Possible cholangiocarcinoma

[Guest guest]

Hi

I am a 50 year old female with the possibility of cholangiocarcinoma.

I have a large stricture in the common bile duct. Could face liver

transplant if ERCP/biopsy comes back positive. I have had Ulcerative

Colitis since I was 16 years old and now have an ileostomy due to pre-

cancer in the colon. (1996) Have had Primary Sclerosing Cholangitis

since 2003. I am very concerned about my future and what options I

might have that I haven't already researched myself. Concerns I have

are dealing with insurance not covering expenses, or losing insurance

in the future. Also looking for information pertaining to finding my

own possible live liver donor. Feeling alone and frightened. Not lots

of support at home. Can you help me?