Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 The only way I can do this is to concentrate on and only compare her to herself. If I start somparing her to the other kids I would and still may have a nervous breakdown. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 The only way I can do this is to concentrate on and only compare her to herself. If I start somparing her to the other kids I would and still may have a nervous breakdown. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 The only way I can do this is to concentrate on and only compare her to herself. If I start somparing her to the other kids I would and still may have a nervous breakdown. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 What a great way to explain it Sally. this ladies are great they can help you feel better no matter what is going on on your life. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: bunnytiner Enviado el: Martes, 15 de Abril de 2003 10:18 a.m. Para: parenting_autism Asunto: Re: How do you ladies do it? : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 What a great way to explain it Sally. this ladies are great they can help you feel better no matter what is going on on your life. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: bunnytiner Enviado el: Martes, 15 de Abril de 2003 10:18 a.m. Para: parenting_autism Asunto: Re: How do you ladies do it? : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 What a great way to explain it Sally. this ladies are great they can help you feel better no matter what is going on on your life. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: bunnytiner Enviado el: Martes, 15 de Abril de 2003 10:18 a.m. Para: parenting_autism Asunto: Re: How do you ladies do it? : Well, the ups are much uppier, you know. I mean, most people when they hear their child speak for the first time are pleased. No one, NO ONE, is as pleased as you are when you have waited for four and a half years. Except perhaps someone who has waited for six year or even more. When our kids do things right, we are much much happier than other parents. We take nothing for granted. Of course, we don't have many people to share these incredible victories with. Only people who have been where we have been can understand that it was absolutely incredible and amazing and astounding the day I said to Putter, " Hand me my keys, " and he, glancing at the keys briefly, did just that. I almost cried on the spot but who would have understood? An almost five year old hands his mother some keys he is holding...exciting? Well, people here at PA knew it was exciting. Vent away and remember the good moments are BETTER than with parents who take their children's normal development casually and comfortably. It's a roller coaster! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 ((((hugs))) Been there, know exactly what you mean > Hi Everyone, > > I know I am new but I really could use to vent right now..... > > Today I was waiting at My NT son's preschool and talking to one of the other mom. My son was playing with her son and her younger son (20 Months) was just hanging out, checking things out. I said to him " Jake I love your boots " He looked down and said " Daddy helped " > > I almost started crying... would have no clue if I said that same thing to him nor would he just hang out.... > > Some times reality just slaps you right in the face..... How do you stay strong? Just once I would love o hear " did great " Or " is up to age level " ,.....Sorry pity party I know and I have so many years to go > > Thanks for listening > > > Warm Regards > > & ASD 11/25/00 in Maine > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.427 / Virus Database: 240 - Release Date: 12/6/2002 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 ((((hugs))) Been there, know exactly what you mean > Hi Everyone, > > I know I am new but I really could use to vent right now..... > > Today I was waiting at My NT son's preschool and talking to one of the other mom. My son was playing with her son and her younger son (20 Months) was just hanging out, checking things out. I said to him " Jake I love your boots " He looked down and said " Daddy helped " > > I almost started crying... would have no clue if I said that same thing to him nor would he just hang out.... > > Some times reality just slaps you right in the face..... How do you stay strong? Just once I would love o hear " did great " Or " is up to age level " ,.....Sorry pity party I know and I have so many years to go > > Thanks for listening > > > Warm Regards > > & ASD 11/25/00 in Maine > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.427 / Virus Database: 240 - Release Date: 12/6/2002 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 ((((hugs))) Been there, know exactly what you mean > Hi Everyone, > > I know I am new but I really could use to vent right now..... > > Today I was waiting at My NT son's preschool and talking to one of the other mom. My son was playing with her son and her younger son (20 Months) was just hanging out, checking things out. I said to him " Jake I love your boots " He looked down and said " Daddy helped " > > I almost started crying... would have no clue if I said that same thing to him nor would he just hang out.... > > Some times reality just slaps you right in the face..... How do you stay strong? Just once I would love o hear " did great " Or " is up to age level " ,.....Sorry pity party I know and I have so many years to go > > Thanks for listening > > > Warm Regards > > & ASD 11/25/00 in Maine > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.427 / Virus Database: 240 - Release Date: 12/6/2002 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 - It's ok...You've boarded the Autism Rollercoaster. Keep the dramamine on hand cuz it's gonna be a very bumpy ride. My Jacqui is 8. I've been up and down so many times that sometimes I don't know WHICH way I'm going. That's why WE are here. We can't FIX everything for you, but we sure can listen. Vent as much as you want...we will ALWAYS listen. Penny :-D How do you ladies do it? Hi Everyone, I know I am new but I really could use to vent right now..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 , I know exactly how you feel. I have two children exactly the same age and there have been days when my heart has ached as I watch what Jordan can do versus his NT twin sister . Twins are supposed to be " the same " right? So not true in this house. It got better the day I told my mother, " They may be twins chronologically, but I'm really raising a 2.5 year old and a 1.5 year old now. " I guess I separated them from their twindom and I adjusted my expectations for Jordan to his developmental age. I dunno, maybe it's somehow easier for me because I have a 24/7 reminder of just how *not* NT Jordan is? So it doesn't smack me in the face without warning? But it still does happen to me at times. I'm filling out all kinds of surveys for Jordan now as part of his MFE. I was doing the functional portion of an OT interview form today, and once again my heart was aching because of how many things I had to check " unable " that I would checked " able " for . The same thing happened the other day when I did the speech survey. I will tell you that the other mothers are right. We celebrate the smallest of accomplishments that are just HUGE for our autistic children. Yes, I celebrate 's milestones but she's probably shortchanged because I take for granted that she *will* progress. I do not take anything for granted with Jordan ... and so when he achieves another step, there's an elation that I've never felt with my daughter's accomplishments. It is a rollercoaster ride for sure. Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 , I know exactly how you feel. I have two children exactly the same age and there have been days when my heart has ached as I watch what Jordan can do versus his NT twin sister . Twins are supposed to be " the same " right? So not true in this house. It got better the day I told my mother, " They may be twins chronologically, but I'm really raising a 2.5 year old and a 1.5 year old now. " I guess I separated them from their twindom and I adjusted my expectations for Jordan to his developmental age. I dunno, maybe it's somehow easier for me because I have a 24/7 reminder of just how *not* NT Jordan is? So it doesn't smack me in the face without warning? But it still does happen to me at times. I'm filling out all kinds of surveys for Jordan now as part of his MFE. I was doing the functional portion of an OT interview form today, and once again my heart was aching because of how many things I had to check " unable " that I would checked " able " for . The same thing happened the other day when I did the speech survey. I will tell you that the other mothers are right. We celebrate the smallest of accomplishments that are just HUGE for our autistic children. Yes, I celebrate 's milestones but she's probably shortchanged because I take for granted that she *will* progress. I do not take anything for granted with Jordan ... and so when he achieves another step, there's an elation that I've never felt with my daughter's accomplishments. It is a rollercoaster ride for sure. Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I like your posts, Susi. Maggie ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I like your posts, Susi. Maggie ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I like your posts, Susi. Maggie ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Thanks , Maggie ! Am still a little nervous, get stuck a lot when I am trying to express something specific. My first language is German, ladies you have to forgive if I write jibberish LOL susi > I like your posts, Susi. > > Maggie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.467 / Virus Database: 266 - Release Date: 4/1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Thanks , Maggie ! Am still a little nervous, get stuck a lot when I am trying to express something specific. My first language is German, ladies you have to forgive if I write jibberish LOL susi > I like your posts, Susi. > > Maggie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.467 / Virus Database: 266 - Release Date: 4/1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Thanks , Maggie ! Am still a little nervous, get stuck a lot when I am trying to express something specific. My first language is German, ladies you have to forgive if I write jibberish LOL susi > I like your posts, Susi. > > Maggie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.467 / Virus Database: 266 - Release Date: 4/1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I liked your post and all the great replays you got. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: D & S Ehringer Enviado el: Martes, 15 de Abril de 2003 01:34 p.m. Para: parenting_autism Asunto: Re: How do you ladies do it? Thanks , Maggie ! Am still a little nervous, get stuck a lot when I am trying to express something specific. My first language is German, ladies you have to forgive if I write jibberish LOL susi > I like your posts, Susi. > > Maggie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.467 / Virus Database: 266 - Release Date: 4/1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I liked your post and all the great replays you got. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: D & S Ehringer Enviado el: Martes, 15 de Abril de 2003 01:34 p.m. Para: parenting_autism Asunto: Re: How do you ladies do it? Thanks , Maggie ! Am still a little nervous, get stuck a lot when I am trying to express something specific. My first language is German, ladies you have to forgive if I write jibberish LOL susi > I like your posts, Susi. > > Maggie --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.467 / Virus Database: 266 - Release Date: 4/1/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 > The only way I can do this is to concentrate on and only compare her to > herself. If I start somparing her to the other kids I would and still may > have a nervous breakdown. I agree with this completely. I just had to STOP comparing him to friends' kids or his classmates, as 's an only child. (it must be harder when there's an NT child in the family) is really really young. You haven't had that much time to really accept that he's not going to just wake up tomorrow and 'get it', that he's not going to just 'grow out of it'. You're going to have times when envy of other children and parents seems to eat up your life and your will. I fought envy for a looooong time. How do I stay strong? I celebrate EVERYTHING. Absoutely EVERYTHING. Every day I try to approach as if he's a gift that I can open that day, finding something new and wonderful, no matter how small. I try to stay open and alert for miraculous things that I might have missed or passed by during the times my envy of others distracted me from him and all the things he has to offer. I write to this list a LOT. I share my little daily celebrations with a group of people who understand and know WHY I'm celebrating. That fellowship helps so much. I make SURE to write the list when I feel awful. When I feel like a lousy mother, or trapped, or lost, or cheated, or just so incredibly angry at my and my son's lot in life, I write. Everyone knows how that feels, and nobody on this list will tell me I'm wrong or that I need therapy. (we all do, but in that context it's just mean to say so) This place gives me someone - lots of someones - to talk to who KNOW what my life is like. That kind of understanding is invaluable. Another REALLY important way to stay sane and functional is to remember to take care of YOU. You NEED to make time for yourself. Even if it's just going out shopping while is in preschool instead of cleaning the house. Do you have a hobby? Make time for it. Rent funny videos when you feel down. Call your parents and friends often, and talk about THEIR lives instead of autism. You need to nurture yourself outside of the 'a' word. So, those are my tips! Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 > The only way I can do this is to concentrate on and only compare her to > herself. If I start somparing her to the other kids I would and still may > have a nervous breakdown. I agree with this completely. I just had to STOP comparing him to friends' kids or his classmates, as 's an only child. (it must be harder when there's an NT child in the family) is really really young. You haven't had that much time to really accept that he's not going to just wake up tomorrow and 'get it', that he's not going to just 'grow out of it'. You're going to have times when envy of other children and parents seems to eat up your life and your will. I fought envy for a looooong time. How do I stay strong? I celebrate EVERYTHING. Absoutely EVERYTHING. Every day I try to approach as if he's a gift that I can open that day, finding something new and wonderful, no matter how small. I try to stay open and alert for miraculous things that I might have missed or passed by during the times my envy of others distracted me from him and all the things he has to offer. I write to this list a LOT. I share my little daily celebrations with a group of people who understand and know WHY I'm celebrating. That fellowship helps so much. I make SURE to write the list when I feel awful. When I feel like a lousy mother, or trapped, or lost, or cheated, or just so incredibly angry at my and my son's lot in life, I write. Everyone knows how that feels, and nobody on this list will tell me I'm wrong or that I need therapy. (we all do, but in that context it's just mean to say so) This place gives me someone - lots of someones - to talk to who KNOW what my life is like. That kind of understanding is invaluable. Another REALLY important way to stay sane and functional is to remember to take care of YOU. You NEED to make time for yourself. Even if it's just going out shopping while is in preschool instead of cleaning the house. Do you have a hobby? Make time for it. Rent funny videos when you feel down. Call your parents and friends often, and talk about THEIR lives instead of autism. You need to nurture yourself outside of the 'a' word. So, those are my tips! Jacquie Quote Link to comment Share on other sites More sharing options...
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