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I am a new member. My son, 17, has UC and PSC. He was diagnosed at the

age of 14 (2003)and is on Remicade 4 weekly, Imuran, Ursochol. Up until

now the PSC has not been a problem. Oh he also has Gilbert's.Now to cut

a long story short he will go in for ERCP on Wednesday this week as the

docs can see an obstruction (ultrasound) and the LFT's and SBr are

raised. To make it worse this is his last year at school and he has

university application, interviews and portfolios to do.

It is very easy for me, a registered nurse and midwife, to search the

web for PSC and scare myself silly.

I shall see the GI and Heptologist on Wednesday - what questions should

I be asking of them??

Thank you for your understanding. I was directed to this site by

mothers on the Dragonpack site.

Belgium

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