Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Hi Stevie; I can speak only for our family, but we do not plan to change our son's medications until the study results are published and peer reviewed. Before making any decisions, we would like to learn much more about the adverse effect(s) and their statistical significance, and we would like to know if the adverse effect(s) were only observed in a sub-group of patients in late-stage PSC? Best regards, Dave (father of (23); PSC 07/03; UC 08/03) > Is this really fact that people should go off Urso. My Tyler has been on it for over a 1 yr and a half and it is the only thing that stopped the pain? Any of you pros out there like Ricky have any thing concrete. Now I am worried about this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Hi Stevie; I can speak only for our family, but we do not plan to change our son's medications until the study results are published and peer reviewed. Before making any decisions, we would like to learn much more about the adverse effect(s) and their statistical significance, and we would like to know if the adverse effect(s) were only observed in a sub-group of patients in late-stage PSC? Best regards, Dave (father of (23); PSC 07/03; UC 08/03) > Is this really fact that people should go off Urso. My Tyler has been on it for over a 1 yr and a half and it is the only thing that stopped the pain? Any of you pros out there like Ricky have any thing concrete. Now I am worried about this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Everyone, please keep in mind that my Dad was not in the study. He decided to take the high dose urso according to Dr. Lindors prescription. So for my Dad it may be different as far as stopping the meds alltogether per Dr. Lindors advise. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Re: URSO study Hi Stevie;I can speak only for our family, but we do not plan to change our son's medications until the study results are published and peer reviewed. Before making any decisions, we would like to learn much more about the adverse effect(s) and their statistical significance, and we would like to know if the adverse effect(s) were only observed in a sub-group of patients in late-stage PSC? Best regards,Dave (father of (23); PSC 07/03; UC 08/03)> Is this really fact that people should go off Urso. My Tyler has been on it for over a 1 yr and a half and it is the only thing that stopped the pain? Any of you pros out there like Ricky have any thing concrete. Now I am worried about this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Everyone, please keep in mind that my Dad was not in the study. He decided to take the high dose urso according to Dr. Lindors prescription. So for my Dad it may be different as far as stopping the meds alltogether per Dr. Lindors advise. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Re: URSO study Hi Stevie;I can speak only for our family, but we do not plan to change our son's medications until the study results are published and peer reviewed. Before making any decisions, we would like to learn much more about the adverse effect(s) and their statistical significance, and we would like to know if the adverse effect(s) were only observed in a sub-group of patients in late-stage PSC? Best regards,Dave (father of (23); PSC 07/03; UC 08/03)> Is this really fact that people should go off Urso. My Tyler has been on it for over a 1 yr and a half and it is the only thing that stopped the pain? Any of you pros out there like Ricky have any thing concrete. Now I am worried about this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Everyone, please keep in mind that my Dad was not in the study. He decided to take the high dose urso according to Dr. Lindors prescription. So for my Dad it may be different as far as stopping the meds alltogether per Dr. Lindors advise. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Re: URSO study Hi Stevie;I can speak only for our family, but we do not plan to change our son's medications until the study results are published and peer reviewed. Before making any decisions, we would like to learn much more about the adverse effect(s) and their statistical significance, and we would like to know if the adverse effect(s) were only observed in a sub-group of patients in late-stage PSC? Best regards,Dave (father of (23); PSC 07/03; UC 08/03)> Is this really fact that people should go off Urso. My Tyler has been on it for over a 1 yr and a half and it is the only thing that stopped the pain? Any of you pros out there like Ricky have any thing concrete. Now I am worried about this. Quote Link to comment Share on other sites More sharing options...
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