PSC and Ulcerative Colitis

July 25, 2008

Hi all,

Apologies if I have posted this question already but I can't seem to

see it here and I am totally mind boggled from all the new info in my

head this last week...

My husband has just been diagnosed with PSC. He has had Ulcerative

Colitis for over ten years and during routine blood tests in December

2007, his bilirubin count was high (among a couple other things which

I now can't remember).

They waited a few weeks to see if it would fix itself, which it

didn't, so he was then taken off Azathioprine but to no avail,

bilirubin count remained high.

His doc suspected PSC so he ordered an MRI and a couple other things

and all tests came beack negative. This was around February 2008.

At a loss, the doc referred him to his colleague at The Alfred (we

are in Australia). He ordered another MRI and a CT about two weeks

ago and discovered PSC and signs of cirrhosis.

My internet research tells me PSC is a slowly progressing disease,

how can it be that he is already showing signs of cirrhosis?

Does this mean it is progressing unusually fast? Or has the PSC been

overlooked in the past?

We are seeing the doc on Monday for some further explanation (my

husband tends to 'tune out' at the prospect of bad news, so I have

arranged an appointment to go with him) and I hope to find out more

but in case he does the typical 'beat around the bush, wait and see'

thing, does anyone have any information or advice for us?

Thank you so much - for having this group and letting me share our

story so far...

Cheers,

Kate

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