, laundry for instance, and you get tired and

decide to only do one load instead of the three you were planning.

But, when I have one of these episodes, I will just quit in the middle

of doing the laundry, and when I wake up the next morning, I say, " Oh

I guess this is where I stopped last night. "

Does anyone else experience that type of mental fatigue? Since

getting diagnosed with PSC, I have assumed it was related, but I don't

really know.

Debbie

[Guest guest]

Debbie

I don't fade out completely, but my thinking gets very fractured and scattered.

I'll be doing 5

things and just not staying on target. I honestly don't know if I can blame it

on liver disease,

or being a mom to small children. Little people are such tyrants -- especially

at mealtimes!

To do lists have become my lifeline. If I don't write down what it is I need to

do, I really can

wander off in my thinking. I never used to be this way, so it is either the PSC

or the kids!

I did find one thing that helps me keep up with the everyday stuff -- it is the

Motivated

Moms Annual calendar -- It has a checklist of stuff to be done. Some might find

it too much,

but for me, it is a dispassionate list of stuff to be done. And my husband can

use it too, so I

don't have to nag.

Colleen