Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi everyone, I am a lurker. What the heck is this URSO thing going on? I take 8 tablets a day (250mg) and now I do not need to continue it? I have had PSC for 5 years and my MRIs show continuous progression despite being on URSO. I get a lot of inflammation in my liver leading to low grade fevers and terrible pain which can't be treated with antibiotics b/c it isn't an actual cholangitis attack. I had secret hopes for URSO. AAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!! AND to top it off I was diagnosed with Crohns 4 YEARS after my diagnosis of PSC (was hospitalized with a cholangitis attack which is when I was diagnosed)and recently had a colonoscopy (in May) and now my doctor says I don't have Crohns anymore yet 4 months ago i had uclerative lesions throughout my bowel. And get this..he tells me to keep taking Asacol even though he is not sure I need it? Why am I taking all this medicine that doesn't actually work? I have great benefits so 90% of perscriptions are paid for. So I need to pay approx. 50 bucks a month for my Asacol and Urso which is better then full price but should I just be saving this 50 bucks a month? Thanks for listening. Shahina Toronto dx PSC 2003 Quote Link to comment Share on other sites More sharing options...
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