Fw: RE: urso: Lori

[Guest guest]

> Lori,

>

> Chaim has explained in some more detail about the Varices.

> That is right, they do come with Cirrohsis, stage 4 of PSC.

> We do have to wait for the facts about the outcome when the

> study reports are out.

I cannot remember if doctor Lindor has took your dad your off URSO or not. but

if not it would be wise to contact him and find out

> about that, of course. 

>  

> By the way, thanks for that trials, link. I will view that

> even though i cannot enroll in any research for a whole

> year, at least. And i also would need a great deal of

> courage before i decide to enroll in a new trial, you know!

> My best wishes.

>  

>

>

>

>

>

> Subject: RE: urso

> To:

> Date: Tuesday, July 1, 2008, 1:17 PM

>

>  

> What I understand from what is said so far is that Urso

> apparently makes patients more prone to develop varices.

> This is a serious condition but, if I understand it right,

> this condition develops only if you have portal

> hypertension. Hypertension is caused by cirrhosis. If your

> daughter has portal hypertension it might be wise to stop

> using Urso. Do this, of course, only after consulting with

> your daughter's hepatologist/ GI doctor. I am no

> doctor; I am only trying to make sense of what I understand

> so far. As far as I know there is not even a report written

> yet to summarize the results of the trials. If your

> daughter does not have portal hypertension (like me) I do

> not see an urgent reason to stop taking Urso. I for myself

> decided to keep taking Urso. I like my LFTs to stay the way

> they are…..

>  

> Regards,

>  

> Chaim Boermeester, Israel.

>  

>

>

>

>

> From: @ yahoogroups. com [mailto: @

> yahoogroups. com ] On Behalf Of eversole3

> Sent: Tuesday, July 01, 2008 13:57

> To: @ yahoogroups. com

> Subject: urso

>  

>

>

>

> could you tell me how high the dosage was in this study?

> does this mean

> that urso is useless for psc? my daughter has been on it

> for a very

> long time . years. is this going to make her progress

> faster? i'm

> confused.

> chris

>