Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 I think it is always wise to get a second opinion when facing major surgery.Some insurances even insist upon it.My son had a colectomy because we could not get his UC under control.It took 3 opinions before we were ready to have the procedure and we had to besure we had tried everything we could to avoid it.He is doing fine with it.Should you need to go this route, find out from the surgeons if they need to do it intwo steps or if they can do it in one surgery. My son had it in one surgery with a j-pouch.Best of luck,LeeI have been told by my G.I. that I need a colectomy done, because he found (DALM) dyslasia associated lesion in my colon during a colonoscopy. This is not cancer but a preventive measure so as not to get cancer in the future. I have ulcerative colitis and psc, because of that I have a high rate of getting colon cancer. Anybody have a similiar experience or can offer me any advice would be much appreciated. Should I get a second opinion as I don't want to rush into surgery.______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 I'm normally a lurker, but I was also told that I needed a colectomy because dysplasia was found during a colonoscopy in late 2003. (I have ulcerative colitis and was having a flare up at the time.) My doctor told me that I needed to get my colon removed asap and actually became aggravated that I seemed upset, as if I should of just enthusiastically said, " Alrighty then, sign me up! " My family urged me to get a second opinion. My brother, who also has ulcerative colitis went with me to the visit, and we saw Dr. Christian Stone at -Jewish Hospital's Center for Advanced Medicine. He questioned how they could of saw the dysplasia since I had so much inflammation. He said that while it's very possible that I would need a colectomy, he would like to increase the dosage of my Asacol for a month or so and then repeat the colonoscopy. Thankfully the lab findings were clear. I have not cared for the hospital that read my path reports incorrectly for awhile... I was only going there as that is where my primary physician recommended. Not long after that I had an ERCP at and was diagnosed with PSC. I suspect I had it for awhile... while having a particularly rough flare-up of my UC in 1990 which required a 3-week off and on hospitalization, my liver enzymes were very high and I remember my doctor at that time telling me that I would probably need a liver transplant in about 15 years. Please get a second opinion ~ best of luck to you! Kim PSC 2004 UC 1982 --------------------------------------------------------------- In , babe shmeb wrote: > > I have been told by my G.I. that I need a colectomy done, because he found (DALM) dyslasia associated lesion in my colon during a colonoscopy. This is not cancer but a preventive measure so as not to get cancer in the future. I have ulcerative colitis and psc, because of that I have a high rate of getting colon cancer. Anybody have a similiar experience or can offer me any advice would be much appreciated. Should I get a second opinion as I don't want to rush into surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thanks for posting, Kim - much appreciated! Arne 57 - UC 1977 - PSC 2000 Alive and well in Minnesota ________________________________ From: [mailto: ] On Behalf Of brindlebaby8588 ....My family urged me to get a second opinion. My brother, who also has ulcerative colitis went with me to the visit, and we saw Dr. Christian Stone at -Jewish Hospital's Center for Advanced Medicine. He questioned how they could of saw the dysplasia since I had so much inflammation. He said that while it's very possible that I would need a colectomy, he would like to increase the dosage of my Asacol for a month or so and then repeat the colonoscopy. Thankfully the lab findings were clear… Please get a second opinion ~ best of luck to you! Kim PSC 2004 UC 1982 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 To add to Kim's comments, also go by your quality of life before you make the decision.My son was having lots of bathroom emergency's and going 9 to 12 times a day.He couldn't sit through a meal and his weight plummeted. He could hardly eat. He couldn't make it through the night.For him it was definitely time for the colon to go. At that point he was already on immuran, 16 asacol a day,folic acid,predinsone and a parade of other things we tried. At one point he was on 40 pills a day.He had his colectomy when he decided it was time.Best of luck,LeeMy family urged me to get a second opinion. My brother, who also has ulcerative colitis went with me to the visit, and we saw Dr. Christian Stone at -Jewish Hospital's Center for Advanced Medicine. He questioned how they could of saw the dysplasia since I had so much inflammation. He said that while it's very possible that I would need a colectomy, he would like to increase the dosage of my Asacol for a month or so and then repeat the colonoscopy. Thankfully the lab findings were clear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 To add to Kim's comments, also go by your quality of life before you make the decision.My son was having lots of bathroom emergency's and going 9 to 12 times a day.He couldn't sit through a meal and his weight plummeted. He could hardly eat. He couldn't make it through the night.For him it was definitely time for the colon to go. At that point he was already on immuran, 16 asacol a day,folic acid,predinsone and a parade of other things we tried. At one point he was on 40 pills a day.He had his colectomy when he decided it was time.Best of luck,LeeMy family urged me to get a second opinion. My brother, who also has ulcerative colitis went with me to the visit, and we saw Dr. Christian Stone at -Jewish Hospital's Center for Advanced Medicine. He questioned how they could of saw the dysplasia since I had so much inflammation. He said that while it's very possible that I would need a colectomy, he would like to increase the dosage of my Asacol for a month or so and then repeat the colonoscopy. Thankfully the lab findings were clear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 To add to Kim's comments, also go by your quality of life before you make the decision.My son was having lots of bathroom emergency's and going 9 to 12 times a day.He couldn't sit through a meal and his weight plummeted. He could hardly eat. He couldn't make it through the night.For him it was definitely time for the colon to go. At that point he was already on immuran, 16 asacol a day,folic acid,predinsone and a parade of other things we tried. At one point he was on 40 pills a day.He had his colectomy when he decided it was time.Best of luck,LeeMy family urged me to get a second opinion. My brother, who also has ulcerative colitis went with me to the visit, and we saw Dr. Christian Stone at -Jewish Hospital's Center for Advanced Medicine. He questioned how they could of saw the dysplasia since I had so much inflammation. He said that while it's very possible that I would need a colectomy, he would like to increase the dosage of my Asacol for a month or so and then repeat the colonoscopy. Thankfully the lab findings were clear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thank you Arne for making me feel so welcome! > > Thanks for posting, Kim - much appreciated! > > > Arne > 57 - UC 1977 - PSC 2000 > Alive and well in Minnesota > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thank you Arne for making me feel so welcome! > > Thanks for posting, Kim - much appreciated! > > > Arne > 57 - UC 1977 - PSC 2000 > Alive and well in Minnesota > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thank you Arne for making me feel so welcome! > > Thanks for posting, Kim - much appreciated! > > > Arne > 57 - UC 1977 - PSC 2000 > Alive and well in Minnesota > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thank you Arne for making me feel so welcome! > > Thanks for posting, Kim - much appreciated! > > > Arne > 57 - UC 1977 - PSC 2000 > Alive and well in Minnesota > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Thank you Arne for making me feel so welcome! > > Thanks for posting, Kim - much appreciated! > > > Arne > 57 - UC 1977 - PSC 2000 > Alive and well in Minnesota > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
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